"Have your doctor check your gallbladder. Sounds like the pain I was having when my gallbladder quit."
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Jun 19, 2010
"Glad you have some answers! So sorry you have to go to the hospital for the tooth. Hang in there!"
Jun 10, 2010
"Just getting the doctors to listen is a huge thing - trust me!!! We mentioned dysautonomia to Whitney's docs after checking it out on here and he poo-pooed it...but had not better alternative diagnosis other than psychosomatic and we kn..."
I just got done reading some of your updates and I wish I'd been on more often but hey we just replaced the laptop last week and it's been in high demand!!!
So...
I haven't updated this journal in a while because our computer died...I have my work computer at home now and I am sneeking some time for some personal catch up at 6am...
Whitney had her brain MRI and VEEG this week. The MRI was normal and the VEEG was not. She is definitely having seizure activity. The neurologists in the hospital were v...
Weight Tracker Stats
Start weight:
158.0 lb
Weight change:
Lost 2.0 lb
Current weight:
156.0 lb
Goal
Goal weight:
130.0 lb
% Goal Complete:
7.1%
% Time Complete:
Goal tracking ended.
Days left:
Goal tracking ended.
Mood Tracker Stats
BP Tracker Stats
Status:
Hypotension
01/12
A happy New Year HUG for you! I hope it's a great year for Whitney, you and all your family!
09/11
We are going to look into the Ronald McDonald House when we get there. Overall, we will be there 4.5 weeks. The first week of October and then the third week of October through 1st week of November. Still no teacher for Cody, he is all over the place, exhausted but not feeling too bad, then the next day feeling horrible but awake.
We will be seeing Dr Philip Fischer, diagnostician at Mayo. He has a youtube video about POTS. He was the very first doctor I contacted after Cody was diagnosed. He referred us to Dr Chelimsky in Cleveland though. He squeezed us in, thank goodness, he usually has a 15 month wait, that's why I like to try to find a doctors email and contact them directly.
10/10
Hi! How are you and Whitney doing today?
Did she have another appointment for this week? I think about Whitney almost daily. I hope the docs get her pain under control soon!
I hope you both have a good day.
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