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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
610983 tn?1351309926
11/09
I am back!!!!!!!!!!!!!!! did u miss me ? lol let me know how ur feelin
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397460 tn?1268533736
06/09
Just a quick note to say hi! Hi.How are things
for you? Would love to hear from you! Hope you are well.Cath.
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397460 tn?1268533736
05/09
You deserve a big bear hug! Hi! And how goes things? I am off on hoildays tonight and might just get some free time to write while Im away.Freedom for two weeks! i have so much to catch up on. You get so tired that when you get some energy you have to use it to work,well, not for two weeks i dont! I will be in touch soon my friend.Cath.
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757597 tn?1315801812
05/09
Thank you for everything! Your input I'm greatful for. Feel good and take care.

Sweet Hugs
Gretta
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610983 tn?1351309926
05/09
You are so not alone, I had a fibro flare up for 3 days it felt like my hips were broke and my knees were cracked not to mention my back is absolutly killing me ontop of that ptc is messing with my eyes and I have pneumonia. sorry to hear about your flare up and I am so in the same boat with wishing this would just go away... I am applying for social security now too, however I don't want to. I figured since this is the third job that someone has let me go the day after they found out I was sick even though before hand I was doing a great job and getting rewards and what not.. that it is time to give up because it will just keep happening. I have to take my diamox everyday regardless and eventually the next employer would find out and it would happen again. well ttys
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397460 tn?1268533736
05/09
Thank you for everything! Thanks for keeping in touch! Im so sorry i havnt written.Just so busy trying to catch after several hospital trips. Looks like I m going back for some more surgery...another VP shunt. I will write this week ok? Hope you holding it together! cath.
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Avatar universal
04/09
DOUG DID TRY JOHNS HOPKINS BUT HAD INSURANCE PROBLEMS.  THEY RECOMENDED SHANDS.
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Avatar universal
04/09
DOUG DID GO TO THE MAYO CLINIC BUT THEY WON'T DO A SHUNT UNLESS HE IS GOING BLIND FROM IT
AFFECTING HIS OPTIC NERVE.  HE HASN'T TRIED ACCUPUNCTURE.  DON'T KNOW IF HE WILL.  IT'S DOUBTFUL.
DOUG IS LOOKING AT SOME NEUROSURGEONS AT SHANDS BUT THE SURGERY IS RISKEY AND HE'S NOT
SURE ABOUT IT.  DOUG DOES HAVE SOME RELATIVELY GOOD PERIODS THANK GOODNESS AND I HAVE
HIM ON A LOT OF PRAYER LISTS.  SOMETIMES PTC GOES INTO SPONTANIOUS REMISSION.  THANKS FOR
ASKING.
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397460 tn?1268533736
04/09
Just a quick note to say hi! Hey! Great to hear from you. I will try and write soon. Eye sight still a problem but will perservere. So glad that you are up to writing again.talk soon.All the best cath.
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Avatar universal
02/09
DOUG'S DOING OK I GUESS, FOR WHAT HE HAS TO PUT UP WITH.  THANKS FOR ASKING.  WILL LET
YOU KNOW WHEN WE GET SOME GOOD NEWS ABOUT A SHUNT FOR HIM.
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Avatar universal
02/09
HI, WE'VE LOOKED FOR A DOCTOR.  WE  WENT TO THE MAYO CLINIC AND THEY SAID THAT THEY
WOULD ONLY DO A SHUNT IF  DOUG WERE GOING BLIND!  HE ISN'T THANKFULLY.  WE ARE STILL
LOOKING.  SOMEONE AT JOHNS HOPKINS SUGGESTED SHANDS SO AS SOON AS HE FEELS UP
TO IT DOUG WILL CONTACT THEM.
THANKS FOR THE COMPLIMENT, I TRY TO BE SUPPORTIVE.
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610983 tn?1351309926
01/09
You're in my thoughts all the time, but especially today. Sry I have seen your notes but I am only online long enough to check my bank accounts and shut it down anymore once in a while I will come and change my mood but havent done anything els. I just can't look at the screen for too long or it all becomes a blurr. Well I hope your feeling okay and dealing well with this rain one day, sun shiny and then snowing the next weather! ttys!
