"Ps. My meds are perscribed by general practitioner who is trying his best but seems to be attacking symptoms the best he knows how."
IDKibble's Profile
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About Me: Male, 32, Ithaca, NY, member since Apr 2015
I am Dana Kibbe. Im 25 and I live with my girlfriend.I just recently lost a good fulltime job due to what I believe has lost me many jobs in the passed, and that is my chiari malformation type 1. However I was also born with Dandy walker syndrome which was the root caus
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e of my hydrocephalus. At the age of 2 my brain was crammed to the sides of my skull and was forced to learn to speak and walk twice once before and again after initial shunt procedures. I have detailed list of dates locations for all of my procedures,now upto 6 major surguries and countless revisions.
What brings me here is untill recently we thought chiari was just something associated with Dandy walker,so alot of symptoms I blamed on my greatest attempts to finally live a normal academic cereer, and. The actiivities young college kids enguage in :p. After almost failing out of community college I got put on 20 mg Adderall and 40 mg celexa. It seemed to work great when I spent hours at a desk or not talking to other ppl alot but when I was in school 08-12...yes it took me 4 years but I have an associates in social sciences. After finishing school I had more time to focus on symptoms and I stopped medications.
Since then I have left the job I had wel in college after 3 years (electronics sales in small sears B-store) and moved south. Gainesville fl to be exact. I was extreamly fetigued and many of the suggestive symptoms from chiari. Again I ignored and blamed my regional transition and other major life changes.
NOW my more recent adventure has been my search for a specislist. I visited my hospital where my neurosurgeon is and he explained that there isnt much that can be done but therepy and medication ,but medications like the adderall help some symptoms and afte extended periods of use cause other adverse side effects that make the chiari symptoms worse. After a run around I was finally able to contact a helpful member of the nyc chiari center and today had an up to date mri since it was part of the shunt series I had feb 28 at strong memorial...im not sure why. The results will be sent by wed or thursday 4/29-4/30 2015. Fingers are crossed [Less]
What brings me here is untill recently we thought chiari was just something associated with Dandy walker,so alot of symptoms I blamed on my greatest attempts to finally live a normal academic cereer, and. The actiivities young college kids enguage in :p. After almost failing out of community college I got put on 20 mg Adderall and 40 mg celexa. It seemed to work great when I spent hours at a desk or not talking to other ppl alot but when I was in school 08-12...yes it took me 4 years but I have an associates in social sciences. After finishing school I had more time to focus on symptoms and I stopped medications.
Since then I have left the job I had wel in college after 3 years (electronics sales in small sears B-store) and moved south. Gainesville fl to be exact. I was extreamly fetigued and many of the suggestive symptoms from chiari. Again I ignored and blamed my regional transition and other major life changes.
NOW my more recent adventure has been my search for a specislist. I visited my hospital where my neurosurgeon is and he explained that there isnt much that can be done but therepy and medication ,but medications like the adderall help some symptoms and afte extended periods of use cause other adverse side effects that make the chiari symptoms worse. After a run around I was finally able to contact a helpful member of the nyc chiari center and today had an up to date mri since it was part of the shunt series I had feb 28 at strong memorial...im not sure why. The results will be sent by wed or thursday 4/29-4/30 2015. Fingers are crossed [Less]
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alternative medicine, emotional health, ADD/ADHD, Anxiety, Bipolar Disorder, Depression, Schizophrenia, epilepsy, Eye Care, Genetics, Nutrition, Pain, Headache, Chronic Pain
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, Back pain, Sleep disorders, Insomnia
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May 07, 2015
"I have found stability with my regamine but it worries me when I take the adderal( just recently switched to vyvance due to less adverse side effects) and it brings about the clogged feeling in my ears as well as louder than usual tinn..."
Apr 27, 2015
"Hello all I am Dana I am from ithaca ny and I am a 25 year old male. I was diagnosed chiari type 1 at birth but like then my hydrocephalus caused by the dandy walker syndrome...mentioned in detail in profile for those interested. Because..."
Provided clinical information: 25 years, Male, "chiari malformation
Type I sees Dr Silverstein Rochester and has six cranial sugeries for
hydrocephalus as a child&q...
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