i was search 4 any misdiagnosed hyperparathyrid as cfs & saw your post of 2009. have any new findings? i have suffered w/ cfs 17 years & just found out i have parathyroid tumor. dont go on calcium alone check hormone level
You're in my thoughts all the time, but especially today. How have you been? I haven't heard anything from you in a long time. I've been so busy that I feel like a dog chasing it's tail. Did you ever find someone to help you figure out what the heat episodes were about? i visited with my endo here...she thinks it's hypothalamus related. Just thought I'd throw that out to you. I thought maybe it might help if you were still looking for a direction to go in. Hope this finds you ok. I am but scheduled for Gamma Knife radiation on July 6. Not looking forward to that. Write me when you can!
You're in my thoughts all the time, but especially today.What's new with you? I haven't heard from you in a while. Looks and sounds like you're busy lady!! Hope all is going ok. Please let me know what's up when you have a moment. I will tell you more about here when you message me back. Just wanted to check on you and say hi first! HUGS!! Cheryl
Just a quick note to say hi! I wanted to tell you about a book that I just took out from the library before I go to bed this evening so, will have to make it really quick and write more later. I was reading some of it earlier and some of it sounded like you with the crazy heat episodes. My Endo had brought up damage or issues to the hypothalamus in addition to my pit tumor. If you can get your hands on a copy of this book to read it it might be well worth your time!! It's called: Adrenal Fatigue...The 21st Century Stress Syndrome. It is by: James L. Wilson. Published by Smart Publications in 2001 in the addition that I have here. GREAT info inside!! Let me know if you can get ahold of it!! Hugs!! xoxoxo Cheryl
Y ou deserve a big bear hug! Hey How are you?!?! I hope you're doing better! I know you went to an Endo & weren't treated right. Have you figured out what to do yet? I wish you could find an Endo like mine!. She is wonderful. I spent 45 minutes asking ?'s on the most recent labs. She is great about answering questions & making me feel like she's not in a hurry to leave the exam room. Too bad all my & your Dr's aren't like she is! Based on labwork & symptoms she's sure i'm panhypopit and is questioning issues with the hypothalamus since my tumor was so big. Labwork will be repeated Mar 11. What is the news on your situation? Please keep me informed! I enjoy talking to you!! I will listen & try to help you in any way!! Drop me a line when you have a moment. Hang in there!! Hugs!! Xoxoxoxoxxo
Welcome to our community!
SuzCat: Got your msg finally. I feel like a dork trying to figure out how to use the msg board! I'm doing ok. Have post sugery sinus infection probably due to prednisone. UGH. Read your post about head pain. Mine was centered right between both eyes in my forehead. It was fairly constant the last several months before surgery. I found ibuprofen and a really cold washrag on that area helped. I'm glad you have an appt on 1/20! If you don't get satisfaction don't give up. If your gut tells you something's wrong keep on til you get an answer! I know what you're talking about with the medical bills & the frustration! Know you're not alone. Any help I can be let me know! Need someone to talk to pls msg me anytime! I've been where you are! HUGS!
Good to hear ! Hopefully you won't need them, but if you do.... at least you have them ready to go. I always have a box on-hand.
Have a great holiday !
Hope you have a great Halloween. I was wondering if you tried that homeopathic product and if so, did it help you with your symptoms ?