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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
02/12
Thank you so much. I've slacked on being here but you guys are always on mind. This Friday will be four weeks for me.  How are yours going??
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572651 tn?1530999357
02/12
Thanks for the well wishes.  The first infusion went fine - no allergic reaction.  You are super to have remembered this date.

best, L
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Avatar universal
02/12
Just a quick note to say hi!
Hi Jane, I didn't go to kickboxing last week, but I decided to go on Monday. It felt good to see my workout buddies and to try to get back to my routine before the dx.
I'm paying for it now. I have been in so much pain. yesterday I had this electric shock like pain shooting from my neck to my head. My legs feel so tight I feel like an 80 yr old.
The frustrating thing is that I don't know if the pain is just a normal part of the workout, or the MS. I want so badly to go back to my life before the dx, but I don't want to do anything that may exacerbate my symptoms.
Thanks for letting me rant and thanks for the note. It feels good to vent to someone who knows what I'm going through. I hope all is well on your end :o)
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1734735 tn?1413778071
02/12
Janey poo good for you! I love your spirity. There is something so naughty and nice about 'wagging' work for day when it is rainy and you have a cold. Be even better if you could con the lovely financee to stay home and play with his no1 girl.
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1396846 tn?1332459510
02/12
Thank you! I couldn't wait to start my DMD now that the time is here I am scared. But this was my choice and I will see how it goes knowing that if it doesn't work for me there are other DMD's I can do. I will definately let you know how it goes!
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1734735 tn?1413778071
02/12
Congratulations! Time for a celebration...Hey Jane you are one brave cookie for the way in which you have taken to Copaxone, some would say like a duck to water. You are really new to the family of MS and I am proud of your attitude.
Exciting times for me with the L'Hermittes sign disappearing yesterday for good I hope. I still have many more symptoms left to go but am feeling positive and attribute the good news to my diet rather than good fortune. Anyway, time will tell.
Blessings
Alex
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382218 tn?1341181487
02/12
I meant JaneK !
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382218 tn?1341181487
02/12
Janet - you are too kind....but thank you! :)
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1689801 tn?1333983316
02/12
Hi Jane, I just admire your positive responses, I so often wish there was a "like" button on these forums so we can show when we agree or like something. So I just wanted to tell you :).
My best,
Dagun
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2005940 tn?1327726450
01/12
Thanks so much, I totally agree about ignoring the statistics, nobody knows what the future holds, we are all different. I'm going to keep my head up, take my shots and hope for the best. If God forbid I end up in a wheelchair it's going to be bright pink and covered with sparkles, LOL.
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572651 tn?1530999357
01/12
Thanks for the kind words - everyone here, including you, deserves a pat on the back or a big hug for contributing to make the journey of others, better.  You have already added much insight and intelligence to the conversations here and I hope you'll be around a long time before leaving the nest.
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198419 tn?1360242356
01/12
You are so welcome! Glad to know they are useful :) Happy Weekend!
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1831849 tn?1383228392
01/12
It's Friday and it's a Me weekend (once a month or so Linda and I take a weekend off.) What could be bad? :-)
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1626211 tn?1333541810
01/12
Thanks so much, Jane - you're awesome.  It's tough to know exactly how to feel with something like this.  Kinda like a relative passing away that you weren't really close to anyway.  Girl, I could go on and on.  But feel free to vent with me too - I'm a lawyer so I'm a great listener.  :)  It seems like we're pretty close to being at the same place so don't hesitate.  Hugs from Toronto, Canada!
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Avatar universal
01/12
Thank you for that. This is the first time I have opened up to just people and it really helps to know I am not the only one. Weird never thought that wold come out of my mouth. Best wishes!
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1734735 tn?1413778071
01/12
Why thank you Maam for the compliment. Yes, very good time away from the 'beasties' but now they're BACK big time.
I see your beautiful fiancee so does that mean you'll be popping on a large meringue type dress and walking down the isle soon? Hope your symptoms aren't too bad and that you can enjoy the excitment of it all in the build up.

