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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
06/10
Thank you for everything! This was my first time posting and you answered!  I have seen the neurologist and pain management and have an appointment coming up soon with the neurosurgeon to discuss the surgery details and get it scheduled.  The neurologist told me it would be a frontal approach with fusion and plates.  I also have many other health issues the main being heart issues, my GP told me to make out my will and get my affairs in order before I have this surgery.  I have been putting it off for 5 years and now have permanent nerve damage.  Not helping my fears but I like doctors that are honest and my ability to do much of anything is very limited now and the pain is non stop so I have no choice. Thank you so much for writing!
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1328256 tn?1275035895
05/10
I am  Disguted with  US  Insurance playing  doctor and  having a negative effect on the quality of life. I am now  4 years pain free and  it will not change . complain to  Obama I am serious  stop insurance companies playing Doctor . YOu can come to Canada and  have tha surgery  for  under $2000 plus hospital Charges .We now allow Private surgery . on a no wait basis . THe pain of botched  C spine  surgery is not an Option
I Pray you have  No pain  
Peter
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Avatar universal
01/10
Dear Proud48,
we are small and isolated voices but I hope that one day we will be strong enough for all these sufferings to be taken into account by medical and pharma research. I am sad to recognize that today all people suffering from after treatment are really neglected by medical authorities. I make a survey of all novelties and will let you and all members know when I find something new,
Blessings,
Melvil
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Avatar universal
01/10
Dear proud48,
I was absent a long time from this forum due to personnal activities. I wish you a really happy new year 2010. I think we have all the same dream and we would give so much to make it become true. From the last time, I have no new tracks. My wife took some granules of micronutrients to reinforce her immune defense, but it is too early to observe an improvement.Moreover, they are not already sold on the market. She will try also soon Q10 in gels, because she has a very low blood pressure (8-9) that impairs a lot her energy. For the others symptoms, no new treatment that I could have heared about. Sorry not to give you better news, we are in a quiet period and I do not have read novelties in this area. But when I get some, I will share with all of you.
Blessings,
Melvil  
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Avatar universal
11/09
Just a quick note to say hi! Thank you, I believe they are just beginning to understand the long term effects of these drugs. Thank you for your kind words and your faith. Hugs/ Dejavu
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Avatar universal
10/09
Just a quick note to say hi! I hope you are okay ,these companies have to start being held accountable. Tale Care :O)  I just found this note..  
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667735 tn?1253200103
09/09
Hi It has been awhile, I now have Chirossis, and I have tried 2 times with the Interferon with no results, the viral load went down but I am still a non responder, now i am seeing another doctor guess i will run through all of them, I am super depressed, still working a part time job and still sleeping OK. I am drinking O'Douls non alcoholic beer nerves are shot, no one to really talk too, no family..Well how has life treated you? Any thing change?
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Avatar universal
09/09
Just a quick note to say hi! Hi Proud48.  It's Grateful29... It has been quite some time since I wrote.. computer problems and then finally a change in server.  Also, I was busy working on my health issues. I had trouble walking with pains in my legs and blaming a lot on side effects from treatment. X-rays showed Osteoarthritis. Flared up after treatment{became evident} My e-mail ***@****  write and let me know how you are doing Thanks Patti
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476246 tn?1418870914
08/09
I'm so sorry to hear bout the surgery. I will be thinking of you and sending prayers your way. May it be successful and alleviate your suffering. I'm doing really well. Am well on my way to SVR (my 18weeks post PCR was stil negative). Have gotten all my energy back, am just lacking a little physical strength and brain capacity. :-) Hugs, marcia
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476246 tn?1418870914
08/09
I hope that you are doing better with all the horrible post tx side effects you are dealing with. I really wish that you may finally get a break. Hugs, Marcia
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Avatar universal
07/09
Just a quick note to say hi!

Dear proud48's,
Thank you for your words and hope that your health is better today. We were so busy these weeks that we did not had lots of time to share with friends on Medhelp, but I will come back soon to summarize what we did and what could be of interest for these symptoms (from our experience and point of view). Fight is long-term, but never we will lie down.Talk to you soon,
Melvil
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156741 tn?1212748547
06/09
Just a quick note to say hi

How are you?  I've been just trying to incorporate into my daily routine.  I'm not 100 % there with my health drs. don't find anything with me but I still feel pains on my side.  Well write if you can?  A question have you been shedding hair.? for some reason I'm shedding hair big time and kind of concern?  I will try to test for Thyroid problems but doubt any of that I have gain weight and can eat pretty much anything but do have to watch it if I exceed to much.. Hope all is good with you..  Pearl
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Avatar universal
05/09
Thank you, Proud. Tulips, hyacinths and daffodils have a special meaning to those of us who are snowed under through the winter. They're such a joy when they appear.

I have a lot of showy flowers but I most love small, delicate flowers, like forget-me-nots and lily-of-the-valley. The latter, though, are impossibly invasive, as I found out the hard way.

