there is a women in auckland who had a cyst in her neck caused major problems, thats how they found chiari, they operated, she now has damage on her cord, and a lady in christchurch (son got chiari) they setup a web page with basic info and their emails so people can contact them, i was their first person, that was a couple of months ago.
and i just heard of a young lady with small kids in wellington who is having trouble.
when i asked my specialist is he knows alot about chiari, he told me he has dealt with plently of people, i didnt believe him,,
there is still alot to learn about it, ive had alot of new things starting, and old things getting worse,
there is no support here, most dont know what it is,, lol remember the program shortland street, well dr chris warner, decided to operate on a child with chiari, there info wasnt that correct, and they pronounced it incorrectly, i had to laugh, that was the only reason i watched it, it still cracks me up.
texas well that would have been a scary move, how long have you been living there???
i havent had surgery yet and maybe i will never have it done, thats up to the surgeons, i dont have syrinx but that going on an MRI done nov 08 i havent had any followup since, i made my GP put a referal to hamilton just to check i havnt devolped another spinal cyst, he thought that the best way instead of paying for it, yeh i will see, i dont have much faith in the waikato department. so prop have to get one done private.
do you miss home???
Just a quick note to say hi! WOW!! I never heard of that..u r lucky to have that feature : )
Just a quick note to say hi! Hi Tina...I am so glad ur dr is going to do the MRI...keep ur eyes closed and think pleasant thoughts...I had so many MRI's I should be magnetic..lol.....
Let me know how it goes : )
Just a quick note to say hi!soooooooooo glad u liked Dr Oro's poem...it seems to have the same effect on all of us...it validates what we all have been feeling and treated like at the drs offices we visit.
good luck : )
Welcome to our Chiari community! : ) "selma"