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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
766574 tn?1238465473
02/10
You are in my thoughts and prayers. hi jody just wanted to say hi and to find out how you doing? as for me the same only thing is now i have bad mid/lower abd pain nonstop,my psoriasis of my skin is really bad and painful derm says thereis nothing he can do he has tried everything.he says its cause of my liver and toxins. still haven't seen my liver doctor.now till may. i see my reg dr tomorrow to see about doing something for my abd pain,now i don,t sleep at nite period.till like8am is when i start falling asleep i wake up and theres the pain.sorry i haven't been in touch.i pray everything is okay.keep in touch! godbless you jody  from jr1963  raymond
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Avatar universal
12/09
I did come back with border line auto immune hepatititis. So hit that on the head!!  Hoping that my nuclear tests for gallbladder / liver come up with a definifate answer. Last week I failed a heart stress test and was given inhalers in case its not my heart whcih tomorrow I am being again injected iwth dyes to ensure there are no blocked this and thats.  Really stumped as to how this all happened. Hope ur holidays treat you kindly
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766574 tn?1238465473
12/09
Happy Holidays! jody515 may god bless you this coming year and always!your friend jr1963
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Avatar universal
12/09
Thank you for everything!

As much as I dont like the reality, that autoimmune hepatitits maybe just that.
As recently I have been vaccinated for Hep B and as a child I had the Epstein Barr Virus.
I dont get to see the hematologist for another 3 weeks. But the gastro doc will be performing tests around my gall bladder1 But I dont see how that can affect my joints.I will ask to be tested for what you have suggested as it makes a bit more sense.
Happy Holidays
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766574 tn?1238465473
11/09
Happy Thanksgiving! jody mayyou and your family have a wonderful thanksgivingyou're the best! may godbless you and keep you and all close to his heart.your friend always raymond jr1963
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766574 tn?1238465473
11/09
Thank you for everything!hi jodyi hope your doing fine, as for me well i am hanging in there,i still don't know the cause of her passing,hopefully in a couple of weeks.its hard but i know i have to deal with it.i'm crashing cause i am out of my depression pills  etc. its not fun,but i guess a little rain must fall..hoe have you been? it getting cold here.has it snowed where you are?god i miss her so much.it wasn't suposedto be her .it was me.his will be done.well i will let you go godbless you keep in touch okay?thanks raymond  jr1963
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663073 tn?1260537120
10/09
You deserve a big bear hug!  Hi...I get confused on the terms...medicade is what I have to wait for until 2011.  They said I am making to much on my disability....if I made 624 a month I would qualify for all.  Since I make 724 a month, I make to much!!  I think you almost have to live alone or be homeless to really get help.  We are way below the poverty level, but we make to much to qualify for some programs.  This is all so new to me...bad planning on my part when I was young and full of life.  I never got sick and just thought it would always stay that way.  I am trying not to get mad, it does not help my health, and to deal with all this one day at a time.  

