"Wow, that is fantastic! A viable treatment without interferon? How wonderful that would be to treat without feeling like one is dying everyday for months. I have been out of the loop so not familiar with GS-7977.
Since my own SVR, ..."
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About Me: Male, 65, Vermilion, OH, member since Jun 2006
Geno 3a. 2x relapser, stage 4 compensated. Biopsy in '05 Stage 2/3 Downgraded to 3/4 with blood markers, etc. VL 850,000. 12 week treat with pegasis and 800 Riba. Developed serious infection and anemia at 11 wks and taken off 1 week early. UND at 12 wks. 6 mos post VL 2
...
[More]
50,000.
Retreated Fall '06 Pegintron and 1000 Riba. 24 weeks 100% compliant. Anemia treated with procrit. UND at 12 wks and EOT. 6 mos post VL 4 million. Doc ready to treat again fall '07. Planned pegasis and 1000 Riba for 48 wks. Got second opinion from Hepotologist. Downgraded to stage 4/A portal hypertension but compensated. Diagnosed with steatosis as well. (probable nafld) Will up Riba to weight based. Need to get weight down before starting treatment #3. Platelets and WBC still low 12 mos post. Update: Next tox. will predose Riba for 2 weeks, and treat wiith pegasys 180 every 5 days for first 4 weeks then weekly. Riba 1200 throughout. Alinia 500 mg 2x daily for at least first 3 mos. PPC 900 mg x2 daily throughout.
As far as the supplements go on tox:
I WILL take 1 dose NAC/Vitc, PPC, TMG, ALA, Vit D, lactulose and lactobacillus GG in the middle of the day to avoid any obsorption problems with the Riba.
I will NOT take Milk thistle or curcumin or resveratrol or green tea. No anti inflammatories at all.
I will add lactoferrin near EOT. It significantly boosts the immune system, I think it a prudent addition to SOC at the END of treatment. Instead of stopping cold turkey at EOT on the soc drugs (like I did on the last 2 txs'), I plan to taper down and give my own immune system some help coming back online. As soon as I start to taper, I will add the lactoferrin to help. Camel Lactoferrin is 30x stronger than bovine, so I will try that. HR thinks this plan cerrtainly couldn't hurt, and may just help.
(update 3/08) Endoscopy revealed 2 varices (moderately severe non bleeding) in the lower GI tract.
(update 4/15/08) latest bloodwork WBC normal. ALT normal. AST 65. Platelets still low. VL= 3.14 mil.
(update 5/08) Begian tox 3# Made some changes in plan. See journal entry 3rd tox begins.
Supplements as of 1/1/08
a multi vitamin/no iron
1000 mg of Salmon Oil (epa=160 mg / dha=240 mg / omega 3 = 400 mg) x1
500 mg ALA x2 daily
Raw flaxseed/ 1 teaspoon daily
Hepatapro PPC (900 mg) x 2 (1800 x2 on tox)
info: http://www.medhelp.org/posts/show/346752 ;
Resveratrol (500 mg) x1 and x2 (alternate every other day)
info: http://www.lef.org/resveratrol/
source: http://megaresveratrol.com/
SAM-E (400 mg) x 2
NAC (600 mg) x2 with Vit C (500 mg) x2
Info: http://tinyurl.com/9yopf
TMG (750 mg) x 2
http://www.raysahelian.com/trimethylglycine.html
Taurine (500 mg) x 2
http://en.wikipedia.org/wiki/Taurine
Curcumin (800 mg) x 2 / Powerful Antioxidant Properties to scavenge free radicals
Anti-Inflammatory Actions
Enhances important detoxification enzymes
Sylmarin (425 mg) x 2 / Milk thistle provides hepatocellular protection by stabilizing hepatic cell membranes.
Green Tea Extract (300 mg) x 2 /
info: http://tinyurl.com/ypdp9q
Coq10 (200 mg) x 1 / http://tinyurl.com/29em8c
Prebiotic (Inulin 1 scoop per day)
Probiotic (lactobacillus GG by Culterelle) 1 tab 2 x daily.
10/1/09
I beat it.
4/1/10 1 year PCR negative. Life is good.
[Less]
Retreated Fall '06 Pegintron and 1000 Riba. 24 weeks 100% compliant. Anemia treated with procrit. UND at 12 wks and EOT. 6 mos post VL 4 million. Doc ready to treat again fall '07. Planned pegasis and 1000 Riba for 48 wks. Got second opinion from Hepotologist. Downgraded to stage 4/A portal hypertension but compensated. Diagnosed with steatosis as well. (probable nafld) Will up Riba to weight based. Need to get weight down before starting treatment #3. Platelets and WBC still low 12 mos post. Update: Next tox. will predose Riba for 2 weeks, and treat wiith pegasys 180 every 5 days for first 4 weeks then weekly. Riba 1200 throughout. Alinia 500 mg 2x daily for at least first 3 mos. PPC 900 mg x2 daily throughout.
