Just a quick note to say hi! I have not seen or heard from you in a while. Let me know how you are getting on. Hugs.
Just a quick note to say hi!
Haven't "seen" you around lately. Hope things are going well.
Thank you for the note back in Juky. I'm sorry it's taken me so long to reply. Yes, things have been crazy here, but as my hubby continuously tells me, "It's going to be ok. It could always be worse.". I sure wish my faith was as strong as his...
I hope you're doing as well as possible. Take care, friend!
Thank you for your thoughts and prayers for my hubby and I. It's been rough. Honestly scary and just something I never saw coming... trying to navigate disability paperwork etc now. But I know everyone has their stresses..we just have to do the best we can. I hope you're doing well. Hugs, K
Hope you feel better soon!
Glad to see you back here, you have been missed.
I hope things get better for you soon. :-)
Hope you feel better soon!
I have been thinking of you but been so depressed that I did not drop you a line. Now I heard you are not feeling well. I am so sorry and I pray that you will feel better very soon. <3
You are in my thoughts and prayers. Hope you are doing alright. ((( HUGS))) to you, just thought I would let you know I was thinking about you ...<3 <3
So terribly sorry to hear about your Mum! My Nanny (grandma) had early onset Alzheimer's, it was awful. My prayers go out to you and yours! My Mom lives with hubby and I, she celebrated 10 years in remission from lung cancer this year. She only has 1 lung, and is just getting over a bout of pneumonia. It's rough to see your Mom ill..I know it's easier said than done, but be sure and take care of yourself, too..
Finally a moment to check in here. Wondering how you are??
Just a quick note to say hi! Thanks Karry. Wishing you a great weekend.
Thanks for caring...Hope you're doing as well as possible.
No answers yet. Things continue to be ruled out. Despite 10 months of VIt D my last blood work showed Vit D in the toilet again :P. (WHY?) Doc upped my Vit. D. My cortisol is now off. I've been referred to an internist and for a bone scan. I see my neuro in May but I wonder at the point of going -- I don't have a new mri until August, and since his hang up is "lesions too small" -- this will be unchanged. I'm presently in what I hesitate to call a "flare" -- maybe? -- but it's not too bad and pushing through :). New stuff this time has been falling, burning back/rib pain and feeling noodlish after baths ... along with same old right side weakness but it's not as severe as last couple of times which is good.
Thank you so much for checking in :). How are things for you, Karry?
You're in my thoughts all the time, but especially today. Been thinkin' about you, and wondering how things are going now. Did the help come yet? I hope that you have had some relief.
Just to let you know that " somebunny loves you " LOL
Thank you for your kind and caring thoughts about my problems. Wish there were more people like you out there.
You're in my thoughts all the time, but especially today. Hoping you are having a good relaxing day .... xoxoxox
Just a quick note to say hi!
yes she has and is running the household herself!
Thank you for for your comment on my status.
Just wanted say hi, and hope your new year is going great!
Thank you for caring, and sending hugs my way. I just can't seem to shake this depression. Of course winter and it getting dark at 5:30 pm doesn't help matters.
Yes I'm really feeling great, so great I just joined the golf club first time in a few years. I even played nine holes walking sans cart. Thank you for thinking of me. I truly hope MS is settling down for you and you are coming to terms with the new you. Blessings Alex
Hi Karry, yes I am enjoying a remarkable recovery. I feel so much better which is quiet unexpected. My MS symptoms are very light at the moment too so I'm off to play tennis now with the kids. Hope things are settling down for you. Blessings Alex
Thank you! Doing better, thanks.
Love my Poppy girl too! She's 8 and a Blenheim. Sheds like crazy, even with brushing, and in the fall (now) she picks up so many leaves on her legs and belly that she's positively festooned. So we have a de-leafing session after every walk. Still, though, lots of bits of leaf in the house. Guess that just comes with the territory. But she's so pretty! Strangers still stop me in the street to admire her, and luckily she's very friendly and happy to be admired. Can't imagine why everyone doesn't share our taste. A total love sponge and love bug. Take care and be well, ess
Just a quick note to say hi! Thanks Karry
Just a quick note to say hi! OT means off topic of MS.
Thank you for the VERY long phone 'chat' that we had.
That must have been a marathon chat, im sure the phone said we'd been on for 80+ minutes this arvo. :)
I hope you didnt feel too tired after me interrupting your rest, im buggered myself now to not having mine, but that was gone from the start of the afternoon when i had so many calls to make and emials to sent to check into things. That number i meant to give you was SCOPE Head Office 03 98432055 I just know that they say that they help the disabled, and they said that they thought that they can help me, She just hasnt returned my call yet.
Im going to go watch a bit of tv soon and then off to bed, got the district nurse coming at 8 in the morning for a blood test. Catch up tomorrow. HOpe you manage to sleep as well as you can :) xx
You deserve a big bear hug!
You deserve a big bear hug! Thank you SO much for your 'feel better' message.
Unfortunately, and i wishi could turn around and say 'YEP im feeling SOOO much better' but i cant :(, just stil much the same.
I wish that Ian would stop being so cranky and he even came into the doctor when i went yesterday, i honestly feel it was to hear what the dr said. Im beginning to think that im putting it all on (hypochondriac style) and as anyone with MS knows, its not a matter of putting anything on, we may look 100% healthy and as if theres not a think wrong with us, but thats not always the truth of the matter or how we're feeling on the inside.
Ive been really slow in emailing friends and accessing this site to catch up on comments etc. Huge hugs to you xx
Hi Karry. Yep 2nd infusion today. You're right i didnt sleep well last night but thought it had soothing to do with a loss of some of my meds in favor of new ones and thats only the starter dose. Gone from 500mg of Tegretol twice daily to only 75mg Lyrica once daily currently.
Nice to know that the steroid is probably causing the sleep probs though.
Great to be in touch with another Aussie as well!! :)
Email is: ***@**** I look forward to an email when you get to it. PS i dotn have any friends here either or anywhere for that matter, ive destroyed all friendships a long the way i think. Sounds like we're a good match.
Take care ♥ Cathie
Just a quick note to say hi! Thank you so much for your 'bear hug' after yesterday its badly needed. :) Can i add you as a freind so that maybe we can keep in contact a little more.
Id love to hear about your symptoms and diagnoses and how things go for you and basically just become friends?
No dramas if you're not keen, im cool with that, i just appreciate your friendship and you thinking of me.
Sending you heaps of hugs to get you through your day and days to come