beatrice57's Profile
01/12
Comment vas-tu, Bea? Ça fait du temps dès que j'ai eu de tes nouvelles. J'espère que tu es bien. Ton ami, Mike.
07/08
Est-ce que tu es dejà à l'hôpital, Bea? C'est okay, ça? Ils te traitent bien? Ton lit est confortable? On y mange bien?
Il faut que tu me renseignes sur tes tests, parce que je me soucie de toi.
Mike
Il faut que tu me renseignes sur tes tests, parce que je me soucie de toi.
Mike
06/08
Did I miss your note? ?? Wow I just saw it today. Sorry. I guess I can't blame it on the meds!
Oh, that is a gasoline price sign.
LOL = laugh out loud.
OMG = oh my god!
WTF = What the fxxk?!
Did you see my photo from the Woodstock Rock Festival is 1969? It's under photos. I was 17 years old. Yikes!
Anyway, yes I finally started feeling better in the last week or so. Until then I was sometimes sicker than when I was on treatment! I was very ill after I stopped the meds 6 weeks ago. I thought I would feel better but I felt worse.
My blood level are very slowly coming back up. My platelets count is not about 40-50. Very slowly return to normal. My White and Red blood cells are still low too.
Your going to the hospital soon?
Let me know how you are doing.
Cheers!!!
Howie
Oh, that is a gasoline price sign.
LOL = laugh out loud.
OMG = oh my god!
WTF = What the fxxk?!
Did you see my photo from the Woodstock Rock Festival is 1969? It's under photos. I was 17 years old. Yikes!
Anyway, yes I finally started feeling better in the last week or so. Until then I was sometimes sicker than when I was on treatment! I was very ill after I stopped the meds 6 weeks ago. I thought I would feel better but I felt worse.
My blood level are very slowly coming back up. My platelets count is not about 40-50. Very slowly return to normal. My White and Red blood cells are still low too.
Your going to the hospital soon?
Let me know how you are doing.
Cheers!!!
Howie
06/08
Ooo, Venise...combien je suis envieux! C'est romantique. Vingt ans mariés, vous êtes les modèles de la fidelité. Je vous admire.
Je me battre entre les conseils contradictoires sur le traitement antivirale. Mon mèdecin ici en Buenos Aires croit que je ne devrais le faire maintenant, d'autres croient que oui. On ne sait pas quoi faire. Alors, je fais rien. :¬]
A tout à l'heure. Ne tombez pas dans le Gran Canal.
Mike
Je me battre entre les conseils contradictoires sur le traitement antivirale. Mon mèdecin ici en Buenos Aires croit que je ne devrais le faire maintenant, d'autres croient que oui. On ne sait pas quoi faire. Alors, je fais rien. :¬]
A tout à l'heure. Ne tombez pas dans le Gran Canal.
Mike
06/08
Saluts! Te trouve bien? Ou es-tu? Ca fait du temps que tu ne comuniques pas avec le forum. On se soucie de toi.
Mike
Mike
05/08
Hi Bea!!!
Good to hear from you! Nice surprise on a Friday night.
I’ve been feeling very “virtual” lately. Not as ill as when on treatment but not well either. Very fatigued and grumpy (in a bad mood all the time).
I saw my doctor today. He says it is the recovery from the treatment meds that are still affecting me. He said it could last another month or so. My anemia is getting better but my WBC and platelets are still low. Platelets still about 30,000!
I am sorry to hear you are not feeling well. I have seen the name “rheumatoid” mentioned a number of times on the forum but I don’t know anything about it. I will be some research and send it to you. Glad your back home. You are such a hard worker I admire you for it.
Nice to hear from you. I will write soon.
H
Good to hear from you! Nice surprise on a Friday night.
I’ve been feeling very “virtual” lately. Not as ill as when on treatment but not well either. Very fatigued and grumpy (in a bad mood all the time).
I saw my doctor today. He says it is the recovery from the treatment meds that are still affecting me. He said it could last another month or so. My anemia is getting better but my WBC and platelets are still low. Platelets still about 30,000!
