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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
05/15
HI Nellan12, how are you feeling? I understand your decicion. I am trying to come to a decision myself which is why I asked. Where you scared for the surgery, is it normal to be petrified? Because I am! My headaches aren't as bad to be honest what has become more bothersome to me is the dizzyness and when I get light headed. If I look to the left or right for too long I get really dizzy.  I went for a walk at the park and on my 6th  lap I couldn't anymore, I barely made it to my car. Im just trying to understand and come to a decision. How were the days after your surgery, alot of pain? So now how do you feel, much better than prior to surgery?  
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9432311 tn?1432825085
04/15
You're in my thoughts all the time, but especially today.
And, guess what Nella, yours has become a household name, when I tell people who inspires me. I am pretty well today - obviously, my neck feels pretty strangely different. But, off those narcotics! Only Tylenol.

When you sleep, what do you do when you lay your head on your pillow? I am doing well with the collar - it is supportive and does a lot of the work. As always, it means a lot that you think of me. And I think of you.
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Avatar universal
04/15
Haha yes maybe somewhere with warm consistent  weather! I am so happy to hear that you are doing much better!  Can I ask what was the main factor in you decision for surgery? I am asking bc my headaches have subsided but I do have other symptoms  and I am considering the surgery for this summer I just want to make sure I am making the right decision as Dr retake said anything above a score of 70 he wouldn't recommend the surgery for, I want to make sure I am doing the right thing. Enjoy your day its so nice out I just came back from a short walk with my dog.
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Avatar universal
04/15
HI Nellan12, thank you for your thoughtful message. I always pray for yoy and Elisaandbucky as well. I hope she is recovering. I do not go on Facebook often but when I log on I'll make sure to find yoy and befriend you on there. So how are you feeling?
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9432311 tn?1432825085
04/15
Just a quick note to say hi!
Good evening Nella.i am glad your note came today and not yesterday, I had the most difficult day I have ever had. Today I am new again. I am using a walker and getting Up and down the hall ways pretty easily. I can't wait to get outside, as I heard it was so nice.

Thak you for posting me this note. Others' care mean a lot.
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Avatar universal
03/15
You deserve a big bear hug!
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Avatar universal
03/15
Hello Nellan12,

HOw are you doing with your recovery? I hope that it is going well and smooth as possible. I keep praying for you and Elisaandbucky always. When is your post op appointment? I have an appt with a high risk doctor this Thursday for the possible pregnancy, I have yet to email Dr Retake to see what he recommends. I will keep praying for you.
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Avatar universal
03/15
Just a quick note to say hi and by the way what is the name of the Chiari group on facebook?
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Avatar universal
03/15
Hi Nellan, I have not logged since end of January, how are you doing? I hope you are doing much better, i pray for your recovery daily. Thank you for your wishes. I have an appt on the 12th of this month with a high risk pregnancy doctor , fingers crossed everything goes well. I have not followed up with Dr. Retake at TCI, should i? Maybe right?  I will continue that you recover fully and hopefully now you are able to cook dinner for you family fine and be moving around fine. xoxo!
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9432311 tn?1432825085
02/15
Just a quick note to say hi!
Hi again, thank you for the kind thoughts. Can you give me the title of the youtube video?
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9432311 tn?1432825085
02/15
Just a quick note to say hi!
Hello again, Nellan. I hope you were able to see the precious part of this note. It cut me off before.
After my visit, I went right back to the airport for my flight out at 6:30. Exhausting day. What I have to do now is to discuss the whole process with my husband to decide on a good time to proceed with the surgery. I wish I could get all the images Dr. B showed me so that I could better explain the condition and what had happened since the Chiari surgery that makes this cci surgery necessary. He showed me how the odontoid was affecting the top vertebra (c1) and why the instability was present. I want to do some internet research to be able to have images to explain it. My husband was really scared of the first surgery, and he seems petrified about this.
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9432311 tn?1432825085
02/15
Thank you for everything!
Hi Nellan, I thought about you yesterday as I went for my visit. Thank you for your kind wishes.
Actually, I flew into JFK in the morning and had the appointment with Dr. B at 2:00. I got to the office about 2 hours earlier and just prepared to do some reading. Then, Phil, the doctor's PA, came out and called me in. Someone had cancelled and he took me right in. Dr. B was thrilled because the earlier time allowed him to attend a surgery earlier than expected. After looking at my MRI, he explained craniocervical instability and how the surgery would go. He gave me detailed pictures of what was going on, and explained pros and cons. He did that test where he pushed the top of my head down - the pain was intense. I have run out of room here. I will continue below.
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Avatar universal
01/15
Nellan12,
Thank you for all of your lovely notes :) and sorry to hear about the complications and the second decompression. I hope today was a much better day for you and that you are pulling through ok. I take it you saw Dr. Bolognese? I had also found a doctor in Boston through this site but i did not contact him. This month for me has been a good month i have to say last month consisted if 12 bad days, not consecutively.  I am terrified of the surgery but know that eventually it is something that i will need, at this time my husband and i are considering having a child, keep your fingers crossed for me. you are the first person from CT that i have connected with that has Chiari. I will pray for a safe recovery for you and i will look up the support group on Facebook :)
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Avatar universal
01/15
Hello Nellan12,

