Its good you are searching for answers! The medical community as a whole is in the dark on what to do to help there patients with this problem. It has been 13 months since my surgery. They removed a nerve from my right leg and connected it from my phrenic nerve to my diaphragm. It then takes up to 14 months to recover if it is a success. I feel that mine has been! I could not run more than 50 ft. 6 years of suffering,breathing on a cpap unable to tie my own shoes as I could not bend over and breath. Dr Kaufman is the Dr to contact. I do not know what lead to your problem. Go to http://www.advancedreconstruction.com and contact them by email or phone. They can tell you what to do next. - Ross
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