I am sorry to hear you are not feeling well. I have seen the name “rheumatoid” mentioned a number of times on the forum but I don’t know anything about it. I will be some research and send it to you. Glad your back home. You are such a hard worker I admire you for it.
Nice to hear from you. I will write soon.
H
05/08
Allô, Bea! Ne se passe rien avec moi sauf que mes plaquettes se sont descendues a 134,000 et que ça n' est pas bon. Je dois attendre jusqu'au milieu du mois prochain pour savoir l'avis de mon hépatologue sur cette dérapage-là, et aussi pour les résultats de la biopsie. La médecine tourne lentement. Du reste, j'ai décidé mettre en marche a mon hôpital la tomografie, avec l'espérance que ceux de Seville me ferront son processus FibroTC et qu'enfin j'aurais des images assez fiables de mon foie. Ecoute-moi, Bea, la colonoscopie et l' endoscopie avec anesthésie c'est rien. On m'a jeté dehors quinze minutes après. Ne t'en fais pas!
05/08
Hi Beatrice! I hope all is well. I know you are very busy. Let me know what is going on with your health and your doctor appointments.
I am feeling better after being off of treatment for two weeks now. Still adjusting to getting back to "normal" life.
Howie
I am feeling better after being off of treatment for two weeks now. Still adjusting to getting back to "normal" life.
Howie
05/08
Pauvre de toi. Brussels, Luxembourg, Dublin..c'est horrible :-] (Je t'envie tellement...)
Faut pas t'interner dans un hopital pour faire ces examens-la, tu sais? Se sont des procedes externes. Ou est-ce que tu dois aller au hospital pour d'autres raisons que tu ne veut pas divulguer?
Il fait froid au Buenos Aires. Brrrr....
M.
Faut pas t'interner dans un hopital pour faire ces examens-la, tu sais? Se sont des procedes externes. Ou est-ce que tu dois aller au hospital pour d'autres raisons que tu ne veut pas divulguer?
Il fait froid au Buenos Aires. Brrrr....
M.
05/08
Hi!
How everything going? What's new?
I've been super busy here at work. Crasy!
Let me know how you are doing.
Howie
How everything going? What's new?
I've been super busy here at work. Crasy!
Let me know how you are doing.
Howie
05/08
Hi Beatrice,
Sorry to hear about your relapse. I was successful on my second round of treatment - had to stop the first time due to thyroid problems. I did 11 months of Pegasys/Copeg and have been clear (geno 1A) for 3 years now. I was on Procrit for 9 of the 11 months due to platlets and anemia, which allowed me to stay on full strength Pegasys.
Best of luck to you, Gail.
Sorry to hear about your relapse. I was successful on my second round of treatment - had to stop the first time due to thyroid problems. I did 11 months of Pegasys/Copeg and have been clear (geno 1A) for 3 years now. I was on Procrit for 9 of the 11 months due to platlets and anemia, which allowed me to stay on full strength Pegasys.
Best of luck to you, Gail.
05/08
Breatice,
Sorry I didn't leave a note just to keep you up dated.
Please read my longer email for the details on my doctor visit. I will let you know when I hear Friday.
Thanks for writing!!!
Take care!
Hector
Sorry I didn't leave a note just to keep you up dated.
Please read my longer email for the details on my doctor visit. I will let you know when I hear Friday.
Thanks for writing!!!
Take care!
Hector
05/08
Heya Beatrice - I just wanted to send you a hug ---I'm on hug patrol today.... LOL! Anyhow - wanted to double hug ya! - Meki
05/08
Thanks for the note.
Be thankful you are still in good shape. I sure wish I had found out sooner. Good Luck to you!
Be thankful you are still in good shape. I sure wish I had found out sooner. Good Luck to you!
