"I actually ended up with four head and a total of 11 surgeries in three years. The others were related to shunt in, out and complicaitons. The LP shunt was horrid. I had a lot of isues, leaks and just overall complications because at ..."
zygy2's Profile
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Wishing it was Spring and not Fall, had to turn on my heat this morning and it makes me want to cry :) LOL
About Me: Female, NH, member since Apr 2011
Happy mom of two that enjoys sunshine and a good book! Have been dealing with Chiari since 2009 after about five years of strange headaches and a few other weird things! Have had three surgeries now and still have a pseudomeningocele :) Oh well.
Interests:
Thyroid Disorders, Migraines
Best Answers: 3Top Answerer:
Neurology
Aug 09, 2017
"I have Chiari, EDS III, Hyperadrenic POTS and deal with costochondritis all the time! I attacks that she actually calls slipping rib syndrome that have sent me to the ER the pain was so bad. I had no idea it was just from ribs moving b..."
Jul 16, 2015
"The EDS thing is funny, I felt the same way Selma! When I started on the boards I read about it and said "that is not me" I WAS WRONG! It was me, only when I was younger! As a child I was still super flexible (as my daughter is now)...."
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02/14
You deserve a big bear hug! So glad u r doing better and I know we have to come to terms with the NEW us....Chiari is life altering and it takes time.Hang in there : )
02/14
Just a quick note to say hi! Thanks for always being so helpful and willing to share with the newbies...I know I can always count on u : )
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