I'm so sorry that I never replied to your information about lymphedema. I really appreciate the time you took to explain your situation to me.
I've been feeling sad knowing that I've relapsed and need to start chemo again. I never had a remission and this truly is a chronic disease. I hardly go on the boards now.
I'll discuss your suggestions with my Dr.
Thanks again, Happy Holidays!
Knowing that this time would come does not make it one iota easier does it? I am terribly sorry to hear that you have come to it so quickly. I can honestly say that the continual failure of treatment has made me more accepting of my impending death but I am still terrified and emotionally shattered. Pain has not become my biggest problem yet, it's all about pooping and keeping my cancer ridden intestines open since colonostomy or any other surgery has been ruled out.
Sometimes it is simply unbearablea to look at my husband, son or mom. Last night, my stepson, his pregnant wife and 2 year old came by. I'm glad they did but a piece of my heart went with them.
Please write any time if you feel the need to vent, I'm here for now and maybe we can give each other some comfort.
Hi, wondering how you are doing? I see you enjoy gardening, me too! Just bought a bunch of mulch and things to plant because it's so cheap this time of year! Take care, Angie
Hi Karen, thanks! I'm normally a great optimist, & I've expected to survive a long time, even to have a normal lifespan. But the more I read of survivors' stories, the more I realize that I can't really expect to walk away from this disease, able to put it out of my mind & go on with life, with ovarian cancer just a memory. I will be fighting it every day. I want to be honest with myself - not pessimistic, not consumed by statistics, but realistic. It helps me to focus on the right things. Unfortunately, it's also a bit depressing at times. After I've adjusted my thinking, I'll be able to plan for the future & make the most of each day. I know I could live for years - but I might not. We all (w/ or w/out cancer) should live each day as if it's our last, & live it to the fullest! - Hugs, C
You're in my thoughts all the time, but especially today.Thanks for the note!!! Ten degrees I cant imagine that(being from California) I am so sad to hear you have this terrible disease.I feel the same way my family is the greatest part of my life on this earth.My wish is that I can do something that matters in the fight of this disease.I hope you are feeling good.
God Bless you
There is something outside of the small intestine which is narrowing it ... MD thinks it is the cancer .. altho it did not show up as a true mass on the PET/CT. It doesn't take much to "clog" it up so I have to be a little careful, drink while eating anything, chew really well ... and, of course, colace and/or Miralax if it's bad. Not really sure what is happening as I have had some sort of abdo pain (above and/or below the waist) every day. I will call MD if it doesn't stop soon just to be sure I am OK ignoring it. Don't want any pain meds .. constipation! Tylenol XS or Advil at night. Thanks for the heads up on the biotene, etc. I have some and will definitely put it to use. I sucked on ice chips during tx and I think that helped as well. Judy
Feel good, and take care of yourself.
Thanks for your info on Doxil. First round went well. I had ice packs (hands and feet) while getting tx and chewed ice chips. Used ice for a few days at home as well. I'm still having issued with the small intestine .. not sure if it's the drug or the steriods or what. My MD expects my # to go up for the first couple of rounds. I'm getting minimum of 4 unless I have horrible problems. It's always something .. Thanks again. Judy
Thank you for your input. Seeing chemo doc in couple weeks to f/u.
Just a quick note to say hi! you have a good memory...the port is going in this month (week of the 25th) along w/ 2nd look surgury...I'm starting to get antsy...but better to have the information and get it over with right. Thank you for the encouragement and positive vibes....we all need the encouragement. Hope it all comes right back to you!
The waiting game is much shorter but that just means I'm worrying twice as hard now :)
Thanks for the support...
I am not feeling too bad today. Yes I lost some hair for the etoposide. It thinned enough that I just shaved it all off the same length. The bad thing was that it did not work for me for very long at all and that made me mad. I hope that you do not lose to much. Let me know how you get along with it.
Thank you for all the encouragement. Tomorrow is the day and I think I might be a little numb about the whole thing. I usually get all worked up and freak out over things. This time I am just going with the flow. Hopefully I will be okay. My family is still completlely unprepared for anything to happen to me. Marie
So sorry you are having such a tough time. Ayr is just outside Cambridge and Kitchener - Waterloo - about an hour southwest of Toronto. I'll be thinking of you as you go through your treatments.
Karen, thank you for helping to boost my spirits. I do feel a little better today and a little more optimistic than yesterday. It was just the initial shock. I am not ready to let this monster take over and I plan to do whatever I can to stop it.
