Thank you. Wow, that's a long time to wait. It must be driving you crazy. Keeping my fingers crossed for you. Post as soon as you get news!
I saw where it said I had a note from you on my e-mail and when I went to see it It wasn't there? I have no idea what went wrong? Anyway I am trying to make contact let me know if you see this? OK? I am super depressed and waiting for my meds to arrive by mail. 2nd time around and now that I have early Chirossis I keep thinking the meds REALLY won't do me a bit of good and a couple years from now I will be worse and on and on, till death and I am terrified, really ...I am starting to go crazy from being alone ..I do have a woman roomie but she works all the time and I am not close enough to express all my fears, you know? Somtimes 2 or 3am I will wake up, heart pounding and crying..It is the most awful thing I have been through. Any ideas for me?
Hi This is Cathy , thanking you fro asking me to become a friend. We are the same age, I am waiting to start Interferon for the 2nd time, 5 yr's ago was the beginning. Now the liver biopsy saids I have early Cirossis and I am scared scared scared. My husband left me 7 months ago for a 38 yr. old pillhead, and he don't call or even care. After 18 yr's of marriage being sick I am having a very hard time getting over all this drama in my life, 5 yr's ago I wasn't this bad. Now I am SO tired all the time and I am so depressed all the time. I am so afraid of this disease and what it does, you know? Tell me your story...
Thank you for the note. I am keeping you in my thoughts and prayers. I KNOW VERY WELL the feeling of being full and bloated!! I feel like that everyday......At least you know why you feel liek that! I hate it, somedays I feel like I am going to explode, and some days are not too bad......Sending positive thoughts and prayers. Have a GREAt weekend!!
Peace and Blessings
You are in my thoughts and prayers. I am wishing and hoping with you!!! Let me know when you find out. Gotta stand on that hope! without it I think a lot of us would be going insane! lol Thanks for the thoughts, things are very tough for me right now, and I feel like I just am going to lose it sometimes. I just TRIED to eat, and tried is the word. It was horribly painful!!!
Keep the positive thoughts and Faith and wait for that good news. Im here waiting with you......Don't forget good news for people that went ahead of me, is also much more hope for me too = ))) (((((((((((((((((BIGG HUGGS))))))))))))))))))))))))
Can't blame me for wishful thinking tho!! lol I know after reading the comments I was like, wow was I that nieve? I guess it is the hope in me, but I tend to stray off the path of reality easily too. It is just so hard to see putting my life on hold for so long, then even afterwards there may be a long term of side effects, and it may not even work! Or for a short time. I have so much damage already and I will be 38 next mo. Im really like why am I am even going to put myself thru this? I go back and forth on the decision. Now Im back to no no no!!! Im a brat, but I usually fight liek a 2 year old, then do it anyway! lol Just seems so hopeless, at least for a geno 1?
You didn't bum me out, I knew my own answer lol
Have a great night
Happy New Years, Much Peace, Happiness and Blessings your way,
Thank You for the note. I am probably going back in the hospital today? I am awaiting my GIs callback. They put me on flagil/cipro for colitis and bacterial infection in colon. I took meds for 6 days including the 6 bags IV I got. The pain has gotten worse. I am on major strong narcotics and I have taken extra and still doesn't help the pain, so I see admitting again in my near future. Prob need a stat colonoscopy.......Thx for the thoughts and prayers
Really? You have a weird tingling sensation too?
I am doing quite well all things considered. Trying to enjoy the holidays. I am going today with my family to see A CHRISTMAS STORY at this beautiful old art deco theatre that Hewlett Packsrd restored. My husband loves old movies so I think it is important to do something for him once and a while. This TX and its sides can get all consuming and make you very self absorbed. I had a Cat scan Friday because of this Pain under my ribs into my back. I don't know the results yet but it does scare me thinking about what these drugs are doing to me.
I hope your having a happy holiday season and a healthy New Year!
Happy Holidays! Along with my best wishes for you & yours over the season. I have been back around more so lately - da hubby got me a new laptop (17") and I've been able to spend more time online since we got cable internet. Used to be one dial up connection - one computer - and we had to share. Now he has his own & so do I - ta da! Really it's been sweet to have my own again.
Started the evaluation for liver transplant last week - wow what a battery of tests! I'll drop you more info later. Have you been watching the "cookie" thread? It's been hilarious (I think it's on the hep c forum)
Thank you for your kind note and candid concerns about never being the same again. This does really worry me. These meds are killing so many things good and bad. My doctor apologized for poisoning me. I don't even like myself anymore. I am so moody and fly into rages that are hard to shake
Today Thanksgiving I was in the back seat with my twins fighting the whole way over to my Sisters house I could hardly stand it. They have noticed that I yell more now. I hibernate in room a lot. I was never this bad.
Before TX I was running Marathons, taking Zumba and Pilates. always active. Now I get winded going up the stairs. I have gained 25 # and can't make any plans in advance because I don't know how I will feel. My brain is barely functioning and I fear I wont be the same
You're in my thoughts SO I WANT TO SAY HAPPY THANKSGIVING
MUCH LOVE AND PRAYERS
I hope you have a Happy Thanksgiving. Keep in touch.
