Interesting article. I can't read enough about the boceprevir studies. I'm finding myself a little nervous about my 6mo post labs. I'm hoping that they will show UND, so that I can be in the SVR mode. I did go through 48wk SOC, which didn't work, then on to the Boceprevir study of 48wks. What tx did you go through? I've noticed that you have been SVR for along time now.
Congratulations! 179 Weeks!!! Always we worry over the results, but once again, you break ground and let us know that...yup, this SVR thing just may be durable. I tried to be nonchallant, but I was scared. the 1 year UND felt just as good as the first one. Even better news for me was my daughter has no progression and her vl is now only 7000. I know it is not indicative of anything, but I still like 7000 more then her previous vl of 400,000. All the best to you, Izzy
OH YES WE DO! Also seems like lots of us are in the hair/beauty industry or in some kind of lime light. Gotta love us! ;)
Thanks so much for your reply, I knew you would have the answer. I was wondering if it was something like you discribed. Really hadn't paid to much attention to the site lately.
Just a quick note to say hi! I noticed today that you mentioned in a post that the Janis site was no longer with us. Just wondering if you had checked this out
Just a quick note to say hi! thanks ill ask dr to rephrase and use generic terms to see if that helps we recently changed doctors because first liver dr wanted to stop hcv treatment cause of poor response
Hi...I'm finally here to copy your wonderful journal notes into my bookk where I keep favorite quotes, etc. Thanks again for posting them. They're wonderful!
Hope you have a good day. Cindy
Just a quick note to say hi! Hello Gorgeous!!!
I will email you soon! you know the story, same as yours only different players!!!
Thank you for your well wishes! I have read most of everything on the HepC Medical & Social side through my ordeal and you help keep the forums alive and energetic! Keep it that way!
Just a quick note to say hi!
I just looked at your pics...wondering who you are to be able to be so up close and personal with all of those famous people. Hmmmm???????????
Are you in your new job now? Hope it isn't too horrible.
You're in my thoughts all the time, but especially today.
Are you feeling OK today? You don't seem like your normal cheerful self.
Hope all is well.
Just a quick note to say hi! i know you have children i asume dani is your daughter what a beautiful young woman i too have three adult kids all in thier 20;s i am so thankful they didnot contract hcv from me i stoped the drugs before i had them but i would have had it before them also i am divorced and my boyfriend of 10 years was also negative i too have a daughter 20 she is my beautiful butterfly she has done all the right things in her 3rd year of nursing unfortunatly my boys went down the same road i did but they are slowly coming back thank you for befriending me even though we are from different parts of new york we are some of the best people around see ya deb
Just a quick note to say hi! i am not much for online coversations i feel a connection with some poeple i will be honest with you i probably contracted hcv from my drug use in the early eightys i did have a blood transfusion in 1978 on a army base i just recently found out that a whole group of people that were party friends of mine all have hcv some have known for 15 years i gave up that life style many years ago so i never knew . i do know some that didnot contract the disease from drug use and cannot help thinking they resent people like myself for maybe being responible for thier situation similar to the aids epidemic i do feel bad for people who contracted this disease via a blood transfusion myself i knew the risk of the lifestlye i choose back then please excuse my bluntness mary
Just a quick note to say hi! why did you have to take tx for 72 weeks deb were you a non-responder? i can not imagine taking this for more than 48 weeks
I don't know what lead me to your journal, but i realy like the quotes you listed. I too keep favorite quotes from books, I'm an avid reader, or inspirational quotes from the 'net. I'm in the process of re-writing all of those I have in a notebook and transferring them to a beautiful journal type book my sister gave me. Both to refer to when I need inspiration, and with intention of my 4 year old neice, Lola receiving the journal when she's older. I especially like the quotes you have on "forgiveness"!
Thank you so much. You addressed all my confusion of dealing with this treatment while having a doctor that may not know enough about the disease. You cut to the heart of my concerns even though I don't think they were expressed well in my post. Saying my information is from a support group rather than the internet is brilliant! And true. I have a little more confidence now to do what I need to do. Hugs!
Just a quick note to say hi! oh, yes, having one of them, specially, at the age of 15, is wonderfull, but also very demanding. He , is luckuly, very understanding , and, very good child. Thanks God, I have him, he is full of humor, and realy knows how to make me a happy mother. Thank you NYGirl!
Thank you for everything!
Oh Joy!!!! So basically I'll never know what to expect. I tell you... if the liver wasn't so darned important...
Thanks for the frank answers Deb. I always know you'll give it to me straight.
Have a great day!
Just a quick note to say hi!
After reading your reply, I looked up IBS and I'm thinking that may be what is going on, with the fever from somewhere else. It is just surprising to me that it would start up all of a sudden. Well kinda... actually my abdominal area has felt kind of like it was churning from about 2:00 PM on for the past couple of weeks, but it didn't make me miserable till yesterday. Guess I'll wait and see.
Thanks for the input
Just a quick note to say hi! is your name deb i think from your pics i would like to post some pics of my own i will have to get some help from my kids just wanted to stay in touch mary
Thank you for everything! since we last spoke,i have tried to phone this specialist ,but hes always busy these days,
i will keep trying,
as you pointed out, its very important for both meds ,to stand a better chance,
if it wasnt for joining this site
i would of thought it was the normal thing ,
and would of gone along with what he said
many many thanks
im not quite sure myself ,i was putting my trust in this liver specialist,maybe im wrong ,but i was refered to him by my own doctor,i will start asking questions myself with my doc,if its that important it should be both meds then i should say something,
the only thing thats missing from this site is you cannot get your meds on here
but you do get better information than most doctors give to us,
more doctors need to join this site to better understand what they think they know about this virus,
yes just interferon on its own,then he will see me again in three months time ,on the 20 august 2010,he also took 8 little vials of blood to check for h i v ,(that will come back negative) ,according to this doctor they dont do liver biopsys no more,they do scans instead,264,000 is this a good number for my v load ? and six months dont seem that long
Thank you for everything! went to the appiontment and the doc said,my virul load was small,264.086,and i stand a good chance of clearing this in six months,with just interferon,i tried to reply on thursday but my computor would not let me
Thank you for everything! its about time ,i wasnt looking forward to a three year wait on the list,i will keep you all informed of what happens ,thank you
Just a quick note to say hi! my name is mary i am from western new york i have realitives who live in hastings on the hudson and down town manhatton i my self have not been to new york city since i was 17 i am now 53 as of today i hope to visit it again one day
Just a quick note to say hi! i see you meet steven tyler did you share the fact that he also has hcv
I'M SHOCKED TO SEE YOU HERE ON THE WEEKEND!! HAPPY MOTHER'S DAY!!
Yupppp....heppers are crazy as loons. At least some of us anyway. (ok, maybe just me =)
Just a quick note to say hi!By the way, is it you , on all those pictures, with these famous people?