You hang in there..hugs to you and good thoughts
Kat
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766574 tn?1238465473
08/09
Just a quick note to say hi! i hope your doing fine as for me 10 freaking days with vomiting and diarrea, non stop my insides hurt. sometimes blood form both sides ia so tired of this.i feel so weak .i try to eat but it doesn't taste like its suppose to.weird. on the 2nd i finally go see liver dr.watch hes going to say theres nothing we can do, i am tired of that saying.is this normal. sorry to ask but and forgive me,what did your brother go thru?symptom wise.my boobs hurt(funny) touch them and touch them ouch.how have you been?what has dr.s told you? youre in my thoughts and prayers you are a good person and a good friend i mean that with all my heart. keep in touch  raymond  jr1963
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1018183 tn?1252271790
08/09
Just a quick note to say hi! Sorry to hear about your brother,i lost my mother a year gone xmas day its very hard to live with but getting a little easier now but still have days when still feel upset so know how hard it is and can have a knock on effect with illnesses. I suffer from thyroid hashimotos desease, fibromyalgia which affects everything and gets much worse if i have a flare up, the fatigue and pain is the the hardest to deal with as it makes my arthitis worse so i'v had to learn to pace my life but have a good husband and that helps.
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766574 tn?1238465473
07/09
You are in my thoughts and prayers.soryy i haven't written to you i haven't been feeling good. i have like 2 weeks with pain in my liver area dowh to my lower area, now they say i have a enlarged heart. look at the question i posted in liver disorders i how have you been. i hope well, you are in my prayers and my thoughts write back when you can. jr1963 (raymond)
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766574 tn?1238465473
04/09
You are in my thoughts and prayers.how are you doing jody? as for me i'm so so,my blood platlets are in the low teens,and my wbc is .01. i have been getting nose bleeds,and leg and side cramps.went to dr. she is worried about me. she keepsrunning blood tests and urine samples.how have you been feeling? keep in touch ok . jr
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766574 tn?1238465473
04/09
You are in my thoughts and prayers. how are you? ihope you're doing fine.i am okay,i have to do get a gel like injections on my knees two very week. not fun very painful, i have an infection where i had surgery .it swells up like a golf ball then it open where my cut is and blood drains until it stops then it happens again, i lost  a little bit of hearing and feeling on my ear and face but i am better hoe have you been feeling, my thoughts and prayers go to you godbless you jody. keep in touch. jr
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Avatar universal
03/09
Hi,

Got my abdominal scan done and everything ok. Have stopped taking Citalopram and have to abstain from alcohol for 8 weeks to see if the liver enzymes drop. Thanks for your comments.
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766574 tn?1238465473
03/09
You deserve a big bear hug! hi jody. well i look like frankenstein, the cut is from the top front of ear to the middle of my neck. i have a big indentation on my jaw. dr. said it was bigger than he thought.one of my nerves was connected to it,i can.t feel my ear or part of my face, hopefully it will pass.but it hurts.otherwise i am ok.thank you for your prayers. it was a 5 hr surgery.just got out of hospital today,. how have you been?have they given you ant meds for your pain? i hope they did you don't deserve to be in pain.keep in touch,may god bless you jody,you're in my prayers always  thank you. jr
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791632 tn?1240520286
03/09
thank u for your advice.
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766574 tn?1238465473
03/09
You are in my thoughts and prayers.hi. jody. how are you doing and feeling?as for me well not so good.been having alot pain .but o well should be used to it.well i go to surgery on tuesday mar. 17th. at 0800.st. patricks day. to remove those tumors.wish me luck.if you only knew how much i hate hospitals and needles.ha.ha! how are you feeling and have they given you anything for your pain? may godbless you and you are in my prayers. i do care about you.keep in touch. jr
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758338 tn?1235785002
03/09
If it turns out I have it which genetic study confirms) - then so be it.  Likely I do, and the form is one of the more mild ones and slowly progressing. But "IT"  along with a bit of steatosis - along with having contracted of all things - mono last spring made me a real sick camper for a time.   The 3 hepatologists and the transplant MD at the U were quite interested insofar as my problem, and my brother having "liver problems" too. SO now they are quasi watching both him and have instructed my sisters doc of what to monitor...  At the moment i feel pretty good and am greatful for each day...im also happy to give back what I can to this forum and try to at least point people in the right direction

Thanks again for your concern and kindness

Jack King
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758338 tn?1235785002
03/09
I am also "on the fence" for Wilson's. With copious zinc intake for 90 days my dry copper weight in my liver was just under 60ug/gm. The Hepatologists at the U of U med center have debated my case, and for now are watching my enzymes.  The thought is, if I have WIlsons its not as agressive a form as others have - and that if my copper levels - although are high - would maybe let me even see 2 more decades before I even hit  the low threshold for diagnosis.  SO for now, I just kinda do the best I can with the bloating and the itch...
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758338 tn?1235785002
03/09
Thanks for the note! I'm new to navigating this site - I have risen to some level of proficiency @ posting Q&A - but am dumbstruck at the ways of navigating the friendship stuff and notes...  I am proof that NASH can occur in "folks of all shapes and sizes" (so is my younger brother - but he more fits the size).  