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397460 tn?1268533736
01/09
You deserve a big bear hug! Hey! How are things with you and your family? All good I hope. Things up and down for me but getting better. Drop me a line if you get time.Cath
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397460 tn?1268533736
01/09
Just a quick note to say hi! Hi! Sorry for not being in touch. The mood has not been good! I will try  and write very soon. How are you doing? You are in my thoughts, cath.
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647397 tn?1307056615
12/08
como has estado amiga? saludos y un abrazo grande!
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Avatar universal
12/08
Yes, when I checked in at the hospital they told me my blood pressure was very high.
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397460 tn?1268533736
11/08
You deserve a big bear hug! Thanks so much for the good wishes! I will be in touch as soon as i can. Stay well and possitive! Cath.
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647397 tn?1307056615
11/08
Gracias amiga! que todo vaya muy bien!
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Avatar universal
10/08
Thank you for everything!
Yes i have my Diagnosis , life still stinks. I started on the Diamox, but have seen no improvements yet, keep my fingers crossed. It is sad but there are not many answers to our problems.
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Avatar universal
10/08
Just a quick note to say hi!
Just wanted to let you know that I just posted in the fibro forum--under--fibro/MS/Chiari malformation.
That is my most current update.
Let me know if you have any thougths, and thanks for checking back with me.  How are you doing?  Good I hope.
Thanks bdm92
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387767 tn?1345872027
10/08
Just a quick note to say hi!  I wanted to say hi and check on you.  You wrote a nice post to me in response to one of my journal entries, and I appreciate it.  How are you feeling lately?  Hope today is a good day!

Cindy from NJ
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397460 tn?1268533736
10/08
You deserve a big bear hug! You sure do! With your "new" family. How you doing? Feeling alright? i will be in touch soon.Mind yourself,Cath
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647397 tn?1307056615
10/08
Thank you for everything!..I am in the process you know..lots of things on my mind at the moment.
Gracias por todo!. estoy en el proceso sabes... muchas cosas en mi mente de momento.
;) GRACIAS SINCERAMENTE!
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647397 tn?1307056615
10/08
Thank you for your posting..I did understand what you meant byt writing and I do thank you for your concerns!....thank you again! and if you want to practicar tu espaƱol con gusto te ayudo!. Saludos
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530357 tn?1227793881
10/08
hi Kim! sorry it's taken me so long to get back to you... I'm so happy to hear you are feeling better. :) I've been rather busy, my phlebotomy class started a couple of weeks ago, as if I'm not already tired enough, I'm getting 8-10 vials of blood sucked out of me twice a week now! lol. and that low pressure system that moved through earlier in the week gave me hell! keep breathing!! take care of yourself, have a good weekend **hugs**
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Avatar universal
09/08
First, thanks for thinking of us.  Doug isn't doing any better unfortunately.  He only gets pills for the pain.  He is a
professional photographer but can't work very much.  He went to the pain doctor today maybe he'll come back with
new info. about treatments.  Thanks again.
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Avatar universal
09/08
Thanks very much for the tip. I will suggest this to my doctor. Take care.
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397460 tn?1268533736
09/08
You deserve a big bear hug! Hi! Still here and got thru the last month! Now, can do some of my stuff. Ill pm later,ok? hope all well.Smile for me. We have sunshine today!
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Avatar universal
09/08
Just a quick note to say hi!
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Avatar universal
09/08
Just a quick note to say hi!
hey one qn how did you loose yr weight, because me do not feel like doing a thing. After i get home from work i do not have the energy to do a thing. I am looking for any answers at this point and weight loss seems like a easy fix but a hard one to acheive.
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530357 tn?1227793881
09/08
apparently there is a character/word limit. haha.. okay I'll wrap it up!! I hope you get some sleep tonight and feel better in the morning. Take Care Kim!! ~Samantha
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530357 tn?1227793881
09/08
You think they are fun?! Crazy lady. : ) My topics are : Use of Education in Preventing Juvenile Delinquency, Juveniles and Learned Helplessness, and Suboptimization. It's just overwhelming at the moment, so much to do so little time. Do you take any pain medication with the Zanaflex? That's my magic cocktail on really bad days. I'm an advocate of modern pharmacology if you couldn't tell, lol. Is the depakote for the IH? I know what it is but have never heard of it being used...
I don't recognize the author's name... the title sounds intriguing though. I do read, I read textbooks!! When I don't have class I do love to read. My two favorite authors are James Patterson (his Alex Cross series and Women's Murder Club) and Patricia Cornwell (her Dr. Scarpetta series in particular),
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