About Me: Female, 39, Lincoln, NE, member since Jun 2010
I'm Jen, please let me say how happy I am to have found this site!!! I have Hashimoto's thyroiditis, migraines, acid reflux, bile salt diarrhea, chiari I malfo
[More]rmation.., and they think I may have addison's disease too, but we are holding off on the test for right now..
I like many of you have been told time and time again "You are fine" or "all of your symptoms are related to_______(some other condition(s) you may have". UGH, I am furious with doctors and there lack of compassion and "gut instinct"! I mean how would they feel if it was their child or spouse or parent that kept being told its all in there head when it LITERALLY is(chiari)!
So I have 2 lil gals, they are 4 and 1 and both were born in Oct.. I have a great husband who is loving and caring and supportive (most of the time lol)...
and thats all for right now.. I will come back and update this later...............
"take care, because I care, and knowing is half the battle" unknown
"I will def see if he will do that before I make an appt.. It's gonna be a HUGE step for me to go to another doc.. Stick a fork in me, I'm done with these doctors BUT without them I cannot get any help..."
"Thank you Selma, I always appreciate your replies!
I have had a follow up MRI but was told it looks fine.. I am seeing a NL and he is trying all sorts of different stuff.. I have tried trigger point injections, migraine injectables,..."
I am sorry I am so long in getting back to you...
I would or was thinking that I would get a reminder that I had notes in so to speak. So, I just checked, nothing was in the inbox.
That is just crap, if you ask me - all the docs have to have this and that lenght and so on, it seems size matters:? what about pains and symptoms, The University in Missouri also has a Chiari Expert or had one She is a lady doctor that is supposed to be really good as well. I do not know if she is still there or not. But, they do specalizd in Chiari as well and research chiari.
Once again, I am so sorry it took me so long, I was wondering what was taking you so long in getting back to me. LOL - so I thought you know just let me check the notes.
Life events do get in the way and we are busy
I am glad that you had a safe trip there and back; I hope by now that you are getting along better with your meds and that it will take the pains away from your body.
I am curious why you did not make contact with Dr. Oro in Colorado it is a lot closer than making that long long drive.
But it is all good that you are seeing an excellent doctor and in good hands.
I was going to see - and send you a note... But then you were on the road & I could not see the use in sending a reply to you.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.