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Post It
Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
05/14
Hi!  I began my treatment with Sovaldi and Olysio 21 days ago, and I'm doing great.  I have not had ANY side effects, and simply feel normal, or perhaps a bit more clear-headed and energetic.  I had my two week labs done, and the results have absolutely amazed me -- all results (ALT, AST, etc) are within the normal range, and my viral load (formerly 789000) is undetectable!
I so hope that you all can get this or one of the newer treatments coming out this summer.  I was treatment naive, having learned in 2006 that I was hep-c positive, from a blood transfusion I'd received 25 years earlier.  Everyone, please remember, if you had a blood transfusion before 1992, you should be tested for Hepatitis!  I'm very lucky to have a top doc and great insurance.

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317787 tn?1473358451
05/14
Thinking of you hope you are doing well, Dee
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Avatar universal
05/14
Just a quick note to say hi! Hi please can u update and tells us how treatment with the new drug went?
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317787 tn?1473358451
04/14
Congratulations on finishing tx.  I am very happy for you. Take Care, Dee
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Avatar universal
02/14

Just a quick note to say hi!
Wanted to follow you if ok, I may try same treatment and see how you are doing
Thank you
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5924677 tn?1378947307
01/14
My Medicare plan is humana ppo.  Hope you feel better soon!
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Avatar universal
04/13
Just a quick note to say hi! About your thread, just want to tell you that I am cirrhotic and I take HepTech supplements and my Hepa approves them. They are run by a research based reputable company.
Expensive but you can request "compassionate care" and get a sizable discount.
All the best to you, Grammy.
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2094297 tn?1345389093
01/13
I have been told that three months is about the time, I way overdid it, but you take what you get, been down for about a week but the biggest problem I am having is fatique and blood sugars, cannot control it.  If I can get that under control I do not think that anything can stop me, but right now I am sad, just so tired of being sick, but it is nothing like before..my feet still hurt from walking the pits of hell...lol   but good to hear from you... TTYL
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2094297 tn?1345389093
01/13
O.K. finally we are entering the Happy zone, life is starting to return, but still find myself out of breath, trying to work smarter, not harder, but I can tell I am still not quite there but after this ride I just want to drop the top down, let the sun shine on my face, and smell the ocean, which means it wont be long before I just drive to some remote beach(as soon as something like summer returns), I think this might finally be winding down, you can see that it took me a little while to get here but your turn is coming...let me know how things are going.  TTYL
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2094297 tn?1345389093
01/13
A wise person once told me that the worse the symptoms the better the chances for healing, you will be just fine, the only thing it is still not over, it has been almost a month since post tx, and I have had just a few of the recent days that are good, but they seem to be getting easier every day, now I just need a pill to reverse aging...lol...I am so glad that you were able to stop at 24 good for you another 24 would have taken me out...congrats...and forward on this arduous journey that has ripped our inner souls out....we must pick up our swords and sound the trumpets. gather the troops, AND SLAY THE DRAGON....the trolleater who stands in the sun..
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2094297 tn?1345389093
01/13
  Have not heard from you, are you OK...?
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2094297 tn?1345389093
12/12
checking in on you, I am having difficulties adjusting right at this moment, but it is insulin related they think from the steroids that I have been on, made me really sick (to much insulin) but dropping off insulin once again, I hope I wont need it anymore, sigh, but how are you, have not heard from you, I did get your friend request on facebook, but all the activity you see on it is from my wife playing games, she used all my chips, lol, but that is ok, I will let you know when this is getting better, still waiting for that great feeling if it ever comes....TTYL oh and the reason I gave wifes name is lots of pictures of kids on her profile.
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2094297 tn?1345389093
12/12
my facebook is don johnson (another alias) I liked miami vice, but I never really check it, and my you tube channel is thedondog187 this is my artistic outlet, so if a video is dark you know I made during treatment..lol but a good look at my family life for the most part...oh I also have some gross videos of the war, It just represents my view .. take no offense. I just wish the world could get along, so I put up shock video to show people what is really going on as we sit on our sofa and drink iced tea...
