Hi, there! I caught you trying to sneak a comment on and then disappear. I haven't heard from you for a long time!
I'm new to this site and it is soooo! helpful. I noticed you have central apnea. I believe I experienced this one summer several years before dx. I would be in deep sleep and start waking up because somehow i'd just simply not taken a breath. It happened over about 1.5 month period of time. During this time I also woke up with the whole room spinning kinda as if I were totally drunk and had the spins except I didn't feel drunk, just everything was spinning. I thought - oh, this is getting crazier by the night. I'd better just go back to sleep and it will go away. It did and never happened again. I do have a lateral lesion in the medulla and have problems swallowing off and on. I actually chocked in public and thank god for a quick acting nurse who did the Hemlich which expelled the object.
Just a quick note to say hi! Its great to see your name popup. Do you realize you were the very first person to welcome me to the MS forum ? Your name is #1 on my list of friends. I hope you are well. Laura/Lulu
My name is Josie and I feel the same way. Did you find out what was wrong?
Just a quick note to say hi! I am 40 and I have a beautiful grandson too. AA
Just a quick note to say hi! i had my neo-disc surgery last April 21, 2008 and it didn't work. I am in bed allmost all day everyday. Thanks for praying for me when you did. I have 4 disc that need to be replaced now. in my neck. how are you doing?
Just a quick note to say hi! HI Tammy just popped into the forum on my day off, Yep I am back at work have posted in the room have missed you all so much, I hope you are well :)
You're in my thoughts all the time, but especially today. I'm here for you my friend. Hang tight. Hugs Moki
You deserve a big bear hug! I will be praying extra hard that you get a diagnosis next week!!!!!!
I am waiting for my recent LP and VEP results so maybe a dx is not too far off for me either, I wish at least!!
Love and Hugs!
Hugs to make you feel better. I just wanted to leave a note to say I'm thinking of you.
Just a quick note to say hi! I'll be praying for answers for you on the 27th. hugs Moki
I'm hoping your MRI went smooth. Share the results when you get them, please!
You're in my thoughts all the time, but especially today. Good luck today w/ MRI! I am so glad you got in sooner than expected!! Let me know what happens!
Hey Tammy...I am going to give that idea about going to a walk in clinic to see if I can get any further ahead that way. It would be a great relief but I have to figure out how I would go about it and my hubby and I will work on it when we are not fishing next week...hmmm...oh yeah, we do have to eat and sleep to don't we but we just might fit it in! he he Thanks for the idea!
Thank you for everything! Hey Tamster, just wanted to say thanks again for being there for me. I truly appreciate it. Hugs Moki
Just a quick note to say hi! Please let me know how everything turns out.
Just a quick note to say hi! Thanks so much for your post about my sobriety!! I am proud of it - hasn't always been easy but I thank God for the gift!
You are such a great friend!!
Love and HUgs!
Thank you for all your love and support! You are such a true friend and I really appreciate you!!
Hi Tammy, thanks your checking in, I appreciate it! I have been avoiding the computer lately in order to give my painful, numb, uncoordinated hand a break! Also busy getting ready to head off to Boston. While I'm there, I'll be seeing a doc at Brigham for a second opinion on my DMD treatment and meds for my symptoms. Hopefully it will be worthwhile! Take care and I'll be back on the forum in two weeks. db
Thank you! I can't decide if I'm excited, scared or resigned to never finding out - it varies by the hour. I am currently checking all my i's and t's to be sure I'm ready. I will need all the prayers I can get - mostly just that he is a decent guy who cares and doesn't have his head up his butt, lol! My only hope is that he will order the stinking tests that need to be done and take me seriously. I can live with not knowing what it is, I guess if he can stop the really tough stuff...spasms, heat intolerence and the eye issues (I guess that's asking a lot). I can live with the buzzing, twitches, vibrations, phantom wet spots, etc. They're just annoying. The others really make it tough to hang in there.
Thank you for everything! Thanks so much for your note. I have had alot going on my grandkids came and stayed with us for 2 weeks. I just havent been able to get on here and talk to anyone. I will be glad to slow down for awhile. I had to reschedule appts with pulminolgy and allergist and the ENT to next month because I had the kids here. My last appt with my neuro he told me I didnot have ms and I said that is great news. I do not want to have it and he scheduled a mri of brain. He said I have periphial vascular diease. (that is what the nurse called and told me anyway) Thank so much for thinking of me!
How are you doing? Just want you to know your in my thoughts often!
Hugs and love,
Thank you for posting, and reminding me I am missed, it is very much appreciated! Love, Amy
Thank you for everything Sweetie!!! I guess I am still on cloud nine right now because I feel great!!! Thank you so much for thinking of me Sweetheart, it means the world to me!!! How's Grammy doing? I am going to be an aunt again in December, I am really excited about it, nothing like a baby to kiss and cuddle with, I can't wait!!! Give Gavin a big hug and kiss for me!!! He is so cute!!! I love you Sweetie, Ada
Just a quick note to say hi! Well Grandma, how are things going. Just checking up on you and saying a quick hi. Not on for long, just trying to catch up on the forum reading. Hope you are well. Hugs Moki
Hey, there. I answered your question about tremors---probably far more than you wanted to know! Have a good one. ess
Thank you for everything Tammy!!! It means a lot to me Sweetie. Love Ya, Ada
Thanks for the nice welcome! I've just found this spot so it's nice to get started with a note.
Thank you for everything Sweetie!!! I really appreciate all the love and support, it means so much to me!!! I hope you are well and enjoying that gorgous grandson of yours. Love Ya, Ada
Congratulations! Time for a celebration...What a perfect looking baby. He must have a gorgeous Grandma!
Just a quick note to say hi and to let you know that I'm still alive. I've been away, but I'm glad I'm back! I've been taking care of my sister who had surgery. She's doing better and I'm very happy about that! Thanks for remembering me...Deb
Thank you for the note Tammy. Your such a sweetie. I'm doing ok. Thanks for thinking of me :)