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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
649926 tn?1297657780
12/10
Just popping in to wish you and the girls a Merry Christmas & Happy New Year :)

I hope that you are well and enjoying the season. May 2011 be a fantastic year for us all

Hugs,
Erin :)
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1396846 tn?1332459510
11/10
Thank you for everything! Her procedure went fine. She was in there longer than expected but she came out fine, well sick as heck from the anesthesia but she is ok.

My ultrasound came back awesome too so things are looking up for me for a change, the pain has subsided to almost none so it is looking good. I will be on low dose of antibiotics for the next couple of months to make sure it doesn't come back.

Hope you get your computer fixed soon, miss you around here
Paula
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1396846 tn?1332459510
11/10
Thank you for everything! I am trying to recover. Hoping all goes well with the utrasound tomorrow. I just have this gut feeling that something is wrong if that makes any sense at all. Don't ask me why but it is there and guess I will see tomorrow or Friday. Ultrasound is tomorrow, not usre if I will get the results tomorrow or Friday. I will keep you updated.

Paula
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1396846 tn?1332459510
11/10
Thank you for everything! Thank you Michelle, this has definately been a journey. I had no clue it was this bad. They will be doing another CT tomorrow to see how things are going. I am hoping they got this before it has caused any damage but guess I will find out tomorrow. Wish me luck and thank you for the well wishes :)

Paula
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1466984 tn?1310560608
10/10
Just a quick note to say hi! And thanks for your comment to my journal entry.
I find the only way I can deal with all of this is with a sense of humor and an open mind.  I recently heard someone say , "If you stop resisting, the pain will stop."  I don't really care what the docs call what I have, or give it a name.  I just know how I feel and want to do what I can to be well.  Part of that for me is writing.  
Are you still dancing?
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1312898 tn?1314568133
10/10
Just a quick note to say hi!  Thank you so much, it's great to be back!  Hugs Red
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620923 tn?1452915648
10/10
Welcome to our  Chiari community! : ) "selma"
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997898 tn?1303734864
10/10
Just a quick note to say hi! welcome to our chiari family!  hope you will find the help and friendship here that you are looking for...and that maybe your aunt will join us as well!  elizabeth
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1372734 tn?1309950237
10/10
Just a quick note to say hi and thanks Honey im really fed up at the moment, just when I thought all was going well the medical system over here lets me down, AGAIN!!!!! but hospital have ran today and confirmed chiari from brai mri and cine, having contrast mri on 10th November then follow up now on 22nd November, so only another month to wait, hey been waiting 3 yrs so guess whats another month.  Did I read that you going through rough patch again??  keep your chin up hun and will keep you posted.
Hugs
Niki x x
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1396846 tn?1332459510
10/10
Just a quick note to say hi! Hope things are going well for you. Keep up your good spirits. Paula
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645390 tn?1338555377
10/10
Just saying a quick hi to you Michelle.  I hope things are going well, and I always love reading your responses. You are a very positive person and just wanted to thank you for that!
Michelle
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1406332 tn?1315962760
10/10
Just a quick note to say hi and thanks for thinking of me. I've been busy with the kids and work. I still 'stalk' the site from time to time. =) I hope you are feeling well. I've been kind of taking a break from all the docs. I'm exhausted of all the appts and no answers. I finished my sleep study last month...and I was right...no problems there. I should have bet the neuro money!
Thanks again,
Hope you're enjoying the cooler weather, I know I am!
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1372734 tn?1309950237
10/10
Just a quick note to say hi and glad you are doing well, did you get any diagnosis or results.  Im pretty much same lots of pain etc etc etc, had mri brain, cine, and have been called back next week for further tests, csf flow and mri under contrast.

Have apt with neuro 25th for results and diagnosis??? Sat here typing with hot water bottle on my very painful back and heat patches on my legs!!!!  OUCH!!!!!!!

Oh Hun Kenya sounds wonderful.

Will keep you posted, did your Aunty ever join CM forum??
Love niki x x x
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1253197 tn?1331209110
10/10
Hi Michelle, All is giong well so far with drug trial although it is a lot of hospital appointments and very time consuming but I feel positive! Will keep everyone posted! Take care and thanks for supportive note. Love and hugs Sarah xxx
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Avatar universal
10/10
Hi, 'Eye-la'!  Nice to hear from you. I'm hanging in there and hope you are too. Take care, ess
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1312898 tn?1314568133
10/10
You deserve a big bear hug!  I just wanted to thank you for all the love and support you give to this community each day.  I had forgotten about you being a dancer.  I sometimes watch "...so you think you can'....".  I too get frustrated by all the fluff they throw in.  And, they so often don't show the best dancers.  It's sad.

Anyway, I hope you are doing OK--all things considered

Hugs,  Red
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1396846 tn?1332459510
10/10
You're in my thoughts all the time, but especially today.

