Cerebral Palsy Community

This forum is an un-mediated, patient-to-patient forum for questions and support regarding cerebral palsy issues such as: Books and Journals, Daily Living and Social issues, Diagnosis, Education and Schools, Equipment (orthotics, walkers, wheelchairs, cars, etc.), Family and Patient Support Groups, Financial Help and Support, Insurance Issues, Legal Rights and Issues, Research, Long-Term Care, Treatments (Biofeedback, Hyperbaric Oxygen Therapy, Conductive Education, Suit Therapy, Botox, Baclofen, PERC, etc.)

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1 - 20 (of 533) questions

Screaming that is driving me mad

JacqHein

I don't know if this is the right way to do this, but we need help urgently. I have twins boys that was born at 27 weeks, they are now 1...

11 answers

Does anyone know anything about strength Training for Cerebral Palsy?

atticusfinch77

strength training for CP really helps tremendously just wondering if anyone out there knows this? CP persons have bone growth that goes ...

1 answer | 1 comment

32 yr old son with cerebral palsy

Jknowles

My son suffers daily with pain in both legs, he is very stiff and lives with hot water bottles and has been taking baclofen but even thou...

3 answers

Cold Limbs

tamklo

My question regards my 12 year old cerebral palsy child. Josh is a moderate to severe spastic quad & weighs approx 65 lbs. He is non-ve...

6 answers | 1 comment

Cerebral Atrophy / Atexia

Vijayd

HI, My Mother is 51 yrs old. Just 1 yr back she was feeling that she is losing her balance while walking. Also she feels that she can...

3 answers

How to help someone blow their nose if they don’t know or can’t blow their nose?

Zarazeeshan123

My little sister has cerebral palsy and cannot blow her own nose. When she gets sick it all gets really blocked. We use nasal spray to ge...

Son with PVL

SXN85

My son was born on August 11th at 27 weeks and weighed 2pounds 9.6 ounces. He was diagnosed with PVL so Sept. 20th. He has a 6mm cyst on ...

15 answers

are there any adults here with mild CP?

mamiJ

I was born with mild CP. The spacicity was in my legs and with the help of braces and therapy, I was able to walk "normal". I am now 3...

75 answers | 1 comment

I think my son is dying

Lainechie

My son was diagnosed with cerebral palsy around 2 years old.. He turns 23 in March. He doesn't talk or walk. He needs help with everythin...

4 answers

I am currently looking for an adult cerebral palsy doctor in NYC

angelchc903

I live in NYC and wanted to find a new doctor that treats adults with cerebral palsy.

3 answers

What medication can i give my son after he had a hip operation

Chrisntengo

What medication can i give my son with cp after he had a hip operation

Cerebral Palsy and Sex

runlikecassidy

I am going to ask a question about sex, just so nobody freaks out--I have no intention of making anybody uncomfortable. I am a 27 year...

1 answer | 1 comment

Thoughts on how to deal with chronic constipation and mild cerebral palsy

atwitsend2

My son is 7-years-old and was diagnosed with mild cerebral palsy and epilepsy when he was 5. He was slightly developmentally delayed but ...

9 answers

Is using a cup challenging for you?

medengineering

I'm a medical engineering student working towards designing a customisable cup for individuals with cerebral palsy. In particularly, the ...

What is diffuse cortical atrophy as related to cerebral palsy?

undertakerfan

My 37 year old son has spastic quadraplegia. He had a cat scan on his brain today and the result was diffuse cortical atrophy. What is...

What is diffuse cortical atrophy as related to cerebral palsy?

undertakerfan

My 37 year old son has spastic quadraplegia. He had a cat scan on his brain today and the result was diffuse cortical atrophy. What is...

Interest in a CP exercise aid?

mmoon8

Hello, I am working with a group of students at Johns Hopkins University on a design project to help individuals with Cerebral Palsy e...

1 answer

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VISUAL SNOW UPDATE: 2018

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