"Guess this does not happen to anyone??"
JCappiello's Profile
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About Me: Female, NY, member since Jan 2013
I am 27 years old I was diagnosed with Chiari Malformation 1 in January of 2012. Along with Chiari I have central vertigo, POTS, orthostatic hypotenston,EDS, neurocardiogenic syncope, fibromyalgia, Raynauds, cervical, thoracic and lumbar radiculopathy, a herniated L5 d
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isk, mild levoscoliosis, pinched nerves in neck & back, lumbar arthritis, generalized anxiety disorder, panic disorder, depression, photophobio, and chronic fatigue due to my other dx's.
The picture is my daughter at 3 months when she was baptized. She is 3yrs old now and the joy of my life. I live with her and my fiance in NY.
I am so glad I found this site because I no longer feel alone. This site is full of wonderful, nice people who are always ready to help <3 [Less]
The picture is my daughter at 3 months when she was baptized. She is 3yrs old now and the joy of my life. I live with her and my fiance in NY.
I am so glad I found this site because I no longer feel alone. This site is full of wonderful, nice people who are always ready to help <3 [Less]
Sep 23, 2013
"Also... you need your complete list of medications and which dr prescribed them"
Sep 23, 2013
"Well if you go with a lawyer they will gather all of your medical records. You need that as well as a detailed list of all your doctors with phone numbers and addresses. It is also extremely important to keep all your dr appts on a list ..."
Second tilt table test today at 2. I am hating the way the Florinef makes me feel, even if it is doing its job (we shall see soon) I don't think I can withstand the s...
Today 2pm tilt table test
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02/13
Thank you for your kind words! I think it's easy to be positive when you can step back and see how strong of a person you have become from being challenged in so many ways! I would have never thought I could handle all these issues with a great attitude and be thankful for them in the end! I shock myself with my strength sometimes. And it's kind of humbling. I hope you find how strong you are, too! All you have to do is step back and look. I can't even imagine being a mother and having to trot through all these issues! Every night, try to think of one thing you are appreciative of (each night should be something different). Months later, you will get to a day when you have to repeat the same things and you will see how blessed you are! Anyway, keep hope alive!
01/13
Just a quick note to say hi! I just wanted to say hello and that your baby girl is absolutely beautiful! Chere bebe!
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