Ehlers-Danlos Syndrome Group

This group is for members with any form of Ehlers-Danlos Syndrome.We have this group to share info and support for each other. Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. Individuals with EDS have a defect in their connective tissue. It is this tissue that provides support to many body parts such as the skin, muscles, ligaments and organs. The fragile skin and unstable joints found in EDS are due to faulty collagen. Collagen is a protein that acts like glue in the body adding strength and elasticity to connective tissue.
Hmmm.... Just another I did not know that was EDS. I was doing some more reading about EDS because in my NL appointment I was made aware...
The children's hospital was good today! They were very thorough and even knew what EDS was:) They even commented on her loose kneecaps....
Hello! I've been diagnosed with EDS for a few years now... I was wondering does anyone know if its possible for people with our condit...
Yesterday went to the Dr and... Olecranin bursitis and trochanteric bursitis (hips) Retrocalcaneal bursitis heels Costochondritis ribs...
My DD was diagnosed with EDS today... Did you know that hyper mobility type has a 50% chance of being passed on?
I know Ehlers-Danlos is genetic, but is it possible to have hyper-mobility type without family history of it? Most of my family members o...
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