How have you been? So sorry it has been so long..............we moved to WV. It is easier for me to get around without the snow. Still have auto immune disease, stroke & TIA's, not seizures I find out.
How are you?
Welcome back. Hope life has been treating you good. Just wanted to say hello. Hugs Renee
Wanted to just stop by and say hello. Im really sorry you are having so many problems with your pit.tumor. Hope the weather there is some better. I know how frustrating it is to try to get answers from Doctors. Seems like all they want to do is refer you to someone else because they dont know the answers. Ill keep you in my prayers and I sure hope things improve for you. God Bless..HUGS Renee
Just a quick note to say hi! feelin under the weather today will be in bed all day
I appreciate any prayers I can get. I live in Ga. and we got about 5inches of snow here. It is sorta a treat to get some here because we usually dont get much. After a while though you get ready for it just to be gone. Hopefully, youll get some news from the doctor. Thanks for the note. Hope you start feeling better soon. Sorry you are having so many problems with your health. Believe me I do understand. I also deal with alot of different issues too. HUGS Renee
So glad to hear back from you. I will keep you in my prayers that your health will improve. I deal with chronic back pain from a surgery where they did a fusion and had rods put in. I also deal with some depression from being sick alot but I try to push through it the best I can. Keep me informed if you dont mind. HUGS Renee
Thought I'd check back in on you and see if you had any luck getting your records from the Neuro. They have to by law give you copies. Have you already been to the new Endo yet concerning your Pituitary? Well, best of luck and better health to you. Keep me informed. HUGS Renee
Hey there how are ya. sorry i havent been on lately
Hi there to you too. You know I really dont think it matters if you were the makeup or not. If you are having terrible problems with your thyroid it will show up in your blood test. I do understand what you mean though. I can put my makeup on and dress up and I look like everyone else. But, I am not. I have the most horrible hypo symptoms sometimes. If it were me just put on some light makeup. That way is you are having a rough day maybe they can tell with not so much on. Hope You feel better and keep me informed on how it goes with the doctor.
I came across your post and just wanted to say I am sorry you are going through such a hard time. I am on the thyroid forum. I sure hope you can get copies of your mri so that the doctor on here can take a look at them to advise you. God Bless and I pray for improved health for you.
Just a quick note to say hi! man i missed you i have been in some dark time!! i feel better just talking again!! i hope all is well with you too!! im at work will be back on tonight.
I am glad to hear from you. I am so glad you are doing ok.
I have been going through alot of crap with the school and my
12 year old son so things have been really tuff.
Hey there how are you doing? Havent talked in a really long time hope your doing ok.
Hey there it is really good to hear from you sorry to hear that your not doing all that well.
How is your family doing? Mine is ok the kids are getting bigger everyday and my husband is a pain
in my *** as alway one day he is standing behind and then the next he acts like i am just a pain in his
***. My anxiety is driving me crazy I think I am doing better one day and the next like today I am a mess
life is so hard..... ttly
Hey there I havent heard from you in awhile hope all is well.
Hey there how have you been? Sorry I havent been on much. I have been a mess
with all this anxiety or so thats what the docs keep telling me. life is just a mess right now.
let me know how you are doing? ttyl
I'm sorry to hear you're having so much trouble with your seizures. I would expect your doctors to be monitoring you more closely. You need better medication, or something to control the brain swelling! Do you think you will need to go back in the hospital? Personality changes are very common after pituitary damage. You need hormone replacement, and maybe neurotransmitter testing to rebalance these.
I hope you will see some improvement soon! Keep bugging your doctors for better treatment. I'll be thinking of you!
Hey there it is good to hear from you sorry to hear about everything you are going through right now.
know how you feel when the doctors wont listen to you cause mine sure dont listen to me they are all
trying to tell me that it is all anxiety and every med i try nothing helps so everyday I feel dizzy and out of breath
and it is completely awfull. and my 12 year old is out of controll he does what ever he wants and talks back and
is just out of total control. ttyl
Hey there it was good to hear from you sorry to hear about everything that is going on with you.
We are just a mess aren't we.. It is so hard for me to get out of bed every morning and to just keep
going everyday. because i feel the same damm way everyday. how is your family?
Hi there how are you doing? I havent been on while
I have been dealing with anxiety and depression or so the doctors are trying to tell me.
I went to them for my lightheaded and dizzy feeling and they said there is nothing wrong its just
anxiety and depression her take this ( buspar) and i took it for 2 weeks hope to start feeling better
and I just got worse everyday. I was crying non stop I stopped doing everything and I hardly leave my house
because I am so afraid of passing out because of this lightheaded feeling. My life is a complete mess right now
I really hope you are doing better then me. ttyl
Hi! Have you been able to talk to your doctor yet about hormone replacement? I think you should at least ask for a trial of Hydrocortisone. I found an article describing people with non-symptomatic adrenal insufficiency, who had NORMAL morning cortisol secretion, who were still in danger of suffering an adrenal crisis! The stress your body has been under is enough to warrant cortisone replacement, regardless.
Hope you're feeling better today! Have you ever had amino acids testing to look for imbalances, for the seizures? Any testing for DHEA levels and prolactin? I know, it's so frustrating when doctors quit looking for the reasons, and only try to control symptoms. Casey's cranio was 20mm. He doesn't get seizures, but CNS tumors can cause autonomic dysfunction, which he now has. He has many amino acid deficiencies.
Brown recluse spider! OMG! I have seen them but avoided them... when is your streak of bad luck ending!
Thanks for the note. Stupid ankle! I'm getting a cast on it tomorrow. Now neither my son or I can walk more than a minute without a rest. Taking care of him for the next few weeks should be interesting! At least, we have two wheelchairs now.
I hope you are continuing to get better?
You did the gamma knife? How did it go? What did your doctors say about after effects? How are you feeling now? I'll be thinking of you today!
Best Wishes, Enzy
I finally found out what I have its Esophageal Motility Disorder It took a really long time.
The doc gave me pills to help with it. But he said I will have to learn to live with it for now.
I just wanted to let you know Thanks for being there for me.
yea id say thats what it is all the stress... call me as soon as u get back tomoro or ill come over to grannies when u come get the girls. I love u sissy :)
hey ur having blackouts still? sissy if u want ill go with u to the dr, the 22nd. well i love ya n ill ttyl
Wow I haven't seen you on in a long time
I hope You and your family are doing Ok