Best regards,

Port
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Avatar universal
04/09
Just a quick note to say hi! Hi Proud48 It is me Grateful29 {Patti}  Yes, I can not wait for the results of my blood tests that the lab took immediately after my visit with the doctor yesterday.  I am so tired all of the time... I am working hard now as I have my mind set, on losing wt... the 20 lbs I gained after treatment...Well, the Lexapro does increase your appetite.  My memory is not good and that bothers me and I drive my husband nuts.  THank you for your friendship... this is new to me and I am not so great on the computer.  I hope this gets out to you. I promise to share the results of the tests. Take care and God Bless Patti
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Avatar universal
04/09
Dear proud48,
Thank you for your note and for your blessings. Your case is so similar than what happened to my wife, who during years found no other testimonies of victims of IFN sides effects, and was alone in her fight. We really hope that you will recover, step by step, an optimal health. Now, she knows that what happened to her is not "psychologic", contrary to what doctors concluded when they found no biological disturbances. She always fight since 8 years now and we have good hope to relieve all these symptoms, step by step, with the help of specialists and by reading all new scientific papers and books. She will try Q10 soon, we will let you know if this one will have positive effects on hypotension ans exhaustion.
We wish you all our blessings,
Warm regards from France
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Avatar universal
04/09
Just a quick note to say hi!
From I have read on the net Locoid  is beased on steroids so I guess this wht my dermatolof prefer Elidel, He belives that it is better to avoid steroids.
Thank you, Jack
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Avatar universal
04/09
Just a quick note to say hi!
Thank you, I would be glad to stay in touch.
Jack
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Avatar universal
04/09
Thank you for your sweet words.  I'm glad, in a weird sort of way, that their are others who share the after effects of the treatments...it helps make it easier to accept that it didn't just happen to me.  Take care and keep in touch.  Jennifer
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Avatar universal
04/09
Just a quick note to say hi! Do you think that Locoid is better then Elidel for Rosacea ? none of the 2 dermatologs I met mentioned this medicine.
Thank you, Jack
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Avatar universal
04/09
"My dermatologist told me that a new cream is waiting FDA approval any day" - what is the name of the cream ?
What is Ocular Rosacea ? in the last year my vision became very quite weaker ? Is it Icular Rosacea ?
I am trying Elidel now, hopw it will help, I am affraid because some doctors told me it may cause cancer (while some others said it won't).
Thank you,
Jack
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Avatar universal
04/09
Just a quick note to say hi!
Sorry that I read your email quite late, I would be pleaesd if you continue to update me about new therapies and experience.
Thank you,
Jack
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276730 tn?1327962946
03/09
Just a quick note to say hi! Thaan you so much for your well wishes! iM NOT OUT OF THE WOODS YET!

Hoping you are doing well!

Thanks SO much
Charm
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Avatar universal
02/09
Just sending you a hug and hoping your weekend goes well.
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Avatar universal
02/09
http://www.youtube.com/watch?v=AyeFcOVA0zw&eurl=http://hepqld.asn.au/content/view/146/1/

try copy and pasting in browser, or google hepc  on youtube
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156741 tn?1212748547
02/09
Hope you feel better soon!  Remember I told you I had a lot of pain on the side and you told me that you sometimes felt it too!!!  Well, I started drinking Camomila tea a cup of tea in the morning and a cup at night.  That really did help with the pain I used too feel like something was eating me inside of the area of the liver.  It's gone now.. and I try to be as relax possible and watch the diet of the food .. I stay away from sugars ... these tips are helping me hope they can help you too!!!  Take care and keep me posted ok.. May God bless you and have faith that things will get better!! Pearl
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156741 tn?1212748547
02/09
You're in my thoughts all the time, but especially today.  I was wondering how are you feeling, has the problems lessen some.. After a year  1 1/2 of post tx I feel much better.  I hope the meds have wear out from your body by now... A prayer for you.. !!!
Pearl 06 ..  
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Avatar universal
01/09
Thank you Proud and Congratulations to you too!!!
Now time to gain your strength back and get back to
a hep free life  (that goes for me too!)
enigma
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467897 tn?1240251837
01/09
Thanks Proud!! That's a two-way street, okay? I can't wait to hear your results.
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87972 tn?1322661239
01/09
Hi there, Proud;

Thanks for the good wishes, and nothing but the best of luck on your results from Lab Corp. I share your frustration regarding the wait… I hope they bring you good news as well. You should have them any day now; be sure to let me know how things turn out, OK? Take care, and have a great day—

Bill
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467897 tn?1240251837
01/09
Good to hear from you Proud! I pray you have SVR and never have to use that form of chemo again  
I'm still going through all the procedures for transplant evaluation; so far results are good for the surgery. Not yet done though, gotta have the 2 lovely ones tomorrow (and I'm sure you've had these before...) colonoscopy & UGI endoscopy. In the last 2 weeks I have spent 6 days at the hospital & clinic. Really have my head spinning then throw in the encephalopathy and I am truly a space cadet!! Loopy as all get out, well more than usual (ha ha ha).
Proud hang on to your sense of humor, it's amazing how good a belly laugh can feel when times are hard. =^..^=
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276730 tn?1327962946
01/09
Just a quick note to say hi! Im a nervous wreck too I have to go for PCR in a month or two this will be the big 3 month!!
I wish you luck..
Your not alone,,,trust me...I have anxiety already......

Carlos is my main main always has been always will be.
Glad it cheered you for awhile!!
Keep us posted on PCR!! GOOD LUCK
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Avatar universal
01/09
Just wanted to let you know I can relate. If you ever want to talk, you know where to find me. I am SO HIP to your struggle! the waiting is killer! But any good news is worth waiting for! Good luck! Just think how good that dragon's hide will look on your wall! :) ~Melinda
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