Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Blank
Post It
Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
08/09
Hey Tania, how have you been doing? Sorry long time no write. I often think about you. It seems like you are the only person who I have been able to connect with on this site. I've been feeling the same. No better, no worse.....can't even get my pcp/neuro to listen to me. Just the typical struggles of a person with neurological symptoms!?!
Blank
Report
Avatar universal
05/09
Hi Tania, I was just thinking about you wondering how you are doing since I havent heard from you in a while. I havent been coming to the forums as often. I just needed a break, plus I have nothing to add or offer people since I dont know what is going on with me. I have been feeling alittle better though, but these past days it been hot. My parasethia's have kicked up a notch, but nothing I cant handle. My dr put me on primdone for the tremors but I had such bad side effects I stopped taking it. I hope all is well for you and I am still praying for you my friend. XOXO!!
Blank
Report
Avatar universal
03/09
I AM SO HAPPY TO HEAR YOU ARE FEELING BETTER!!! Hopefully the Predisone will continuing working after you have to stop taking it. Or maybe the dr can keep you on it for a longer period of time at a low dosage. If you havent been reading in the forums lately there has been a lot of talk of Devic's. Some of the members have found a lot of information on it. I thought of you everytime I was reading them hoping you were reading them too. I've been having my ups and downs. It seems like I am at a stand still in finding out what is wrong with me. My tremors are getting worse. My PCP and his office thinks I have axiety. They gave me a speech on how axiety can cause my problems. I tell them over and over again I was not having it at the onset of my symptoms. They are not listening to me.
Blank
Report
Avatar universal
03/09
Hi Tania, I was just thinking about you. Hope your feeling better.
Blank
Report
Avatar universal
02/09
I found another website that might be of some help to you based on Devic's and its also a support group too. You should check it out. It also could help you get into some medical trials too.

http://www.devic.org.uk/gayle.php
Blank
Report
Avatar universal
02/09
How are you feeling? I hope my prayers are crossing over to you from the oceans. Im sorry your doctors appt was such a disappointment. Im kinda getting use to it, but its making me stronger. Alot more vocal on the test I need and the medication too. Do your research on everything and demand to get the help you need. Im giving you a big bear hug!!!!
Blank
Report
Avatar universal
02/09
I've been having my ups and downs myself. My doctor told me I had the approval from my insurance company to go to the Cleveland Clinic, when I called the insurance company to see what they will cover I was told I was denied. I felt so disappointed and deflatted. Now Im back at square 1 not knowing what do to. I just need to take acouple of days to get my thoughts together.

I hope your dr is able to give you the right meds. I know its frustrating not being able to do the things you want to do because I am in the same boat. Just going to work is a constant struggle for me. Tania Im praying for you. We are going to overcome our illness. Blessing to and your family and have a Happy V-Day.
Blank
Report
Avatar universal
01/09
Hi Tania, I was just thinking about you and wanted to leave you a note to let you know you are on my mind. I hope you are feeling better and Im praying for you.
Blank
Report
Avatar universal
01/09
Im sorry to hear everthing you are going through. I've been going through it for just about a year and its driving me insane. I dont know what to do. Thank you for posting. Im certainly going to start looking into Devic's Syndrome. Heres a link to a site I found a while back. Hope this can help you. God bless and I hope we can continue to keep in touch with each other.
http://www.patientslikeme.com/devics/community
Blank
Report
649926 tn?1297657780
01/09
Welcome to our community!

Hi. I just wanted to say hi and welcome you to the forum family. I know that you will make great friends here and find & give answers and support when needed.

Erin :)
Blank
Report