Rare diseases- breaking down the barriers Group

Poviding opportunity to discuss and create awareness of the issues faced by rare condition sufferers and their families. Rare diseases can often leave patients and their loved ones feeling isolated, yet the issues we face are common. By speaking with one voice, we can together evoke change. Your story is unique, and we invite you to join our group and share your experiences.
1 - 6 (of 2) questions
I've been ill for 1 1/2 years now with fevers(non-stop) fatigue, nausea, vomiting, swelling, enlarged spleen, hot and cold sweats, night ...
Every story is unique, but as rare disease sufferers, we share common challenges. Your story could inspire others to not feel alone, crea...
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A list of national and international resources and hotlines to help connect you to needed health and medical services.
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