As far as the supplements go on tox:
I WILL take 1 dose NAC/Vitc, PPC, TMG, ALA, Vit D, lactulose and lactobacillus GG in the middle of the day to avoid any obsorption problems with the Riba.
I will NOT take Milk thistle or curcumin or resveratrol or green tea. No anti inflammatories at all.
I will add lactoferrin near EOT. It significantly boosts the immune system, I think it a prudent addition to SOC at the END of treatment. Instead of stopping cold turkey at EOT on the soc drugs (like I did on the last 2 txs'), I plan to taper down and give my own immune system some help coming back online. As soon as I start to taper, I will add the lactoferrin to help. Camel Lactoferrin is 30x stronger than bovine, so I will try that. HR thinks this plan cerrtainly couldn't hurt, and may just help.
(update 3/08) Endoscopy revealed 2 varices (moderately severe non bleeding) in the lower GI tract.
(update 4/15/08) latest bloodwork WBC normal. ALT normal. AST 65. Platelets still low. VL= 3.14 mil.
(update 5/08) Begian tox 3# Made some changes in plan. See journal entry 3rd tox begins.
Supplements as of 1/1/08
a multi vitamin/no iron
1000 mg of Salmon Oil (epa=160 mg / dha=240 mg / omega 3 = 400 mg) x1
500 mg ALA x2 daily
Raw flaxseed/ 1 teaspoon daily
Hepatapro PPC (900 mg) x 2 (1800 x2 on tox)
info: http://www.medhelp.org/posts/show/346752 ;
Resveratrol (500 mg) x1 and x2 (alternate every other day)
info: http://www.lef.org/resveratrol/
source: http://megaresveratrol.com/
SAM-E (400 mg) x 2
NAC (600 mg) x2 with Vit C (500 mg) x2
Info: http://tinyurl.com/9yopf
TMG (750 mg) x 2
http://www.raysahelian.com/trimethylglycine.html
Taurine (500 mg) x 2
http://en.wikipedia.org/wiki/Taurine
Curcumin (800 mg) x 2 / Powerful Antioxidant Properties to scavenge free radicals
Anti-Inflammatory Actions
Enhances important detoxification enzymes
Sylmarin (425 mg) x 2 / Milk thistle provides hepatocellular protection by stabilizing hepatic cell membranes.
Green Tea Extract (300 mg) x 2 /
info: http://tinyurl.com/ypdp9q
Coq10 (200 mg) x 1 / http://tinyurl.com/29em8c
Prebiotic (Inulin 1 scoop per day)
Probiotic (lactobacillus GG by Culterelle) 1 tab 2 x daily.
10/1/09
I beat it.
4/1/10 1 year PCR negative. Life is good.
[Less]
Oct 07, 2012
"Good to see Hector still around and helping folks out. A great source of comfort and info.
A little dark chocolate to sweeten up your day sis!"
Dec 03, 2011
"Any of the old crew still lurking out there? I am Gauf who treated and succeeded a couple yrs back. Just got word my sister is in hospital with end stage liver disease. Stage 4, jaundiced, ascites causing extended stomach. They drained 7..."
I don't know about you, but I am outraged.
I am outraged and not just about Goldman Sachs, but about a process that allows, even encourages political pandering,...
4/10/09
1 week post tox.
Protein, Total 6.7 6.0-8.4 g/dL
Albumin 3.7 3.5-5.0 g/dL
Calcium 8.4 8.5-10.5 mg/dL L
Bilirubin, Total 0.4 0.0-1.5 mg/dL
Alkalin...
Everyone knows Obama is spending trillions of our taxpayer money-draining 100's of billions of dollars out of the private sector-in order to grow bureaucracy and patro...
Weight Tracker Stats
Start weight:
251.0 lb
Weight change:
Lost 55.0 lb
Current weight:
196.0 lb
Goal
Goal weight:
180.0 lb
% Goal Complete:
77.5%
% Time Complete:
Goal tracking ended.
Days left:
Goal tracking ended.
12/11
I remember well your list of supplements. I took everyone while waiting to tx. I am so sorry to hear about your sister. She has a good advocate in you. I wish you both the best getting through this. Isobella
11/10
glad to have your list of nutrients available when I want to refresh my memory/list
06/10
Thank you for reposting your list of supplements. Until I can treat again in 2011 you give me hope and that is the one thing I never want to lose through this horrible virus, tx and sx.
Bless you
Dee
06/10
Hey Gauf,
Hope you are doing well! and beating those drums!
question: Do you know how I can contact HR??
thanks,
jack (bandman)
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