Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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1 - 12 (of 1925) questions

Do you have to be tachy to have POTS? Do you have to drop BP to be OH?

LiteWait

I've been watching my BP the last week rarely is more that 10 off in either direction, is 110/70 considered low BP? My cardio put me on 0...

2 answers

Useful dysautonomia symptom tracker

trkajk

Hello, I’m looking for a good way to track my symptoms. I saw on a google search an example of a tracking sheet from this website- does ...

1 answer

Worried about Daughter

kittykatt2

My 13 year old daughter is dizzy upon standing from a lying down position. Aside from that, she does not tolerat the heat very well and ...

Is a complete description of the Tilt Table test available?

matt2431

Hi I have some questions about the Tilt Table test. Symptoms started getting worse a few months ago. Fatigue, dizziness/lightheaded...

1 answer

Anyone have a succeful approach with very high bps but wild bp swings?

GilaMonster

BP on awaking this am was 171/99. Yesterday post-nap was 121/76. Dramatic reactions to foods. Turkey (but not chicken) lowers it, aspara...

recurrent vasovagal syncope

shanshan1818

Hi everyone, I need some help I'm 18 and I have recurrent vasovagal syncope, I've had this for 3 years now and the doctors just told me w...

pots specialist in nyc, northern nj or ct

chrystia

can someone recommend a pots specialist in ny, nj, ct tri-state area. thank you!

6 answers | 1 comment

jittering at rest

LornaAnne

Hi, I am a 32 year old woman, who has bee struggling for quite some time now. I have a lot of crazy symptoms, sneezing gives me pins & ne...

1 answer

Vasovagal Syncope

Allie915

In April, my husband was diagnosed with vasovagal syncope. He was in the hospital for 4 days having testing done. They told us they could...

7 answers

I was diagnosed with POTS... looking for dr. in St. Louis Missouri area

Casey311

Anyone know of any doctors in the St. Louis Missouri area or maybe nearby surrounding areas that deals with dysautonomia conditions. Any...

5 answers | 1 comment

anyone on pyridostigmine for POTS

pepito6

I was diagnosed with POTS and my Dr, put me on PYRIDOSTIGMINE. Has any of you taken this medicine? How did it go? Did you have any sid...

9 answers

Can anyone recommend a POTS doctor/cardiologist specialist in or near Miami, FL ?

scoutmomdc

My son, now 22, was diagnosed with POTS after several days of testing at the Mayo Clinic in 2015. He tried several meds for a few years b...

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