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Post It
Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
03/09
yeah well thanks for sharing  
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Avatar universal
03/09
Just a quick note to say hi!  Sounds like you been on treatment for awhile. Is it working for you? I wish you the very best and just know, there are people thinking of you
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476246 tn?1418870914
03/09
Great that you found out in good time! I wish you good luck with regrouping and preparing for the next go at it! I was UND at 8 weeks and thus extended to 32 weeks. Was still UND at 26 weeks.
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476246 tn?1418870914
03/09
Thanks for asking! Am going through a rough patch again, but only have 9 days of meds left.... the light at the end of the tunnel is getting brighter by the second... lol ... How are you doing yourself? Are you getting ready for treatment again? Wishing you all the best, Marcia
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548668 tn?1394187222
10/08
Thank you so much for supplying the link re the niacin :-)...  On the bright side, I'm in my 4th month and have not become anemic and am on high dose riba.  I was, however, starting to question the mega-dose I was on.  Many thanks!!!
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476246 tn?1418870914
10/08
I'm sorry you had to stop tx, bassman. that sukks so bad! Marcia
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217229 tn?1192762404
10/08
Never heard of that dude... Hopin' you're alright. Hugs!
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476246 tn?1418870914
08/08
Minor sides, so far. Fatigue... have had that since February anyway. Muscle aches, brain fog on and off. I sleep like a rock every night. I'm drinking about 3 liters of water per day, am taking my long list of well researched supplements and have great appetite. No 'real' reactions after the shot. Of course my body kind of feels krappy all the time, but it's not anything major I can't handle. I really pray it will stay this way. And I pray that you get your drop and even UND by week 12. Than you can finish your treatment and get SVR and it will be done once and forever!!! Marcia
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476246 tn?1418870914
08/08
Bass man!!! ****!!! Sorry my language... What a bummer! It's great that you have such a positive attitude. I don't understand why you go on 5 more weeks, if you already know you have to stop??? Or do you mean that you will stop if not UND??

I wish you all the best. So sorry about these news.

Hugs,

Marcia
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412873 tn?1329174455
08/08
Hi Bandman,  I was just wondering...you personal opinion on the whole flax oil thing.  Do you think the fat in 2 flax oil pills is enough to help with the riba absorbtion?  Or should we try to take it will food based fat.  I am thinking the flax would make my evening dose easier..Thanks for your thoughts,  Isobella
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476246 tn?1418870914
08/08
I did... Some weird a§§ krap...He's back on, but with some kind of a better attitude. People are getting anxious about having his thread disappear though. I guess it could be quite misleading for some newbees.
I am sooo excited to hear what your VL is going to be. Hopefully UND!!!!! Am rooting for you. Marcia
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476246 tn?1418870914
08/08
I just wanted to say it's good to have you back on the forum.

Marcia
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476246 tn?1418870914
07/08
Hi, of course I remember you. I was actually going to drop you a note yesterday, as I haven't seen you around. Our thoughts must have crossed each other. It's good to hear your tx is going well so far. I have my biopsy tomorrow and should be starting tx soon, too. Am off to the hospital now to take the blood tests. Take care.... Marcia
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476246 tn?1418870914
07/08
Hey, good to hear from you. Wow, you have started! I'm glad to hear that so far so good. I won't start until sometime in August. I have my next appointment the 5th. Am waiting to be called in for a biopsy. So I guess I will be able to enjoy the sun until then. It's actually good, as my hubby doesn't have too many gigs this July, so we can enjoy some of the summer together. Wishing you all the best! Marcia
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476246 tn?1418870914
06/08
As to mr. sadd. I just discovered yesterday it is an elderly woman, maybe not too familiar with cyberspace usage etc. But now her note is mysteriously gone from my notes. ???? am  confused
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476246 tn?1418870914
06/08
Ha! A bass player! My bro is a jazz musician .. upright bass. My husband is a funky a$$ bass (bass guitar) player. Afro funk, fusion kinda stuff. Since a few years he is only doing his own stuff. And not to end the trend, my second son is studying music... bass and piano... I was heading to Berklee Boston in the 80ies to study music to, singing. Got stuck in Indonesia and started a family instead

What kinda music do you play?