Love In Christ,
Happy Thanksgiving! Thank you for your note!
Keep In Touch. Be well.
Happy Thanksgiving to you too. I hope all is well with you.
Thank you for the greeting. This will be a special Thanksgiving with a lot more introspection than usual. I too work in the medical field and am about 25 weeks into 48. I can't imagine not having this as a resource to prepare and go through TX with.
How long post TX are you and what are your sides? This TX seems to change who you are and I too wonder if I will ever feel the same again. I used to be very athletic and always busy with the kids and work. This has really taught me to slow down which I think is a good thing. Did you tell your co-workers and where you able to work through out TX?
Have a great Holiday and we can be thankful for all our blessings.
Wishing you lots of Love and strength,
Happy Thanksgiving! Thank you for your note what are you doing for Thanksgiving this yr.? I can't believe that the holidays are here again it seems like christmas was like 6 months ago not a yr ago time goes by so fast!
The other Hep C forum that I frequent is this: http://*************.org/c/Hepatitis-C/forum
It's not quite as technical as this forum is but there are some good people there too.
Have a good weekend!
Just a quick note to say hi! I sent you a friend request! How are you doing today? Any big plans for the Holidays?
Hey there, I just copy pasted it and it took me straight there... Anyway, here's the actual site address and you should be able to find your way from there.
Once you get there you will see a heading called Post Treatment Experiences and away you go. I'll add this to the post as well. Hope you find something that helps over there!
You are in my thoughts and prayers. I hope we can keep in contact. I am 48 years old...yourself? How has it been since you had txs.?
Love in Christ,
Welcome to our community!
Thank you for responding back. When I mentioned it to my dr he said he'd never had this complaint before. I wish i would of found this site while on tx. Hope u r doing well today. Hope we keep in touch.
Thank you for your reply. I did have the RA factor in my blood and had some joint pain before TX along w/Thyroid issues. It was all the autoimmune issues popping up that led me to TX.
Now 6 months into it and the weather getting colder I am so stiff and achy down to the bone. My WBC & RBC keep dropping out causing anemia. I have had a lot of Procrit shots to boost it up and my NP wants to drop my Riba and back off the Procrit. My Hemo stays around 10 sometimes up to 11.3 post rescue drugs.
My NP said she wants my bone marrow to make the RBC. So I was wondering if that contributes to the bones aching?
The RBC also transport oxygen to the muscles and brain. I think that is why my muscles burn ( esp. w/stairs) and contributes to the brain fog.
That is my take on it?
Hi Proud, don't believe I have ever met you. Yes, you are right - I did not clear and finished treatment about 2 years ago. I am glad to say I do not suffer any post tx symptoms but many do. YOu can check the archives for lots of threads. You asked when I knew? Probably about 10 weeks after treatment when I had a blood workup and had elevated liver enzymes. My 3-month post pcr proved that I had relapsed. I am still undecided as to what to do since I hve little liver damage. Good luck on your 2 year post PCR test.
How are you doing these days?
My time here since July has both flown by and dragged. I'm now halfway through and had some severe bone pain along the way. I was told it was caused by edema of the bone marrow putting internal pressure on my bones, especially the long ones. It happened right after my neutrophils rose on their own (without neupogen).
Any changes in your situation concerning lingering post-tx sx?
Thanks for writing me. It's really nice to hear from you.
Thanks for your prayers and kind words.
I looked at some hemoglobin levels and severe symptoms, though my level was between moderate and mild it did say that any sudden decrease would cause severe like symptoms which I don't think is understood in a lot of medical clinics.
Peace and Health
Thanks for your note. You're the first person I've communicated with who's used the Schering drug. I'm curious... Have you suffered any loss of eyesight or sexual dysfunction as well? Do you get rundown easily?
'd like to get labs to check on my vit B and my bone marrow production capabilities. It's been recommended by someone this website to go to a blood doctor which I will do.
I've been telling people that I'm not the same person I was before I started the treatment. I've lost so much confidence. I'm in a very stressful business and I question seriously as to whether I'll be able to ever perform up to peak again.
Stay well. Peace and blessings.
Just a quick note to say hi!
I just don't know why there is such resistance to the obvious fact that many people develop severe problems from tx. The doctors seem to be threatened by the obvious facts and are in denial about the frequency that these things happen. Maybe they fear it will discourage people from treating? Maybe they fear legal issues? Who knows? But you are right, the rheumatologists see the fallout and are well aware of the problems that interferon causes. The probably know this from seeing MS patients in past decades who may have used interferon as treatment. Many cancer doctors also have used interferon regimes in patients, and are aware of the possible consequences. Why the HCV docs have their heads buried in the sand still, is a big mystery.
Just a quick note to say hi! Sorry you had to be treated like that by someone that is supposed to be a professional. He is way out of line and should be reported. I had surgery on my shoulder before I was treated for HCV. My surgeon knew and never even hinted at anything like that. They did the surgery and everything went fine. I started tx 8wks ago. Know that there is nothing negative about you deserve to be treated better. Get a different Dr. God bless and good luck.
Just a quick note to say hi!
No, no, no sadd, not upset at all. Do to limited space on "notes", I just wanted to condense the crux of the issue into a nutshell.
Best of luck to you..Pro