List of Chiari Specialists in Wisconsin

[Hope8648]

Hi
I was recently diagnosed with a Chiari Malformation and I’m looking for a Chiari specialist in Wisconsin. I was wondering if anyone had a neurologist or neurosurgeon they had any luck with. Thanks.

[selmaS]

Hi and welcome to the Chiari forum.

We do have lists, but special lists are few for Chiari and  Drs on the list may not be true Chiari specialists,,,,our list is compiled by the members here of Drs they have been to, treated by and liked...it is not however an endorsement nor a referral for those listed, merely a tool to start researching Drs. Educate yourself so you will know when you have the right Dr for you.

WISCONSIN

Dr. Bermans J. Iskandar MD
600 Highland Ave.
Madison, WI 53792-0001
(608)263-6

[Hope8648]

Hi
Thank you for the name. It is a good start.
I’m not getting anywhere with my current neurosurgeon. He told me it is a non trivial Chiari Malformation and to go on as normal. Now I’m paying for it. My family doctor told me my symptoms are not related to Chiari. I asked her about a second opinion from another neurosurgeon because he didn’t seem to know much about it. He said I was born with it. I know from a previous MRI that it was not on there. I told his nurse about the old MRI and she never bothered to get it. I’m glad I brought my copy along.  I’ve never had head trauma or anything. I have more health issues that makes it more difficult to figure it out. My family doctor said it’s a common brain disorder that neurosurgeons see all the time and operate on. She said I have 10 patients currently with it. I’m so frustrated. Nobody seems to be able to help and my symptoms are getting worse. Sorry to rant. Thanks again.

[selmaS]

I know what you are going through , unfortunately all of us with Chiari know all too well what you are going through. Best tips I can offer are , every time you have any testing, blood labs, MRI;s etc...ask for copies when you report in for the studies...also request a copy of the report....the MRI should be available a short time after you are done with the studies and you should be able to take them home, the reports will have to be mailed.But having them will help you when you go to new Drs.

There are far too many in the medical profession that do not know much about Chiari and how it can and does affect us.....many of the symptoms we have they dismiss because they are not familiar with Chiari OR related conditions which could be the cause of the symptoms.

Anything, including a flu, stress, or a hard cough can trigger Chiari symptoms to flare....since many have had Chiari since birth, we do not recognize the symptoms since we have always felt this way and consider it to be normal.....not until the symptoms worsen or flare do we take notice....

Of the testing you have had, which MRI's did you get so far...MRI of cervical spine, Brain, Lumbar and thoracic spine...
What related conditions were ruled out?

And what are your current symptoms giving you the issues right now?