Just wanted to say hi. Haven't seen you around much lately, but then I haven't been on too much lately either. Hope all is well with you.
Take Care
Paula
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1396846 tn?1332459510
09/10
I have always been in grocery and restarant management, when everything started going wrong with me I could no longer be on my feet like I was not to mention my mind was only there half the time. So instead of doing nothing I decided to go back to college to give me something to fall back on :)
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1396846 tn?1332459510
09/10
Yeah I know the feeling, over the past few days I have been feeling good too. Not sure if it is because of the steroids or not but I am loving it. Minimal pain YAY ME!!!! It is sad that we know that something else will happen and just wait for it. Good luck!!
Paula
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1372734 tn?1309950237
09/10
Hi Michelle just wanted to share my news have scan date 29th Sep then follow up for results and consultation 25th Oct, I am so happy that I may finally have answers after nearly 3yrs of what we all probably describe as hell!!!!!  Please keep me posted on how yr appointments,results etc are going and pray that you have answers soon

Hope you are well
Take care
Niki
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1396846 tn?1332459510
09/10
Thanks Michelle, I am doing ok, just still not understanding why he won't start the DMD's but then I think about it and realize that people with PPMS don't have any meds to take so I guess I am in the same boat with them at least for now.
I am sick right now but I will deal with it.
Thanks again--Paula
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1372734 tn?1309950237
09/10
Just a quick note to say hi hun,
Glad you feeling a little better, wow the vertigo really gets to me, mine is more of a rocking motion, feels like im on a boat, constantly, it is some times so bad that I cant drive or work.  Im going back to work Wednesday, not really ready hun but just fell like I have to give it a go, as not to sure whats round the corner regarding treatment, if I need it.  I found the chiari forum on here hun and really cant remember how I did it.  Have been ringing hospital and all they will tell me is there is a 6 week waiting list.. Arghhhhhhhhhhhh so annoying.
Take care
Niki x x x
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1396846 tn?1332459510
09/10
Thank you for everything! I know, it seems like it is one things after another. Yesterday and today I have been back with that pain from my buttom to my toes. I don't know this is driving me NUTS, but with friends like you and everyone here it helps me to keep my head up :)

Thank you
Paula
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1372734 tn?1309950237
09/10
Just a quick note to say hi! and so glad your scans have all been moved forward, I pray you have answers soon.  No dates for mine yet, rubbish over here in england just like you over in Canada. Its just the waiting when you are suffering is so bad, you begin to feel you are going slightly mad dont you.  There are so many of us that have been left in a limbo land, its terrible.  Hope you are well and not in to much discomfort, im so,so, not fab but not horrendous either.  Take care and let me no how u doing  x x x x
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1396846 tn?1332459510
09/10
I hope your MRI's show something too. I know what it is like to wait and wait and wait. This is getting ridiculous. I am so frustrated. I keep getting all these new symptoms over the past month or so. Hopefully my VER test will show something to get me closer to a diagnosis.

My leg is a little better. still hurts to touch it and still stiff but what can I do lol

Anyway keep me updated about your MRI results. I will be looking forward to the results.

Take care
Paula
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1396846 tn?1332459510
09/10
Just a quick note to say hi to let you know I am thinking about you :)

Paula
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649926 tn?1297657780
08/10
I never did send you a welcome this summer as I was on a beach vacation when you started
- sorry about that!
I hope that you are making lots of great friends and have found what great support you can always find here.
Belated welcome -
Erin :)
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147426 tn?1317265632
08/10
Great!  Always gives me a twinkle when I make someone laugh.  Q
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989689 tn?1333548520
08/10
I'm doing good today, thanks. Hope your having a great day (considering it's Monday lol)
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1253197 tn?1331209110
08/10
Hiya and thanks for supportive note!. You are right it does feel a bit like a minefield working out relapses and flares etc. I am just feeling concerned as I know that it I appear to have had any more relapses this could jinx me going back into the tiral. I do not think I have had any new sx since I last spoke to neuro but as I said in your post, old ones keep resurfacing. Bute my hearing is at last much better so that is good news as I can hear properly to sing and this give me pleasure.

Nearly the weekend, have fun, love sarah xxxxx
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1372734 tn?1309950237
08/10
Just a quick note to say hi! and hope you are doing ok.  Just an update on me Hun,  Have been put on a priority list for brain MRI and C SPINE also csf flow.  Neurorydiology (excuse spelling,) have looked at previous mri and confirmed swelling in brain, rushing scans through within next few weeks.  They have also written to me to cancel my follow up in December with neuro and have told me that once results are through I will be given a priority apt for results....   Yipeeeeeeeeeee they are finally taking me seriously.  I have had awful few weeks sooooooooooo much pain, numbness, and co-ordination difficulties, alongside fatigue have worn me out completely!!!  Heyho onward and upwards.

Take care niki x x
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1382889 tn?1505071193
08/10
Thank you Michelle for your kind words of support.  You are a vey special person.  I appreciate you getting as much as you did from my journal entry and I look forward to getting to know you better.
blessings, and xxxxoooo
Julie
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