"Gabapentin, baclofen, flexeril, slow stretching, conserve energy, use wheelchair when out and about. Know my limits and stop before I hit them. That's the hardest one. Will see what the movement disorder clinic says"
RazCarver's Profile
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About Me: Female, 62, Chattanooga, TN, member since Jan 2011
been in limbo since 2006
Interests:
Multiple Sclerosis, motor neuron disorders, ataxia
Aug 01, 2015
"all this started in 2006 and finally a diagnosis of progressive spastic ataxia that could be hereditary but the DNA test costs a lot. Vanderbilt is now referring me to the their movement disorder clinic. Not sure what they do but they ar..."
Jan 07, 2014
"Cold is way down south too. Not as bad but sure reminding me of Michigan.
Have appointment Wednesday at Vanderbilt Neurology clinic. Hopes are for answers but after all this time I'm doubtful.
My thoughts are with you Alex
"
I have learned that you take someone with ataxia and turn out the lights they fall over more often.
That a icy cold shower gives me a headache and muscle spasms.
T...
MRIs
2006: a few bilateral very small 1 to 2 mm hyper intensities in the sub cortical white matter on T2 and IR sequence which may represent benign prominent perivascu...
Weight Tracker Stats
Start weight:
209.0 lb
Weight change:
Lost 2.0 lb
Current weight:
207.0 lb
Goal
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125.0 lb
% Goal Complete:
2.4%
% Time Complete:
Goal tracking ended.
Days left:
Goal tracking ended.
09/13
How have you been? Anything new? Can you collect disability or go on medicaid or anything like that? Good to see you online. :-)
06/11
It is just too bad this MonSter didn't get the memo that we are too old.... my dx was at age 54 and I heard the same thing initially from my neuro
05/11
Happy Mother's Day! And thank you for the note. :) I truly appreciate what you wrote. Thank you and hugs, Addi
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