04/08
Just a quick note to say hi!
keep in touch and let us know how it goes as i will do the same.
we are going to beat this virus! : O )
Randy
keep in touch and let us know how it goes as i will do the same.
we are going to beat this virus! : O )
Randy
04/08
Beatice,
I'll let you know what happens in the next two weeks as I get my 12th week VL results. One of the things I do want to find out is how long I can go untreated having cirrhosis before I might need a transplant. If it should come to that. I still feel and think everything will work out. I have one of the top doctors in the U.S. guiding my treatment. I'm so lucky. So whatever new treatments might come out that might work for me I will have a good chance of being able to have access to them.
Let me know how you doing and what you decide to do as far as retreating.
Thanks for all your support! Hearing from you always puts a smile on my face.
Hector :-)
I'll let you know what happens in the next two weeks as I get my 12th week VL results. One of the things I do want to find out is how long I can go untreated having cirrhosis before I might need a transplant. If it should come to that. I still feel and think everything will work out. I have one of the top doctors in the U.S. guiding my treatment. I'm so lucky. So whatever new treatments might come out that might work for me I will have a good chance of being able to have access to them.
Let me know how you doing and what you decide to do as far as retreating.
Thanks for all your support! Hearing from you always puts a smile on my face.
Hector :-)
04/08
Merci pour le soleil, Bea. Il a fait défaut ici aujourd'hui. Mais je suis bien parce que demain c'est mon jour d'aller patiner. Je suis fou pour patiner. Lorsque je suis sur la glace, le monde disparait. Et il fait toujours beau a la patinoire.
Est-ce que tu sais patiner? Il y a des bons patinoires en France. Je les ai toutes essayées.
Quand j'ai plus de temps, je vais te raconter de ma vie dans le Val d'Oise. J'y habitais un bateau. Il y a sur le quai de Pontoise un énorme panneau qui dit: "Séjour maximum 48 heurs". C'est a cause de de moi. Sept ans supportant l'américain etait trop pour les bons gens de Pontoise :)
Mike
Est-ce que tu sais patiner? Il y a des bons patinoires en France. Je les ai toutes essayées.
Quand j'ai plus de temps, je vais te raconter de ma vie dans le Val d'Oise. J'y habitais un bateau. Il y a sur le quai de Pontoise un énorme panneau qui dit: "Séjour maximum 48 heurs". C'est a cause de de moi. Sept ans supportant l'américain etait trop pour les bons gens de Pontoise :)
Mike
04/08
Beatrice,
Thank you for your very kind note! You made me smile.
This treatment has been a roller coast ride for me. I'm trying my best to do this treatment but unfortunately I may be a “non responder”. Next week will be week 12 and I will see what my viral load is. It will be disappointing if I fail to response to therapy. But I will pick myself back up and find the next best option. I have great doctors and so many good friends who are supporting me through this process.
I hope you are doing well. I know you been through a lot. How is the retreatment option looking to you? It sounds like you are a “relapser” so you are a good candidate for retreatment. I wish you all good thoughts and success if you decide to retreatment.
Best.
Hector
Thank you for your very kind note! You made me smile.
This treatment has been a roller coast ride for me. I'm trying my best to do this treatment but unfortunately I may be a “non responder”. Next week will be week 12 and I will see what my viral load is. It will be disappointing if I fail to response to therapy. But I will pick myself back up and find the next best option. I have great doctors and so many good friends who are supporting me through this process.
I hope you are doing well. I know you been through a lot. How is the retreatment option looking to you? It sounds like you are a “relapser” so you are a good candidate for retreatment. I wish you all good thoughts and success if you decide to retreatment.
Best.
Hector
04/08
(derniere partie)
Tu n'as peut-etre pas trop souffert les effets secondaires du traitement parce que tu es forte. On voie ca dans ton portrait et ta carriere. Moi, je n'ai jamais ete malade auparavant, et j'ai peur de la douleur. Je crois que, si je teste dans le stage F1 ou F2, je vais remettre le traitement jusqu'a il y aient des meilleurs medicaments.
Ou habite-toi en France? Moi, j'ai vecu sept ans a Pontoise, dans le Val d'Oise. Tu le connais?