Just noticed you are another Canadian! I live in Ayr, just outside of Cambridge and Kitchener-Waterloo. Hope you are doing well.
Yes, I see Dr.O but happened to see Dr.L on Monday - that clinic drives me nuts - they never run on time!! I do like both of those doc's though...nice guys.
Wow...26 years in remission...that unheard of. Wish I could meet her...it's nice to hear stories like that once in a while :)
The plastic surgeon went well but I tell you, not the place to go if you want to feel good about yourself - I've never met someone so happy that I'm fat. I told him I knew it would come in handy someday :) How mortifying... One more doctor tomorrow and then I wait for the date to be set. It's scary, but I know it's the right thing for me...
Thanks for the note! Take care,
We find that after a heavy rain, we have to turn the feeder upside down and give it a couple of whacks to check and see if the rain got in and the seed at the bottom of the feeder is wet.
if it is, we empty out the dry seed and clean out the wet seed, it's worth the extra work to keep the birdies healthy and happy.
They are fun to watch, aren't they?
We live in an adult community, and there's a small lake down the street. We've had mama ducks with ducklings walking over to eat fallen seed, it's so cute to watch them growing up.
thistle is the small elongated black seeds, also called nijer seeds. The feeders have very small slit shaped ports that the small birds can put their beaks into and take out one seed at a time.
I just convinced my husband to hang it up again, I missed seeing the birds out back while I'm relaxing looking out the patio door. Out 2 indoor cats also enjoy watching the birds frequenting the feeder and the bird bath.
We had stopped feeding the birds, when a squirrel and a chipmunk showed up and suddenly our flowers started disappearing!
As soon as he hung the feeder this afternoon, 4 goldfinches showed up.
Enjoy tomorrow, and good health to you.
Thank you for everything! Karen. I appreciate the prayers and well wishes from all of you. I hope you are doing well? take care
Karen, Sorry I did not get back with you sooner. My oldest grandaughter just spent a winderful week with me and I let her use my computer. I knew I had all the time in the world for it, but spending a week with her is something I have never done before. Though we did not do a whole lot we enjoyed each others company, something that is hard to do with the 2 younger ones around.
I am sorry that the chemo is not working. But the motorcycle riding sounds great, enjoy as much of that as you can.I am getting caught up from being gone for the week so I will be back in touch.
Karren, thanks for asking. As far as I can tell I am holding together both physically and mentally. But I really don't have much choice. I realized a long time ago that it would do me no good to sit around and worry about things that I cannot change. So I just keep fighting.
How are you? Good I hope.
Please keep in touch.
What meant the most to the middle niece was that her mom (Amy) wrote how proud she is of her and that she knows that she's strong and talked about examples from their lives together related to vacations, good times, etc... She told her to maintain her dreams, dignity,etc... At the young age when Amy first passed, it was very hard on the kids, but now that they're older, those letters and words mean the very most. I wish you love, peace and guidance as you prepare for this journey and responsibility with your loving family.
Emotionally I feel more connected and glad I did start that conversation....Even the conflict was productive...Physically, Something different is going on under my ribs on the left. It is digestively triggered...I'll keep trying things but I'm afraid I'll have to make that dreaded call to the Docs. office for a visit. (I'm supposed to just be getting bloodwork until fall when my IPIV treatments start).
Now I'm teary b/c I gave in to the need to lessen the pain and now my head is "fuzzy"....yet another complaint I have about this whole package deal I didn't order...
Sorry to be a downer...I'll shake it off....
So we're both stage 4 with metastasis to the lymph nodes, not a club we want to be in.
I don't know what you mean about quality of life and having decisions to make, the only decision is what can be done to keep us alive and improve our chances, as long as we're not late stage.
What is facing you *****, but thankfully you have choices, you'll make the right decision, for yourself and your children.
I know how you're feeling, when my cancer recurred, my surgeon wouldn't operate to remove the lymph nodes in my pelvis, they're on major blood vessels, he said I could bleed to death.
My oncologist wouldn't consider radiation, whick would affect my bone marrow.. So we opted for chemo, which worked for 10 months.
Good luck with the tests, let me know how it goes.
Not sure about the cough. I did have a tiny cold, but the cough started after my last chemo. This combo seems to have alot of pesky side effects for me. I am a little better today. Thanks, Marie
Just a quick note to say hi! Your post to sdj42 was very uplifting. I needed to read that today. I coughed all night and started this day at a low point. Thanks, Marie