"Hi - I was recently diagnosed with interstitial cystitis. I also have Sjogren's, fibromyalgia, and a variant on the MEFV gene. My doctor prescribed Elmiron which I just started. Is there a connection between interstitial cystitis and ..."
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About Me: Female, WI, member since Apr 2010
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Feb 04, 2012
"Thank you! I would love to see links when you get a chance.
I'm allergic to coconut, so I'm assuming that EVCO would not be an option for me.
As for meds, I've been on pretty much everything - all meds to date have had either no..."
Feb 03, 2012
"Is there a connection between fibromyalgia and the ability to manage dental pain during procedures?
I had to have some cavities taken care of last week - the dentist had to do four rounds of novacaine in addition to the topical analge..."
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10/11
Just a quick note to say hi!
Thought I'd send this "Note" in case you haven't noticed that it is a perk of this site. (I didn't know until I got one... .) I have had conflicting ANA tests, too, and if you're anything like me it can be a little scary. I have breathing and heart issues and it scare me b/c of my 5 yr old. Hang in there. I also post on the MS forum as some of my docs think MS... who knows. I'd suggest that if you're concerned about lupus you post there also. You don't have to be diagnosed. Best to you.
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