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Just a quick note to say hi!
You deserve a big bear hug!
You're in my thoughts all the time, but especially today.
Thank you for everything!
Welcome to our community!
You are in my thoughts and prayers.
Hope you feel better soon!
Congratulations! Time for a celebration...
Happy Birthday!
Avatar universal
08/09
deep breaths and away you go. funny story to make you laugh.  Had to leave note for boss the other day, about incident at work. consisted of someones head is going to come off, and was hoping that it wasn't mine now because I now have hair, and would like to keep it for awhile anyhow. Drew pic of me with no hair, and one with. Told her I like the  later one more and wanted it to stay while. just a little ironic cancer humor. I hope she laughed. hope you can too. Its so hard to find any humor sometimes that even little stupid things can still make us laugh. be well
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792410 tn?1270315500
07/09
A double header, you are being tested!  Bleachers and everything?
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523728 tn?1264621521
07/09
Hiya,
Had new chemo combo today.  Crabby as all get out.  For some reason steroids make me all bitchy - look out  LOL!  Gemzar and Cisplatin, hope it does something for this 5000+ CA 125 and trapped lung.  Had a Reiki session at the Hospice, LOVED it.  I am now going every Friday for a while and plan to see a naturopath mostly for palliate treatments.  
Tell me a little about your story my friend,
Sharon
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408448 tn?1286883821
07/09
Just saw the note about Zoe.  The neighbor a few houses down has a husky he has trained to pull him around the block on a skate board really fast.  It looks so fun, but I might be scared!  Marie
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Avatar universal
07/09
Good afternoon,
I'd also hate to be used as a pawn, I guess all we can do is to watch how this plays out,.
1,000 pages to digest, the whole thing is confusing, and confusion is frightening.
Jane
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Avatar universal
07/09
Just a quick note to say thanks for your encouragement. I'm sorry you were diagnosed w/OVCA @ such a young age. I'm sorry anyone is ever diagnosed with this evil, despicable, pernicious, sneaky disease. You have a great attitude. Stick to your guns!
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523728 tn?1264621521
07/09
Good question re: lung.  Have not had medical attention since it happened.  Was to go to hospital today for repeat thora, the quack that did it called me 30 min b4 I was to leave and said don't come.  Have an appointment with a pulmonologist in THREE weeks.   Guess they ain't too concerned!  Meanwhile, cough, hack, cough, I'm still breathin!
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788616 tn?1247409642
07/09
HI Christina,
I just saw the pic of your new dog.  It is very well-kept with nice markings.  Aren't dogs wonderful?  I love my little dog.  He is my constant companion and I would be lost without him.  Cheers and hope you and your kids have fun today with the dog.

Karen...
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135691 tn?1271097123
07/09
Thanks for the note - I'm glad that you feel you can come here and vent. The nice thing about belonging to a forum like this is that, chances are, there's someone who knows exactly how your feeling! I feel like I could have written your journal entry myself and actually, when I think back, I believe I wrote something exactly like that a couple of years ago here...
It's ok to have those overwhelming days because at least you know that there's always a new day tomorrow :)
Love and hugs,
Becky
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Avatar universal
07/09
Hi Christina,
Anytime you need someone to unload to, please know I'm here for you. I know how tough it is, and I get it.