Jack
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766574 tn?1238465473
02/09
You are in my thoughts and prayers.Jody515,please forgive me and correct me,on your message it states you had a brother.i am so sorry for your loss i know what you are going thru i also lost my sister toalmost the same problems i have.i'm 45 yrs old. she would have been 49 this april.doctors did the same tests on her but god s will be done.she is in a better place where there is no suffering.i was angry at first .i have 2 sisters and me the only boy, she was the middle one and the closest one to me.i miss her so much.again i apologize for my mistakemay godbless you and keep you well.jr1963
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766574 tn?1238465473
02/09
Thank you Jody515,for answering.,they have doing tests,to see if i still qualify,they just found another tumor in front of my throat they are doing a biopsy on it. but they won't do suregery on it or on the wathins tumor cause of the risk,they pulled out all my teeth and i bled too much. so dr. is afraid.thank you for responding, is your brother okay?may god bless you and keep you
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772936 tn?1244489106
02/09
Just a quick note to say hi! Hi Jodi. For some reason I just now found your note to me. Thanks.
I'm just trying to figure out how to conncet with people here. Everyone has been so helpful.
Thanks for your encouragement. Deborah
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156741 tn?1212748547
02/09
Happy Valentine's Day!  I hope yours was great!!!   I hope you are feeling well...

Pearl06
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156741 tn?1212748547
02/09
Dear Jody515,

I do feel much better and have tested again all tests come negative.. I have done something different and is drink Chamomile te in the morning and at night I have found that has helped with the pain on the side it's almost gone.. very mild .. and it goes away when I do exercise; jogg, ride my bike or just walk at least for 30 mins a day.. i'm seeking for an alternative dr. for maybe aculpulture and see if that will help elimante once for all the pain ... my digestion is good and have gain weight and I'm hungry all the time good sign I guess ....

Your so sweet and kind of thinking of me... I hope all is well with you and may God be always with you!!!

Pearl06
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156741 tn?1212748547
01/09
Thank you for everything!
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584567 tn?1230766337
12/08
Just a quick note to say hi!
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Avatar universal
12/08
Thank you Jodi...thank you, I hope all is well with you my friend
Hugs
Elaine
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Avatar universal
10/08
Best wishes. I hope you're feeling better now.
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156741 tn?1212748547
09/08
Just a quick note to say hi!  I think I told you that all my autoimune tests came back negative.. I'm having still pain on my side now all the first sympthoms I told you have diminished i'm doing much better but once in a while if i drink any caffeine drink I might get a slight flare up.. but very mild my skin of my chest will turn red... and yes maybe a stomach cramp too.. but nothing that can't handle... I wish i know what I have bz yes i do feel much better but i'm not like i used too before tx for hep c.. i will have another dr. appt. 10.20 thk God no arthiritis either no pains n my bones at all is just the pain on the side of my liver... thanks for any info.. I guess i just wish anybody can help me figure out what i have.. Pearl
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156741 tn?1212748547
08/08
Jody, I'm 9 post TX SVR hep c but experiencing autoimune problems.. they are looking for Lupus now.. I have it very mild because is just starting I believe so.. I feel like I'm burning inside but no pains in my joints or anyother place just my chest and it runs to my stomach up and down.. My question, can you correct those problems with the meds.. and how long will it take tx again.. I'm sorry for asking but YES!! i'm again spinning here and worried.. I'm on Paxil for ansiety bz I'm afraid of panic attack with all this.. Do, I have to prepare myself with supplements to be strong for side effects.. thanks for any help!!!
The dr. will confirm test labs. but I think we both know that's what it is "inflamation of the body tissue"
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471161 tn?1317190950
05/08
THANKS !
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471161 tn?1317190950
05/08
Jody, would you mind letting me know what your doctor says about the sun after your visit?
Thanks,
Joni
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