Yeah! The tremors on the out side have somewhat calmed down. I keep getting these internal tremors, and jerky twitching.I don't know, I did see an ms specialist, but I don't think she believes me. I have so many symptoms, and alot of them are the same as my sis who has been dxed. So I am going for another mri of neck and brain,and we'll go from there. You probably won't hear from me for a couple of day cause I'll be away for the rest of the week, but I'll touch base with you when I return. So try to have a decent weekend if you can, hope you'll feel up to enjoying it little. Take care! Sandie Chiao
Sorry it took soooooooooo long for me to respond to your post to me but my life has taken over my head and popped off my shoulders and flew off. That's how I feel right now. But yeah, these tremors are wierd and uncomfortable. They are internal, in different parts of my body, but mostly my left arm. Are you dxed yet? I'm not, but in the process of trying to find out what is going on. I promise I won't rudely act like I'm ignoring you again. I have had a real bad time of it lately, was selling house, the bank 2 days before we were to close denied the buyers mortgage, put it back on the market, after 2 yrs of being on the market the first time, now after coming down in price over $100,000 we did sell. Just moved to PA from NJ, so it's been crazy. Thanks Sandie
You deserve a big bear hug! Yeah, you are not alone! feels like a buzzing vibration feeling inside my body. We need to feel better! Hope everyone gets a hug from someone everyday! Sandie
Thank you for your note you left me and for the prayers. I'm so glad my Nana is out of the pain she endured from her cancer, and is now in the arms of the Ultimate Healer.
Hi CareBayer, that is really sad that the side effects get in the way of stopping the tremors. I wish we could rub our self out and draw ourselves over again. I had a lumbat puncture on thurs the 7 th. I should find out the results next week, an then the good doc can try to work out what to do with me. He really wants me to have a mri on my brain an spine but the city docs stuff me around when i get there. oh well. I have been getting worse, especially the falling over things and my voice is heaps slurry. i know what i want to say but i can`t seem to get it out, thats why it`s good to have kids around to finish what i have to say. i hope u would get on line more often as i don`t have many same as me people 2 talk to. catcha soon. luv tania
My vertigo feelings are still with me, more pronounced when I stand up, but not as bad when I keep moving (walking). It's very odd!!
Just a quick note to say hi! :) Hope all is well!
Hi Carebayer, thanku for your letter. I feel so sad to know that u r going through what i went through when they didn`t know what was wrong with me. People just don`t understand how it feels when u have no control over your body. U have to keep repeating yourself and do not give in. I am on antidepressants and i still have tremors an shakes, so if it was anxiety with me, then why wouldn`t the antidepressents be working? DOH! as homer simpson would say. lol. only u know when your body is going wrong, noone else. Be strong and keep going, no one can tell u what your body can or can not do. it took 9 yrs for me to get answers an i`m still fighting 13yrs later to get well. chin up an stick 2 your guns. luv tania
Hi Berrnee, how r u going? I`m having alot of ups and downs but the downs tought us a good thing. For 4 days, i was in bad pain from my neck to my lower bottom, it was horrible. My doc put me on one week of prednisolone and i was totally pain free. I felt so great, i could walk and jump and talk properly. It was fantastic. But i can`t stay on them for longer than a week. Too long on them gives u bad side effects, all i had was trouble shutting my brain off at sleep time an a fast heart beat but i was happy with that, i got relief for a week. it was wonderful. i hope that u r having luck, i wish we can never be in pain again, life is strange. hope to hear good news from u soon. bye bye. luv tania
Thanks for responding to my post
You deserve a big bear hug! Thanks for the add =] I applied for medicaid when I couldn't find a local health care org. Take care and feel free to message me. I don't check too often, cuz I'm blah a lot. I hope we can be of support to each other.
hi Berneyee, i feel really bad for u that the insurance was denied, it`s different here in australia. if u don`t work, the goverment pays for your bills. but then the docs take their time with u as u r called public, private patients who work and pay insurance, uaually get better service. i saw the specialist on thurs, waste of time. the doc in adelaide(city) that saw me last yr in november, hasn`t written up a report about me so the specialist here didn`t know what was going on with the visit outcome in november. he was not happy as i was having a bad day and he really wanted to know what should be done for me from the other doc`s opinion so i`m stuck on pain killlers an waiting again. happy v.tines day 2 u 2 luv tania
hi berneyee, i`m sorry that i haven`t gotten back 2 u, problems with my laptop. i am still alive and kicking, an still have my ups an down days. i am seeing the specialist on thursday to see if he might put me on the right meds. still have pain in my legs and lower back. drives me up the wall. i hope u r doing well and wish u the docs will do their best for u. luv tania
Thanku 4 your letter, it`s nice 2 know that u r there 4 me. not many people know that the grass isn`t always greener on the otherside. i`m lucky 2 have my 15yr old son steven with me an my 17yr old girl, sophie, who doesn`t live with me around when i need help. they both have seen me at my worst an best.it`s funny when i have 2 kids under each arm carrying me off 2 bed, have heaps of funny times that i can tell u. i have heaps of bad days but 4 some reason, the funny times stick in my memory. how r u going? have u found a decent doctor yet? keep to your guns an keep your chin up. lots of love tania
Thank you for everything! i will check out the site, i hope u r feeling better today. i actually got out of bed before 12 today, for 4 days i have been having trouble getting out of bed but thats the way it is some times is. i have a wonderful 15yr old son who is the best at making me coffees and giving me the right painkillers. i would be so useless without him. i really wish u all the luck that they find out why your body is going wrrong, i know it`s scary, frustrating and makes u angry that the docs don`t believe u but keep your chin up and keep at them, thats the only way to get any answers. i did. even though i wanted to throw their table at them, haha, talk tl u soon. luv tania
You're in my thoughts all the time, but especially today.
You WILL get through this. If you need me write anytime. I have been there. I was in "limbo land" for years and that is so hard. I was afraid of my body.
You can count on everyone here.
Welcome to our Forum Family! I have found this a wonderful place filled with caring & understanding people who know what we are going through. Feel free to ask questions, make comments on other posts or just vent! There is an excellent source of information found in the "Health Pages" located at the top right side of the website page. Take care & again - WELCOME!
Janette - a limbolander (undiagnosed
Just a quick note to say hi! Hey CareBayer, I am fairly new to this forum and I am just reaching out to other "Limbolanders" as we are called here. Look forward to reading more about your symptoms, test results, etc.
Anyway, keep your spirits up!