Blessings
Alex
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1734735 tn?1413778071
01/12
Hello Janey Jane,

You are like a breath of fresh air on the forum. Hope you're having a good day/night and see you round the traps
Blessings
Alex
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739070 tn?1338603402
01/12
Thank you for the note! How sweet of you to think of me. I hope this finds you doing well and I am looking forward to seeing you on the forum boards!

Ren
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1760800 tn?1406753451
01/12
Just a quick note to say hi!  I chose Avonex because of the once a week shots.  And also the fact that it helps to limit disability and since I already have walking issues I thought that was important.  Was heading to copax originally but after research went with Avonex.  But...... if side affects are too tough may switch.  I do not have any down days during the week and if I have to spend a day feeling bad...... we shall see how it goes.
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667078 tn?1316000935
01/12
Just a quick note to say hi! You are welcome. Thanks for the kind note. I have come to find it is a constant thing. You do not accept a thing and that is the end of it. It is a balancing act. Some times I am better at it than at others. I have also learned that at those moments I can't accept things I do not have to go it alone. I can get help from family, friends, the NMSS, and the forum. How are you doing?
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645390 tn?1338555377
01/12
Thx Jane for ur kind note. Much appreciation.  Have u been on this forum long?
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1689801 tn?1333983316
01/12
Thank you Jane for your kind note, and just noticing me in this big group of wonderful peoble :). I'm pretty ok, these days, hope you're too? Take care.
My best,
Dagun

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1469703 tn?1372041476
01/12
Thank you very much for asking :)  I've been ok, have my good and bad days! I dont come on very often, its hard raising 3 small childrne on my own, sometimes between dr's appts and the kids I find myself with NO free time lol! but I finally recieved a diagnosis, well CIS. so at least there's a start. How are you feeling and how is everything going for you?
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1831849 tn?1383228392
01/12
Back attcha :-) I like people who adapt to MS rather than submit to it!
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1981227 tn?1336328438
01/12
Really?? because I could talk for hours about my postdoc :P I may PM you (if its possible) with my email address for indepth discussion!! Yeah a def whatever to your friend!! I have a weird walk anyway... abit like a duck so I guess people hopefully wouldn't notice if I did start walking funny!! Hows the relapse today? I'm feeling better again, typing is getting easier. Not sure if thats due to me getting used to the numbness or its receeding.. I hope its all going away for awhile again!! Thinking of you my long beach buddy :P
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1981227 tn?1336328438
01/12
Yep I'm doing a postdoc here at UCI :). Not researching on MS, but thinking about changing directions now!! Are you studing? Those articles are a pain to get hold of though, I could read em its just getting access!! seems the world of neuro is pretty Secretive. How you feeling today?
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1981227 tn?1336328438
01/12
Thanks for the warm welcome!! It's great to know "we are not alone" :). Noticed you are a long beach girl! I'm in Irvine but orginally from the UK. Good to know you are close by :)
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Avatar universal
01/12
Thank you so much for your kind words.  I have felt so alone on this journey to figure things out for my son.  I can't tell you how much I appreciate everyone's advice and caring thoughts.  
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1734735 tn?1413778071
01/12
Hi Janet,
That is so lovely to read you note and I'm glad that I have helped in some small way. This is a great forum full of love and understanding. I love the fact that we don't all have to agree to get along.
Blessings
Alex
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1831849 tn?1383228392
01/12
It kinda ***** that we're here :-) You sound like you are in my camp. We have this thing, it isn't entirely invisible, but we still go about our daily business. Although my daily business does not include 480 mile treks :-) There's lots of good information here!
Kyle
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198419 tn?1360242356
01/12
That was so nice of you to say :) Really and truly happy you found us - we're all in this together! - shell
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572651 tn?1530999357
01/12
thanks for the kind words. You are already making such kind contributions here and I hope you will stick around a long time, learning and helping.
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