I have been reading through some conversations between you and selma and Elissa. I see you are also from Berlin CT, i am from Stamford CT. I am petrified of the surgery and I read there may be another surgery to do after the decompression? I went to the Chiari Institute of NY and saw Dr. Retake in September but have yet to find the courage to go thru with the surgery. When were you diagnosed? I am turning 32 this year and was diagnosed a few days shy of my 31st birthday. I want children, at least 1, and dont know if i should have a child first before surgery. and why do doctors tell me its up to me?
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9432311 tn?1432825085
01/15
Just a quick note to say hi! Hello. I wonder if you are feeling well today. It is still so soon after your surgery. How are you doing with your day to day activities? What things are you not able to do after the fusion?

On Saturday, I sent my MRI and paperwork to Dr. B by UPS and I am awaiting a reply from Ms. Pendergast, his medical secretary. I hope his office hours are still Monday and Friday like at TCI. I still have neck pain and head pain, with some intermittent cognitive confusion. I hope the package got to him because at the UPS office, the clerk said I had the incorrect city (Lake Success) and changed it to New Hyde Park to match the zip code. I got the address from the website, and it worries me that it will not arrive. I am just anxiously waiting.
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9432311 tn?1432825085
12/14
Just a quick note to say hi!
Dr. B is my surgeon as well. I am compiling the paperwork so I can schedule my post-op visit. Basically, my surgery resulted in a good recovery; however, I am entering my 6th month and significant neck pain is returning along with occasional headaches. I'm really not afraid of surgery as much as having to continue to alter my activity level.
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Avatar universal
12/14
Just a quick note to say hi and thanks for the advice much appreciated!! Good luck on your surgery next week I will be praying it goes well and is successful
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9432311 tn?1432825085
12/14
Just a quick note to say hi!
Hello, I wanted to ask you about your having a second decompression. What are the reasons why we have to get another decompression? I certainly feel better than before my first surgery on 7/29 but not a whole lot better.
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979826 tn?1389036358
11/14
Just a quick note to say hi! here is the link for the angel pin! let her know i sent you :) http://www.angelpinsbydonna.com
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9432311 tn?1432825085
11/14
Just a quick note to say hi!
But, Nellan, think of your age like that of a fine wine - with the passing of years, comes a sophistication with added value...lol!
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Avatar universal
11/14
Thank You and I hope you have a blessed day!!
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9432311 tn?1432825085
11/14
No fair, now you are older than me! I attach much value to all of my years. I will always be proud each year to say how old I am.
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9432311 tn?1432825085
11/14
Happy Birthday! Hello. I think today is your birthday, Nellan. I hope you enjoy your special day.
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979826 tn?1389036358
11/14
Just a quick note to say thank you! I hope you feel better as well!!
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Avatar universal
11/14
Just a quick note to say hi!  Thank you
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979826 tn?1389036358
11/14
Just a quick note to say hi! thank you so much for your not! and so great to meet you! although sorry for the reason! looking forward to getting to know you :) -molly
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9432311 tn?1432825085
11/14
Thank you for everything!
Hi Nellan12,
You also deserve a hug and a special cheer for thinking about me on my birthday. I really love my birthday, and I have had 51 of them!
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4816750 tn?1368804670
11/14
Your welcome anytime.
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9432311 tn?1432825085
10/14
Just a quick note to say hi!
Nellan, thank you for taking the time to write. Sweet people thinking kind thoughts are the greatest gifts!
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620923 tn?1452915648
08/14
Welcome to our  Chiari community! : ) "selma"
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