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Ehlers-Danlos Syndrome Group
This group is for members with any form of Ehlers-Danlos Syndrome.We have this group to share info and support for each other.
Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. Individuals with EDS have a defect in their connective tissue. It is this tissue that provides support to many body parts such as the skin, muscles, ligaments and organs. The fragile skin and unstable joints found in EDS are due to faulty collagen. Collagen is a protein that acts like glue in the body adding strength and elasticity to connective tissue.
Questions
I am 19 yrs old and looking into EDS type 3 (hyper mobile type) as my neurologist suggested to get checked out for it because Of my seve...
hey everyone,
I am sure many of you can relate to what I'm feeling but sometimes i just feel so alone. I feel like searching for answers...
I now know that I fit the criteria for EDS, I scored a 5 on the beightons scale and I have had joint and muscular pain for 3 or more mont...
Just recently diagnosed and still waiting to get in to see the rheumatologist. It's going to be a few weeks. In the meantime, I am going ...
The more I read, the more I think I might have EDS. I've always been rather flexible. I think I score about a 7 on the beighton scale. ...
Hi there, I'm not sure yet if I have EDS or not, but I'm having a hard time finding support forums and places on the internet where I can...
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