Just a quick note to say hi!
Lori, I am going through the exact symptoms as you. Do you have breast implants or amalgam fillings in your mouth or root canals, dental braces, dental implants etc.?
I was reading some of your post (but not all) and was wondering if you have headaches with everything else that is going on? I just found out that I have Chiari Malformation 1 and it comes with every symptom that you have, which I also had...I had my thyroid removed 10 years ago so that is part of my problem also...But, is is amazing what CM1 does to you and doctors never firgure this out until you have a brain MRI that will show this...That is how I found out and it finally explains how and why I have felt the way I have for years!!! It's totally possible that this is not what you have but it is worth looking into! Hope you figure it all out (unless you already have which would be great)!
Try looking into hyperparathyroid. Owns like it to me and my labs are similar to what you describe. It's the usual suspect behind high calcium and can involve pituitary
Wow - are medical hx are similar. I had Lyme (dx at Columbia U) 10 years ago, hypothroidism, high RH factor, high Ca, persistently low vitamin D, fatigue, balance problems, flank pain, memory/cognitive concerns, and neuropathy. All that and I still am able to work full time and have a reasonable life - but it is getting harder. I have seen multiple PCPs and 2 endo doctors with no one able to piece it together. I have an appt at Mayo next month. I would love to learn from your experience - if you have any new information to share.
Prolonged elevated calcium destroys the kidneys.....check it out.
You deserve a big bear hug!
Hey Lori....read this medical article ....and why you should not wait to further investigate your PTH/Calcium condition...it only gets worse and the longer you wait could permanently damage the bones and kidneys...
Hi Lori! I have been very lucky in that my Lupus is mild at this point and under control with medication. Fibro affects me more but it is very hard to distinguish between them. My Lupus primarily affects my hands and knees, fatigue, red rash on face and muscle pain.
I was reading your post on the thyroid forum and wanted to point out that fibromyalgia can also cause the neuropathy and other issues. I also have mega auto-immune diseases - my immune system is always in overdrive. I have had ulcerative colitis, hypothyroidism, lupus and fibromyalgia. Hope you get answers soon.
I read some of your history and my advice would be to check out the website, www.parathyroid.com and then contact Dr. Norman.
I suffered a long time with what I thought was arthritis, just getting old, aching, and then I began to have kidney stones. My urologist did bloodwork and found high calcium and high PTH. A sestamibi scan was done and found positive, but from my understanding alot of people get a negative scan but still have a parathyroid adenoma. I have just returned from Tampa to Louisiana where I had a large parathyroid adenoma removed from my neck by Dr. Norman. I am already feeling alot better. Please contact them about your history as they can probably help.
Lori--Don't know if my first attempt got through, and don't have time to read all the other responses---someone may have already mentioned this. But by all means, go immediately to parathyroid.com, and read what Dr. James Norman has to say. I'm going through this myself (two tumors caused by the parathyroid glands), and it
sounds as if you may be similarly afflicted. Please just read the website, and even talk
to him, or anyone on his staff. I think you will
be very glad you did. Good luck, and please
let all of us know what you find out. hudtom
Thank you for your kind words. I'll try to find you in the lymes forum.
The personal messages let you put as much as you want w/o any word limits. Also, other people can't read what you are saying. So it can be very personal.
God bless, Kara
You're in my thoughts today. I wanted to check to see how your mother was doing. I can't remember how I replied to you, but older people can have an elelvate ANA in low titers. 160 is considered low.
Hi Lori: I too went through the same thing. Being an RN I really researched it as I was unable to even get out of bed at this point with a level 6 ferritin. I spoke to other docs, a low ferritin needs to be treated it is not good to leave it low. You are anemic if it is too low. The reference range with ferritin is to large, and it should be 60 or more at least or you need iron. I am going to have an IV of iron to jump start me, and get me out of bed, then take supplements after that, as they can take way too long to get into your system like 6 months or more
Lori, please read parathyroid.com. If you have high calcium, high prathyroid levels and low D, you have a parathryoid tumor and it needs to come out. The sestamibi scan will come out negative if it's not done correctly. Please read parathryoid.com throughly. Vitamin D supplements will never be enough and your health will go down hill. Please read Dr. Norman's website parathyroid.com
Hi, Alot of your symptoms sound like Candidis. That is what I have and I have all those symptoms. I have the pins and needles real bad too, and I think it is related some how.
I have been taking asidopholis Proabotics and that is helped quite abit. I also take magnezium for heat flashes which I think are related. I think its all related but not positive.
Just a quick note to say hi!lupus,IBS,autoimmune,fibro and yes even HIV are all false diseases.AIDS Inc :Scandal of the Century (John Rappaport) Our doctors are not going to help you as you will find out.All the above diseases are parasitic and our corrupt medical industry stopped treating the root cause(parasites) back in the 30s.One doctor in NYC that may help is Dr.Leo Galland but just to walk in costs $800. and I have already wasted thousands on famous quacks so my wife cut me off from the cash even though her and my daughter are infected they dont beleive me and refuse help
was wonder how you are doing? Just saw post today from a while ago. Little info I think you endo who says you have parathyroid tumor is correct. You need a sestimibi scan done. This is the only test to find it. Make sure you have someone who know how to do it !!! Go to parathyroid.com great info there if you have high calcium and PTH levels over 20-25 you have a parathyroid tumor go to this site!
Just a quick note to say hi! I also have inflammatory arthritis, fibro, osteo arthritis etc. Rheumy says it's fibro. Who knows, I just live one day at a time. Hope your well. Shelly
Just a quick note to say hi! I have Sjogrens with high RF (highest was 600 at one point)....positive ANA, Positive for Sjorgrens , but not primary...still waiting to see what other autoimmune connective tissue disease I have... Oh yes,, high ESR...for inflammation. Rhemy thinks its more on the line of Lupus... How has your progress been?
I was wondering if you ever found out anything about your kidneys. I too see mucus in my urine and have bubbles at time. All my urine test is normal, but that is the only thing I have had done.
Just a quick note to say hi!.....u have no idea how much I can relate to that statement.Drs need to ask their patients in order to "treat" us correctly.There r some good ones out there...it's finding those few that is the problem.
Welcome to our Neuro community! : ) "selma"
Welcome to our community!
Hello I have the same issues as you do, low bun and high calcium. Went to Mayo but they could not find out what it is, did you find out what is wrong?
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me.
Lori707... Hello, I'm so sorry for all your difficulties..
I responded to your post re Help>Parathyroid surgery.. I hope it is helpful to you..I live in the Northeast too.
I was helped up here... however, if you have alot of difficulties, I really think emailing Dr Norman is the place to start. Have you read parathyroid.com? Please read my other post re more ideas,,, Keep me posted ok> ? Softy
You're quite welcome. I'm sure you'll find the various forums very informative and all of the people very friendly and we hope that you participate and share your knowledge and experiences with us.
Welcome to the anxiety forum!
Welcome to our community! Kande
You're in my heart and mind.
Hello! Just a quick note to say welcome to the MedHelp Heart Forums! I hope you find the site informational and supportive. Feel free to ask questions, post, browse, send "notes" or private messages. Welcome!!
Welcome to our community!
Just a quick note to say hi! I am new here too, hope you get better soon.