Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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1 - 20 (of 1925) questions

Worried about Daughter

kittykatt2

My 13 year old daughter is dizzy upon standing from a lying down position. Aside from that, she does not tolerat the heat very well and ...

Is a complete description of the Tilt Table test available?

matt2431

Hi I have some questions about the Tilt Table test. Symptoms started getting worse a few months ago. Fatigue, dizziness/lightheaded...

1 answer

Anyone have a succeful approach with very high bps but wild bp swings?

GilaMonster

BP on awaking this am was 171/99. Yesterday post-nap was 121/76. Dramatic reactions to foods. Turkey (but not chicken) lowers it, aspara...

recurrent vasovagal syncope

shanshan1818

Hi everyone, I need some help I'm 18 and I have recurrent vasovagal syncope, I've had this for 3 years now and the doctors just told me w...

pots specialist in nyc, northern nj or ct

chrystia

can someone recommend a pots specialist in ny, nj, ct tri-state area. thank you!

6 answers | 1 comment

jittering at rest

LornaAnne

Hi, I am a 32 year old woman, who has bee struggling for quite some time now. I have a lot of crazy symptoms, sneezing gives me pins & ne...

1 answer

Vasovagal Syncope

Allie915

In April, my husband was diagnosed with vasovagal syncope. He was in the hospital for 4 days having testing done. They told us they could...

7 answers

I was diagnosed with POTS... looking for dr. in St. Louis Missouri area

Casey311

Anyone know of any doctors in the St. Louis Missouri area or maybe nearby surrounding areas that deals with dysautonomia conditions. Any...

5 answers | 1 comment

anyone on pyridostigmine for POTS

pepito6

I was diagnosed with POTS and my Dr, put me on PYRIDOSTIGMINE. Has any of you taken this medicine? How did it go? Did you have any sid...

9 answers

Can anyone recommend a POTS doctor/cardiologist specialist in or near Miami, FL ?

scoutmomdc

My son, now 22, was diagnosed with POTS after several days of testing at the Mayo Clinic in 2015. He tried several meds for a few years b...

Cause of squeezing sensation in upper arms?

Speedy88

I have been diagnosed with POTS 2 years now. Recently had a vaccine for Measles Mumps and Rubella in hopes of going to college part time...

3 answers | 1 comment

Looking for advice for POTS with intermittent symptoms

AlaskaMegan

I had my first (undiagnosed) episode of POTS that caused me to pass out about six years ago after a course of Prednisone for poison ivy. ...

Mayo Arizona

mtgardner

I finally have an appt. at an autonomic testing center but I wasted weeks trying to go other places. Maybe my bungles can help others so...

7 answers | 1 comment

Does Dysautonomia affect breathing?

judes52

I get winded when I do housework like mopping, try to dance and especially if I worry or stress. I have to calm myself down as I start to...

1 answer | 1 comment

Useful dysautonomia symptom tracker

trkajk

Hello, I’m looking for a good way to track my symptoms. I saw on a google search an example of a tracking sheet from this website- does ...

Where do I find testing for neuropathic OH in the Phoenix AZ area?

Lbro

After over 3 years of dealing with orthostatic hypotension symptoms, I am now looking at possible neuropathic causes. In the past, I fir...

Do you get blackouts frequently?

OliviaLucia

Hello all! I am 14 years old and was diagnosed with POTS almost a year ago, since then I’ve been on many medications and treatments whic...

2 answers

Does anyone else have severe tremors, body twitches, and high blood pressure with their POTS?

rhonda1017

Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also told me that it is sec...

37 answers | 5 comments

Have we finally hit the wall? No more solutions?

fbrodya

I'm new to the group, and this is my first post. I'm a member of several dysautonomia-related FB pages, and it always seems my 21 year ol...

13 answers

Bell’s palsy

Loories

Hello dear experts , im boy 33 years old , i experinced bells palsy 4 days ago , i went to hospital the doctor gives me prednisone 50mg 1...

1 answer

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