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2094297 tn?1345389093
12/12
finishing the last note..  so the one thing that I want for Christmas is for my friend to have the gift of life.. God Bless Grammy, I hope that you and your family have the best Christmas ever, and I know that is hard to do at this time, just remember that with hope and faith all things are possible (hope I dont sound too hokey), but I do care and dont think I would have made it without you.....TTYL .....The Troll who is now peeking out of his cave...lol.. merry christmas
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2094297 tn?1345389093
12/12
So I am done, or am I. one thing I will take away from this no matter what the outcome is " It aint over till its over" you talked about the shakes, OMG, I still have (just did last shot) these waves that come over me, If I was a women I would say it is hot flashes because that is what it is, I sweat I shake, I just want to fade away, but I am happy that its over, or is it ?? you and I both know that this is the worlds largest rollercoaster and we have season passes, but I will cross my fingers for both of us, I only wish that you were done too. but I will stay on here and try to help the best I can and let you know what to expect on the end, it does seem that you and I have gone through alot of the same things... next line
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2094297 tn?1345389093
12/12
Monday is my last day of the dragon ride, they are going to stop me at week 23 which was my 24th shot, said no need to order anymore..yay  went back to work today after taking another two weeks off, made it half a day, I have been having severe leg spasms and pain in my right leg after doing the last dose of interferon, I have never had this before and I hope it does not last long, but how R U doing... drop me a line...TTYL
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2094297 tn?1345389093
11/12
Hey how is it going, I hit a little rough patch last couple of days, but with all the meds I dont know If maybe I just got the flu it is going around and I have been working half days which means coming in contact with lots of people, and recently I have been getting all these bruises up and down arms for no reason...ever have that happen to you
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2094297 tn?1345389093
11/12
Oh, bye the way I know I have told you this once before, but I dont pray often but I will for you my friend, I cannot wait till one day you send me the message that you feel like your twenty and are going to visit some beautiful tropical island far away from all this.......maybe with a pina colada in your hand..... good night Grammy.
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2094297 tn?1345389093
11/12
As sad as I am to say it, I do believe that this is what we get, my Dr. wants me to do 48 also, but I cannot do that, I am on steroids now so the rash is kinda gone, but I know it is only for a short time when they run out it comes back with hatred to me, I guess we are where we are, this is one very tough thing to get through, every day is a different affair, we know it is only for six months to a year, its very expensive, it ***** the soul from you and we are not sure it is going to work, but you would not have wanted to spend the summer at the beach over this would you, just think we are the living dead, what an honor !!! Hang in there Grammy. but yes this stinks..
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2094297 tn?1345389093
11/12
  So sorry you are not feeling well my friend, my thoughts are with you, hopefully it will be over soon and you can put your dancing boots on and dance the jig.  TTYL
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2094297 tn?1345389093
11/12
just working half days Dr. put me on a long term steroid to get rid of rash and it makes me feel better, but dangerous it cam cause your immune system to get low. but to answer your question , not really , but only five week left- thank god
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Avatar universal
11/12
I have the rash too!!! But I am only @6 weeks. Dr. gave me lotion and benadril. He also cut the ribo back one pill. It is worst in evening. Back ,legs, neck and now my face. They tell me lots of lotion and mild soap and I see you used lye soap and it helped??? Going to Derm on Monday.
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2094297 tn?1345389093
11/12
steroids wore off and the rash is back with a vengeance, they will not give me more steroids because they lower resistance they are going to try to up appt with derm.   AND ONCE AGAIN I AM COVERED IN RASH. only have six more weeks till wk 24 and they will let me stop because of the bad sides, said it lowers chance by 5 per cent, instead of 48 wks, I think I am going to go with it unless I can get this under control, sorry to hear your not feeling good I sure hope it turns around for you, TTYL
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2094297 tn?1345389093
11/12
  How are you ? I am doing much better now, going back to work just half days for now, and the rash has gone(for now), but I only have six wks left, then this will be over, thank God, hope you are doing well too. bye FOR NOW, (I just read back and this treatment is so varied that I just realized every sentence has a for now in it, I guess because next wk it can change.)
