Medullary Sponge Kidney Disease (MSK) Community

This patient support community is for discussions relating to Medullary Sponge Kidney Disease (MSK).

1 - 20 (of 662) questions

Will Medullary Sponge Kidney Disease (MSK) cause high blood pressure?

mydaffadilly

I was diagnosed hypertension last month with the blood pressure of 112/173 at the age of 36. I was told it is Essential hypertension inst...

3 answers

MSK, SSDI approved

Pman1

Hoping to have MSKKELLY contact me for some information but I also thought I would introduce myself especially as I'm sure many of you wo...

Disability with MSK

honeylr

Hello everyone. I am a newcomer with the Medullary Sponge Kidney Diagnosis. I have just found out after 5 years of relentless pain, tes...

8 answers | 1 comment

Life expectancy

Babyboyr

What is the life expectancy of someone with severe msk?

2 answers | 4 comments

night sweats

superminky

Does anyone on here suffer really badly from nightsweats? I when I wake up in the morning soaking with sweat and think it must have some...

4 answers

URETEROSCOPIC LASER PAPILLOTOMY TO TREAT

toomanystones

Hi everyone. Has anyone had this surgery done? I am conimplating having it done by Dr. Wolf in Michigan, but I am just looking for some...

2 answers | 1 comment

Is there anybody in the group who doesn't pass stones?

Aleshalee29

My twin sister and I both have msk and have for 13 years, she passes stones and I don't I usually get hydronephrosis and that's when I ha...

1 answer

What can I expect with MSK?

StephMan

I received a call from my doctor two days ago. She mentioned my ultrasound shows multiple stones in both of my kidneys. She said that she...

Pain management

summertime26

I finally got into see a pain management doctor last week. For the past week and a half I have been having constant pain on my left side....

14 answers | 1 comment

How did you finally get takem seriously or how did you find relief?

Crazygirl0209

I was dianosed with msk at age 32 i am now 33 ad have pain in my left back side often amd at times it gets really bad. Doctors look at me...

MSK and Cysts

kmmcmstr1

Hi there, New here and although I have a long history of stones, I'm in Ontario Canada. I was finally diagnosed with MSK about a ye...

3 answers

id like to know if you can have a home birth with msk?

xowindinmyhair

my midwife is sending me to a kidney specialist because she doesnt know anything about msk and im hoping it doesn't ruin my birth plans h...

2 answers | 1 comment

Chronic Kidney Pain

FrancesFarmer

If you also suffer with reoccurring kidney pain whether you are passing stones or not...please respond as I am relieved to know I am not ...

13 answers

MSK and kidney transplant

baldagan

Hello everyone, I recently found out I have MSK and was told I would definately need a kidney transplant at some point in my life, bu...

13 answers | 1 comment

Hi Everyone!

ChitChatNine

Just stopping by to say hello -- how is everyone doing? C~

Unusual Urine

Susan615

In Early Jan. I had a bladder infection. I first noticed it because it looked like white bubbles or white things were in my urine. Then...

7 answers

Can MSK cause hypercalcemia?

laf95

I was diagnosed with MSK last December. I've been struggling with kidney stones for over a year. Urologist did a 24 hr. urine collection...

5 answers

Can MSK cause osteoporosis?

shellspicasso

I have MSK and was diagnosed young with osteoporosis, no cause has been found. Does MSK cause bone loss or prevent someone from reaching ...

Chandra Piedra?

min22

Any one heard of Chandra Piedra and taken it with success? Apparently it is a natural stone-breaker and I would love to know that it has ...

3 answers

ok i dont have msk but someone very close to me does

megmeg986

so if you can help me so i can help her and i would want to know how to help her she is in a lot of pain i need to help her she is in ...

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