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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
1715590 tn?1309102925
10/11
Just a quick note to say hi!i am fine how have you been
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1664208 tn?1332782950
10/11
You are in my thoughts and prayers. I hope your fusion surgery goes well. Let us know when it is.
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1715590 tn?1309102925
08/11
Just a quick note to say hi! i think i will be glad to have done it but hope i get threw it without complications thanks for all your kind words and support
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1715590 tn?1309102925
08/11
Just a quick note to say hi! i know it is going to be a rough road but got to do it but i am so mad i got reports from my neurologist he said i have chiari but its mild just need watching boy if he only knew he is not even reporting on my fatigue or any of the other complaints i told him about. doctors can make you so mad they purposly dont put things in your reports just to cover there own behinds.it is so agravating well i am sure my ns knows his line of bs and will ignore everything my neurologist had to say
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1715590 tn?1309102925
08/11
Just a quick note to say hi!not good right now did decide to have surgery signed papers for that kept waking up last night couldnt breath then it would get better and do it all over again weird huh i am glad to see you are ok
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620923 tn?1452915648
08/11
Just a quick note to say hi!...I know what u mean..it is like a diff world....but, it is soooooo wonderful just to be validated.

I am doing pretty good...I am having an in home air quality test done, it is to check the amount of oxygen in my blood stream to see if a sleep study is warranted.

  "selma"
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620923 tn?1452915648
08/11
Just a quick note to say hi! That is the best feeling, to be validated by a Dr that U know , knows chiari : )

"selma"
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1715590 tn?1309102925
07/11
Just a quick note to say hi!having it rough right now just dont know which way to turn
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1692732 tn?1311437111
07/11
Just a quick note to say hi!  Still working on getting all of my MRIs.  Need two more.  I see the other Neurologist (last one terrible!!) next tues and hopefully can get those ordered.  The doctor in Chicago won't see me till I have them all.  
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1692732 tn?1311437111
07/11
Just a quick note to say hi!  I can so relate!!  I had a good day a couple of days ago and over did it.  It's too bad it doesn't last for a few days at a time,  at least for me.  Thanks for the note!  I hope that you are having a good day this weekend!  It's so nice to be able to chat with others who understand.
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620923 tn?1452915648
06/11
Just a quick note to say hi! Good luck with the MRI and MRA's !!!

"selma"
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1715590 tn?1309102925
06/11
Just a quick note to say hi! new to the site considering surgery i did my research. mine is problamatic my ns is dr rosner
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1715590 tn?1309102925
06/11
Hope you feel better soon! hang in there people tell me it gets better
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620923 tn?1452915648
06/11
Just a quick note to say hi!...U r so welcome...glad u were able to get in with Dr Oro to get the info u needed...he is a very gentle man...I met him and only wish I lived closer  : )

  "selma"
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620923 tn?1452915648
06/11
Just a quick note to say hi!...so glad to hear u had a positive visit and out look with this new Dr !!

   "selma"
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620923 tn?1452915648
06/11
Just a quick note to say hi! Good luck with the new NL !!! : )

  "selma"
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620923 tn?1452915648
06/11
Just a quick note to say hi!...no worries : )...can I ask, do the pressure HA's get worse with a change in position?

Ask about tilt table testing for POTS....ICP is another possibility....
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620923 tn?1452915648
06/11
Just a quick note to say hi!...I am still wondering about ur pressure HA's...did u have this type b4 surgery?..r they worse or new post op?

  "selma"
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1679858 tn?1346765181
06/11
Wow, I feel for you -- they must be able to correct that fusion!  As I let all the info sink in, it's all making a little more sense. Maybe all those symptoms would be chiari if I had a blockage or compression, but he was so sure that there was none of that so, in that case, symptoms must come from the neck.  Maybe that is the cause of your headaches now, if they have corrected your chiari and the csf flow is good. I will be thinking about you; you deserve to feel good again!!  
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1679858 tn?1346765181
06/11
Just a quick note to say hi!...Doc said that I don't need surgery, as my symptoms are not severe at all, even though I have an 13mm herniation. Didn't seem concerned at all with the size.  Said it's been there all my life and since I am just finding it now, it is unlikely that the symtoms will worson -- hope he's right! This is great news, however, I feel a little frustrated because he also told me that very few of my symptoms are Chiari related: Headaches in back of head that travel down between shoulder blade, brain fog and weakness, and fullness and ringing in the ears.  I have read, on the contrary (Chiari Centre website) that these are all early stage symptoms! I was also told that some discs in my neck are wearing and this could be part of the problem. Your thoughts? Heather
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620923 tn?1452915648
06/11
Just a quick note to say hi!...I would have to ask, r the HA's worse then b4 surgery or new...if so, then u may have something going on...did u have a dura patch put in, if so what type?.....do u feel worse in diff positions?

Otherwise it could just be the healing process, at 3 to 4 months post op, we will experience a return of symptoms, they should not be as bad as b4 nor last as long...u still should be resting and not doing too much at this point , so do allow urself to heal.

"selma"
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759386 tn?1324562124
06/11
Just a quick note to say hi!  

I hope that you are doing well; our girls are really doing great things.  

I hope that they continue to do so...  They keep me on my toes as well as my wife.

Just thought that I would say hello.

Roy
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759386 tn?1324562124
05/11
Glad to meet you and that you are doing so well...  I am yet to have surgery at this time.  I have sent all my info to Dr. Oro last spring for a 2nd oponion and he said that he would do nothing different than already is being done.  S, I feel that I am in good hands at this point.

This is an extremely busy time at our house, our two outstanding daughters are going to different colleges;   Our oldest in Starting her Masters Degree in Aberdeen South Dakota in about three weeks and our other daughter is going to go to Minnessota in Minneapolsis? spelling could be wrong lol - where the great shopping mall is located.  To start Engeering School.  She will start in early Sept and just graduated #1 in her class of 343 last weekend.  Both girls are just EXCELLENT young ladies.  
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1664023 tn?1302961166
04/11
Thank you, good luck with your surgery! I am sure all will go well!
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620923 tn?1452915648
04/11
Just a quick note to say hi! Glad to have u here as well, not happy with what brought u, no 1 wants neone else to have this condition, but, if we r to have it, it is best to have others to share it with that understand what we r going thru : )

Stop, sit, and refrain from doing what ever is tempting u......lol....let urself heal

"selma"
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620923 tn?1452915648
04/11
Welcome to our Chiari community! : ) "selma"
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