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2094297 tn?1345389093
11/12
  Yes the rash is clearing up, also been using grannys homemade soap (lye), found it in hardware store or you can order online but it really seems to help, 5 bucks, other then that could not sleep last night, the steroids keeping me up, but I am doing much better then before, I think I am only going to do 24wks so just 7wks left, good to hear from you and I am so glad that you(we) are doing better.
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2094297 tn?1345389093
10/12
  I was just looking back at my old notes, and it is funny to follow how we roller coaster on this ride, you can read the way that we feel.  I hope you are doing better, it sounds like it from your post, I am still having a tough time, but I did see Dr. today and she did order some steroids for me to take to get rid of rash, she said it might only last for a week or so, but I will take it.  TTYL
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2094297 tn?1345389093
10/12
The thrill is gone. But how are you doing, I have hepc clinic today and blood letting, go me Yay. Still feel crappy and the rash just wont go away, made appt with derm but it will be two months to see them, by then this will be over. (maybe), yeah I am having a very hard time with part 2 , so not sure how to handle it, just plugin along, did big shot last night so feelo very crappy today ...TTYL
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2094297 tn?1345389093
10/12
Its a little better, just had a really rough couple of days, but It is hard for me to know what is going on because I was stung by a black widow right at the end of Incivek and I think that has been playing a little havoc on me still, and now my blood sugars are all over the place again ontop of the rash, but going to see dermatologist as soon as they call, oh and the black widow must have been in my pants that were hanging up in basement because there was another bite right at my knee, that is still swollen even now and really red, going to spray house for spiders today....one day this will be over..
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2094297 tn?1345389093
10/12
  Well I woke up this morning and I feel like I made it over the hump, just went back to treating rash like I did while on Incivek, started taking more pills again, and Dr. gave me hydroxyzine way back in the start and it made my eyes and throat swell up so bad they said to never take it again, I tried it three times, it did get rid of the itch, but then I could not swallow or see, sometimes a bull has to hit the electric fence a few times before they learn not to cross it.  lol . so I am not going to quit, talked to work, they know I am having a hard time with this (thank god I am good at what I do) so no worries.  I am glad you are doing well that is great news, hopefully I will join you soon in that happy place,  TTYL
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2094297 tn?1345389093
10/12
did big shot last night, and the rash is a little better today, but, here we go, I STILL FEEL HORRIBLE, how about you, is it better, because I will admit that it is a lot better, but it is still very bad, I cannot really function in everyday life like this, I have not been back to work, again, I am going to try for thur. but I really do not know if I will be able to do this, the riba makes me ten times grumpier now then it did before, either that or I was so itchy from the Incivek that I did not notice....Grrrrrrrrrrrrrrr.  And I am hitting that spot where I want to quit... I am not but the sx from this are really bad and I am tired of this, help me help me help m ......aaarrrrrgggggghhhhhh, any how that is my week how is yours ?
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2094297 tn?1345389093
10/12
Not sure but now the rash has come back pretty strong, bug bites itchy, the whole nine yards, just now as severe, I now can hardly stand up without feeling like I am going to pass out... GRRRRRRRRRRRRRRRRRR
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2094297 tn?1345389093
10/12
well I hope things get better for you, my job will let me work less but I am so broke I need to work more just to keep everything going, but it is what it is, I still feel so crappy and they called me last night to see if I would come in and close tonight (day off), I said yes but my body is saying no, I am in a real bad place mentally, I do feel better but I do not feel good, and I dont think it is going to get alot better until this is over, sorry to be the Roman, so please dont kill me.  Sorry to hear you had to go to hosp. I am almost there, what was your white blood count ? I am at 2 right now but every test it has be dropping down ,5 so I am sure it wont be long and I will be there to.  Use Caladryl lotion for the itch it is cheap and works..TTYL
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