"Hi, my name is tania and i have a form of ms, it`s called devic`s syndrome but i still go through all the same horrible body functions {sometimes lack of} that ms sufferers go through an it *****. I don`t like to get out of bed most days..."
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About Me: Female, 52, adelaide, Australia, member since Sep 2008
my name is tania and i am 40. I have 2 teenagers, boy and girl, I have been having health problems for nearly 15yrs and they thought i had MS, but now the tables have turned and i am having problems which seem like mini strokes, i will soon be tested for T.I.A as i have
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all the history and symptoms. If there is anyone out there who might know more about it, plse write to me. thanku
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help me, my kids and my animals, Heart Health, Cholesterol, Smoking, High Blood Pressure/Hypertension
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Feb 16, 2009
"Hi Udkas, thanku for writing to me, i appreciate any feed back from any one out there. i`m sorry but in my first letter, i forgot to write that i have had optic neuitis in my right eye about a yr after the first attack ( which was no fee..."
Feb 14, 2009
"i am 39 female who has had on going pain everywhere,numbness in legs and hands, speech slurry, hip an lower back pain everyday, fatigue, over heating, always tired. had 4 mri`s, all negative. 2 lumbar punctures, one had small inflamation..."
as u can see i had 4 very bad bed ridden days, doc put me on one week of prednisolone and i was pain free. now that the week is over, my body has gone back to very spastic...
unable to walk upright, lots of lower back pain, morphine didn`t work well. bed rest all day in air con room
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08/09
Hey Tania, how have you been doing? Sorry long time no write. I often think about you. It seems like you are the only person who I have been able to connect with on this site. I've been feeling the same. No better, no worse.....can't even get my pcp/neuro to listen to me. Just the typical struggles of a person with neurological symptoms!?!
05/09
Hi Tania, I was just thinking about you wondering how you are doing since I havent heard from you in a while. I havent been coming to the forums as often. I just needed a break, plus I have nothing to add or offer people since I dont know what is going on with me. I have been feeling alittle better though, but these past days it been hot. My parasethia's have kicked up a notch, but nothing I cant handle. My dr put me on primdone for the tremors but I had such bad side effects I stopped taking it. I hope all is well for you and I am still praying for you my friend. XOXO!!
03/09
I AM SO HAPPY TO HEAR YOU ARE FEELING BETTER!!! Hopefully the Predisone will continuing working after you have to stop taking it. Or maybe the dr can keep you on it for a longer period of time at a low dosage. If you havent been reading in the forums lately there has been a lot of talk of Devic's. Some of the members have found a lot of information on it. I thought of you everytime I was reading them hoping you were reading them too. I've been having my ups and downs. It seems like I am at a stand still in finding out what is wrong with me. My tremors are getting worse. My PCP and his office thinks I have axiety. They gave me a speech on how axiety can cause my problems. I tell them over and over again I was not having it at the onset of my symptoms. They are not listening to me.
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