Take care of yourself,
Jane
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792410 tn?1270315500
07/09
Your new dog is GORGEOUS!  What is his/her name and what breed is he/she?  I have a golden retriever named Wesley.  One of these days I'll try to put a picture of him on my profile page.
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187666 tn?1331173345
07/09
Oh, I love that story about the gray flamingos. Fantastic. When I went to Texas a few years ago I got excited. I saw big pink birds and the first thought I had was "Ah, flamingos." Then I realized they were Roseate Spoonbills. Still pretty cool though.  irene
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792410 tn?1270315500
07/09
I am back from MD Anderson.  Got back on Tuesday actually and I've been absorbing everything they said.  I'm planning on posting a journal entry as soon as I can get all my thoughts organized.  It was a very positive experience and I'm so glad that I went.  My biggest fear was that I was going to spend all that money and time going there and I was going to come home feeling as if it was useless.
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523728 tn?1264621521
07/09
Thanks for the compliments.  Was feelin alright that day.  Amazing how fast we can go downhill, eh?
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Avatar universal
07/09
hope you had a good time welcome home. will we see you at the reunion in chicago. it will be great time I'm sure
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Avatar universal
07/09
Welcome back, I hope you had an excellent vacation and feel good.
Jane
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792410 tn?1270315500
07/09
Welcome home!  I hope you had a fun and relaxing vacation.  It's always nice to come home though isn't it?  Hope your batteries are fully recharged.
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349465 tn?1289081764
07/09
So, you're home...welcome back! How was your trip in NYC? Did you go any fun places?
Teresa
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272338 tn?1252280404
07/09
  Yes at times it is hard to go on the board. I get depressed each time someone new comes on as it is just not fair that so many have to deal with something like this. As for Keith I only tried to help in any way that I could.
  I hope that things are going well for you. I am feeling better from the infection and hospital stay and my CA has dropped so I really cannot complain. Please stay in touch and if there is anything I can do to help, just let me know.
      Love Chris
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349465 tn?1289081764
07/09
Have a safe trip to NYC.  I love traveling there.
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792410 tn?1270315500
07/09
Hi Christina,
Thank you for the lovely call yesterday! It was so kind of you to lift me up that way.  I'm having chemo everyday this week so I'm totally beat plus (as you know)  I got hit in the face with a shovel of dirt from my doctor the other day as well so I'm just down in the dumps.  Thanks for reaching out to me.  It is such a relief to know I have a friend who knows exactly what I'm going through.
Love, Lauren
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Avatar universal
06/09
I didn't see any responses to the post I put in that journal after i posted at lunch today (my time) as Sandy thought that it best to remove the entry rather than have it get heated and contentious. So I missed your comment.
I hope your treatment and recovery is getting progressing well. Sometimes it is hard to see past the present, however I'm an example of it all working as I have no sign of Cancer now after my original diagnoses of Stage 3b/c backin March 2007. You can get there too.
I hope everything is getting easier for you and that the anger is less intense. I still have the odd bout of anger etc even with my great survivorship (usually when having to explain yet again my medical history to another doctor....) but I promise it does get better.
Bron
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792410 tn?1270315500
06/09
I wrote a huge sticky note to you and it just evaporated!  Some unsuspecting person probably got it and it won't make any sense to them.  I start cycle 9 of topotecan today.  I think it's 9, I've lost track!  My last CT scan showed shrinkage of tumors and some of the implants had disappeared.  This a miracle because I'm low-grade cancer and I'm not supposed to have measurable response to chemo.  The confusing part is that my CA125 had steadily dropped since January when I started the treatments but the CA125 had risen from 63 to 75.  I hope it's not the beginning of the end of the response to this treatment.  I want the cancer to go away.  I won't accept stabilization at this point.  I'm still going to try for the cure weather the doctor's think I'm insane or not!  
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792410 tn?1270315500
06/09
I'm glad that your mini break was nice.  So glad for you.  I was reading some older posts the other night when I was doing some research and I came across a post from you that piqued my interest.  You are low-grade cancer?  Did I read that right?

P.S.  You are awesome too! :o)
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Avatar universal
06/09
I loved your reply to Keith regarding survival rates, you really have a way with words.

I'm staged 4B and my oncologist said, 2 years ago, that he's optimistic that I'll reach the 5 year mark. I had screwed up my courage and asked him for a prognosis, he didn't volunteer the info. I understand that 75% of us are statistically not supposed to be here in 5 years, but we just live to show them they're not talking about us!

I'm seeing my oncologist tomorrow to discuss my rising CA level, and what he feels about my going back on chemo. the CA has always been a good marker for my disease progression. I've been off chemo for a month because my CT scan came back clear, but we'll see what he recommends tomorrow. Have I said lately how much I HATE this DAMN DISEASE!!!

Jane

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Avatar universal
06/09
You deserve a big bear hug!  Hope your doing ok christina! Thinking of you:)
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Avatar universal
06/09
really liked your joke, it made me feel alot better thank you. sorry it took so long to get back, but computer problem was evident, needed to resolve, took a couple of days to get tech in, Be well  and take one day ata time
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Avatar universal
06/09
Just a quick note to say hi!  hi the web site I go to first is www.inspire.com/groups/alliance-ovarian-cancer/     I really dont find too much information on this site and I also find when I do post noone ever responds.Its like a click here.Posting about anger and having it pull is ********.I have posted on the other site and my title was Pu**y cancer.They didnt like that and said to change the tiltle I said no way jose.Thats censorship and I refused so needless to say they pulled it because it said *****.How is that name censored.say pussycat is that censored?good luck
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792410 tn?1270315500
06/09
Hi!  I just got back from the prostate cancer forum and I wanted to let you know that my mammogram came back clear.  So I'm good for six months.  That a relief.  How are you doing today?
Take care,
Lauren
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196469 tn?1365387975
06/09
Just a quick note to say hi!  Your pictures are so powerful.  I just read the thread for the first time because the subject did not apply to me....... I just want you to know that I admire you and am impressed.  I don't know the right words to use...........
Heidi
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653618 tn?1260603643
06/09
I know I'll probably catch H*ll for my post but F**k that's the truth.  Marty needs to move on or at least just back off sometimes.  This site is good for info but really, I get more at blogforacure where there are people with all different kinds of cancer.  But yes,,,just like a borderline ovca post...ya'll (and maybe I'm included with it as I have a 15 year old girl) need to be able to talk about how to deal with this cancer and kids!  Let's hope she backs off and you can actually have a real discussion on what you originally posted!
Hugs and best wishes to you.
Teresa/doicat
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792410 tn?1270315500
06/09
People don't get it do they?
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