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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis.
Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone.
I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything.
I know there are a lot of us out there.
Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support.
OUR MOTTO IS:
"we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
Questions
Hi everyone you can introduce yourself on this thread.
What brought you here, how long you have been waiting for a diagnosis and a li...
Hi, I just joined MedHelp and am looking forward to hearing from some people. Last month I started having tremors in my left leg. They ...
Do you suffer with Trigeminal neurlgia?
I got my first Trigeminal neuralgia attack last year. It lasted 3 weeks and it was 24/7. I w...
My husband is 30 and yesterday had a severe seizure. His body tensed up, and his eyes rolled in the back of his head and then he started ...
Hi everyone! Although it seems this place is pretty barren lately, I'm SO glad to have stumbled upon this group and to have had the oppor...
This has been going on for months and i am just exhausted at this point .... my fam and friends are ready to take me to the funny farm be...
I have had 2 MRI's and my last one was to exclude demyelination,
I have also been having they think mini strokes,
I have been off work...
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