Marcia
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476246 tn?1418870914
06/08
I did get a note from sadd. Weird!!! Great you're a twin. My girls are best friends and even share an apartment together. They are too similar to be fraternal and not similar enough to be identical. We haven't performed a DNA test to find out, but might. It is always good to know, if there is an emergency. But now since we know about the hcv, only the second born can give to the first born. I was just discussing the factor that only the first born got HCV. I think it is because she is the first born and probably got blood onto her at birth. For the second one, the passage was already cleared. Sorry to bore you with birthing details. There is one question I keep wanting to ask you, as I assume you are a musician. What instrument do you play?
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476246 tn?1418870914
06/08
Can't find your poll, you meant on hcvsupport.org, right?

I have referred so many people to that sight and still do. I love dr. dieterich's presentation. It kind of brings urgency into perspective. And it is important to let ppl know about it. A lot of newbies don't think that treatment is so important, as they think one can cure it with alternative meds. Or they think that lets deal with this in a few years time... I do agree though, that some ppl can wait, if they don't have much damage, yet. But for me it's the sooner, the better. Marcia
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476246 tn?1418870914
05/08
Glad you were able to work the miso. Now you can start experimenting with it. Add a little chili, but be careful not to get it in the wrong pipe, happens to me a lot. Sorry to hear the probs with your doc and the nurse. How annoying!  I'm having my frist app. and day at hospital to take blood, cardiac etc. in two weeks. No, we don't get to chose our doctors, but we get to chose the hospital. My GP and I agreed to refer me to DK best. So I should be in good hands. Here, even though you see one hepatologist, they work as a team. It is the university hospital in Copenhagen and it is the only one with a specialized hepa clinic. It's in my 'hood', only 5 minutes drive from my home. 15 minutes walk. Couldn't be more convenient. I should be starting tx mid-July.
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476246 tn?1418870914
05/08
Boil some water (the amount of miso soup you want to eat) and add some pepper or cayenne powder. You can grate a little ginger in. Add some light veggies like bean sprouts, some greens, sliced radish and a little tofu cut in cubes, if you like that. Vermicelli is also tasty in this. The miso is only added at the very end and it is not supposed to be boiled. Take about one table spoon of miso per cup of water, not more. Add tamari or other soy sauce to taste. You can also squeeze a little lime or lemon. After a while you can totally improvise of what you want to put in there. As a thumb rule, it tastes better, if you keep it simple. Not too many different veggies. Marcia
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476246 tn?1418870914
05/08
I cannot imagine it went bad in the car. The main ingredient in miso is fermented soy bean. So yes, a bit funky...miso funky. It depends which kind of miso you buy though. I found the darker the miso the funkier (hatcho miso). I prefer mugi miso. If you don't like it either you can use the very light one, shiro miso. It is also called sweet miso. Would not mix miso into normal soup. Always make it on it's own. I'll give yu an easy recipe in the next note. Marcia
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493068 tn?1224765315
05/08
Just a quick note to say hi! What questions do you have for me?
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487070 tn?1313665952
05/08
Just a quick note to say hi! Bandman, just a suggestion here, I was told I would have to wait to have my intial visit w/ the Gastro 6 months. They ended up putting me in with one of the assoc.in 4 weeks whom I am very happy with so far. It might be worth the try to ask. Just trying to help. I know how stressful this gets to be. Once I DID go, things rolled along rather quickly I must say.Take control of things.I educated myself to the best of my ability so I had a general idea of how things should go. I asked questions along the way too! Good luck
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476246 tn?1418870914
04/08
Thanks for the link, I'll check it out... It's funny you mention that with the spelling. Been noticing the same since a few years now. It started when I had 5 amalgam fillings changed. I got mercury poisoning and was in a bubble for about 2 months. Blurry vision and typing badly. It was as if I was dyslexic. I had some acupuncture and massage lymphatic drainage treatments and took a lot of Chlorella and got out of the bubble and back into the spelling game. But I can see that it still happens now and then, and lately more often. I wonder if the fogginess of hep c palys tricks on the brain and triggers some chemical reaction...  (you see, there I did it...) I wonder, maybe it is the coordination between left and right. I wonder how bad it will become once on tx... Time will tell...
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476246 tn?1418870914
04/08
Just a quick note to say hi!Best of luck to you too. So apology accepted? Would never want to diss anyone who is serious in this forum, that's not why I'm here. We're all in this boat together. I love this forum, everyone is so caring and helpful.
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476246 tn?1418870914
04/08
Sorry, I did not mean to attack you. I was trying to make a joke about the Judd having been cured by milk thistle. and thanking the ST. Louis Hospital. I read all your entries and am totally on your side. Sorry, my sarcasm was so not directed to you.
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