Sorry, things have gotten very complicated in my life right now so have not had time or energy to go forward the way I want to. LONG story but we have had some pretty tough family issues, that are ending my marriage of 26.5 years. Sadly I know this is for the best, but getting pressured from every side right now to do it their way etc. I believe we will all be better on the other side of this but it is pretty rough right now. He also left me with no way to support us or buy meds etc. either and the paper work to try to get help is endless. I REALLY WANT TO GET A RESEARCHERS GROUP GOING ASAP! Sorry I am not moving faster!
Just a quick note to say hi! Welcome to the site. I too have been diagnosed w/MSK a little over 4 years ago. Its good to know that we have a site of supporters that are experiencing the same disease.
Welcome to our community!