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Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
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1 - 20 (of 1922) questions
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recurrent vasovagal syncope

shanshan1818
Hi everyone, I need some help I'm 18 and I have recurrent vasovagal syncope, I've had this for 3 years now and the doctors just told me w...
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pots specialist in nyc, northern nj or ct

chrystia
can someone recommend a pots specialist in ny, nj, ct tri-state area. thank you!
6 answers | 1 comment   
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jittering at rest

LornaAnne
Hi, I am a 32 year old woman, who has bee struggling for quite some time now. I have a lot of crazy symptoms, sneezing gives me pins & ne...
1 answer   
637496 tn?1223059382

Vasovagal Syncope

Allie915
In April, my husband was diagnosed with vasovagal syncope. He was in the hospital for 4 days having testing done. They told us they could...
7 answers   
653065 tn?1224187779

I was diagnosed with POTS... looking for dr. in St. Louis Missouri area

Casey311
Anyone know of any doctors in the St. Louis Missouri area or maybe nearby surrounding areas that deals with dysautonomia conditions. Any...
5 answers | 1 comment   
886699 tn?1270783344

anyone on pyridostigmine for POTS

pepito6
I was diagnosed with POTS and my Dr, put me on PYRIDOSTIGMINE. Has any of you taken this medicine? How did it go? Did you have any sid...
9 answers   
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Can anyone recommend a POTS doctor/cardiologist specialist in or near Miami, FL ?

scoutmomdc
My son, now 22, was diagnosed with POTS after several days of testing at the Mayo Clinic in 2015. He tried several meds for a few years b...
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Cause of squeezing sensation in upper arms?

Speedy88
I have been diagnosed with POTS 2 years now. Recently had a vaccine for Measles Mumps and Rubella in hopes of going to college part time...
3 answers | 1 comment   
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Looking for advice for POTS with intermittent symptoms

AlaskaMegan
I had my first (undiagnosed) episode of POTS that caused me to pass out about six years ago after a course of Prednisone for poison ivy. ...
1323747 tn?1364810482

Mayo Arizona

mtgardner
I finally have an appt. at an autonomic testing center but I wasted weeks trying to go other places. Maybe my bungles can help others so...
7 answers | 1 comment   
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Does Dysautonomia affect breathing?

judes52
I get winded when I do housework like mopping, try to dance and especially if I worry or stress. I have to calm myself down as I start to...
1 answer | 1 comment   
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Useful dysautonomia symptom tracker

trkajk
Hello, I’m looking for a good way to track my symptoms. I saw on a google search an example of a tracking sheet from this website- does ...
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Where do I find testing for neuropathic OH in the Phoenix AZ area?

Lbro
After over 3 years of dealing with orthostatic hypotension symptoms, I am now looking at possible neuropathic causes. In the past, I fir...
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Do you get blackouts frequently?

OliviaLucia
Hello all! I am 14 years old and was diagnosed with POTS almost a year ago, since then I’ve been on many medications and treatments whic...
2 answers   
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Does anyone else have severe tremors, body twitches, and high blood pressure with their POTS?

rhonda1017
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also told me that it is sec...
37 answers | 5 comments   
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Have we finally hit the wall? No more solutions?

fbrodya
I'm new to the group, and this is my first post. I'm a member of several dysautonomia-related FB pages, and it always seems my 21 year ol...
13 answers   
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Bell’s palsy

Loories
Hello dear experts , im boy 33 years old , i experinced bells palsy 4 days ago , i went to hospital the doctor gives me prednisone 50mg 1...
1 answer   
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Anyone Suffer from Dysautonomia after an ACDF or other Cervical Procedure?

mookerific
After dealing with numbness and nerve pain in my arms for sometime, I underwent an ACDF two remove herniated discs at the C5-6 and C6-7 a...
1 answer   
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Flare up after EMG?

Goldyukr
Hello. I am new to this board. I have been searching for a diagnosis for 4 years and two weeks ago finally got some answers. It seems I h...
3 answers | 2 comments   
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POTS and muscle twitching

AlishaDanae
Hello all, I was just diagnosed at the MAYO clinic with POTS. One of my symptoms is muscle twitching. Anyone else have that symptom w...
3 answers   
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