Tu n'as peut-etre pas trop souffert les effets secondaires du traitement parce que tu es forte. On voie ca dans ton portrait et ta carriere. Moi, je n'ai jamais ete malade auparavant, et j'ai peur de la douleur. Je crois que, si je teste dans le stage F1 ou F2, je vais remettre le traitement jusqu'a il y aient des meilleurs medicaments.
Ou habite-toi en France? Moi, j'ai vecu sept ans a Pontoise, dans le Val d'Oise. Tu le connais?
04/08
(deuxieme parte)
En ce qui concerne les medicaments a base des herbes, ils ne sont tous genants. Il est vraie que les chinoises emploient toute sorte de chose dangereuse, mais il y a des bons nutriments aussi, comme le silibin, que tu m'as mentione, le PPC (phosphatidylcholine), et les acides gras comme le gamma-3 y -6 dans l' huile de poisson. Ce sont des supplements a la nutrition qui font du bien au foie.
En ce qui concerne les medicaments a base des herbes, ils ne sont tous genants. Il est vraie que les chinoises emploient toute sorte de chose dangereuse, mais il y a des bons nutriments aussi, comme le silibin, que tu m'as mentione, le PPC (phosphatidylcholine), et les acides gras comme le gamma-3 y -6 dans l' huile de poisson. Ce sont des supplements a la nutrition qui font du bien au foie.
04/08
(Premiere partie)
Merci pour les deux notes, Bea. mais c'est juste ce dont j'ai peur: qu'ils me mettent quelque etudiant pour faire la biopsie. Mon hopital enseigne, et ils essaient toujours de te mettre des etudiants pour faire les procedures trop routinieres pour que les medecins s'en ocuppent. Mais je vais insister que celui qui le fait ait de l'experience. Ne t'inquiete pas. De toute facon, la biopsie n'est pas un bon moyen de voir le foie. Il est trp invasive, et donne un echantillon trop petit qui n'est pas representatif de tout l'organ. Le FibroTC va le remplacer.
Merci pour les deux notes, Bea. mais c'est juste ce dont j'ai peur: qu'ils me mettent quelque etudiant pour faire la biopsie. Mon hopital enseigne, et ils essaient toujours de te mettre des etudiants pour faire les procedures trop routinieres pour que les medecins s'en ocuppent. Mais je vais insister que celui qui le fait ait de l'experience. Ne t'inquiete pas. De toute facon, la biopsie n'est pas un bon moyen de voir le foie. Il est trp invasive, et donne un echantillon trop petit qui n'est pas representatif de tout l'organ. Le FibroTC va le remplacer.
04/08
Alo, Bea. Merci pour le petit mot. Mais qu'est-ce qui est reellement survenu pendant la biopsie? Je veuz les details :)
04/08
Great pic!!! Very cool! Wow!
Yes, I knew I had been exposed to Hep B &C. But I didn't understand that it was something to worry about. Dumb me!!!
Then a year ago I had a blood test showing I had low platelets. That was the first time ever (38 years!) that I had any abnormal blood results. Then a biopsy indicated I had cirrhosis!!! I was in shock for a few months. I have great doctors feel at peace most of the time and now I'm on my 11th week of PEG/Copegus.
I'm so sorry to hear you relasped at the first treatment.
Are you going to try the same treatment or something a little different?
I hope you clear the virus this time! Anything I can do to help. Let me know.
Thank you so much for writing! Stay positive!
Hector
Yes, I knew I had been exposed to Hep B &C. But I didn't understand that it was something to worry about. Dumb me!!!
Then a year ago I had a blood test showing I had low platelets. That was the first time ever (38 years!) that I had any abnormal blood results. Then a biopsy indicated I had cirrhosis!!! I was in shock for a few months. I have great doctors feel at peace most of the time and now I'm on my 11th week of PEG/Copegus.
I'm so sorry to hear you relasped at the first treatment.
Are you going to try the same treatment or something a little different?
I hope you clear the virus this time! Anything I can do to help. Let me know.
Thank you so much for writing! Stay positive!
Hector
