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About Me: Female, 64, VA, member since Mar 2008

If anyone is having trouble reading this try your refresh button on your computer. I can't seem to get to my whole experience to come up. I think it is important to read for some because it could help others suffering and decisions about their treatments.I was dx 3c gra ... [More] de 3 March 06. Surgery: 3/13/06 hysterectomy, debulking.Complication Pinched bowel Emergency surgery 3/27/06, ostomy. Went septic. 6 weeks ICU. Chemo May-Aug 06. Carbo/Taxol. NED. Bowel reversal, second look, scar revision Jan. 07. Feb. CA125 started to rise. CT clear. My CA125 continued to rise. It reached 886 in Aug. 06. A PetCt was ordered and showed cancer progressed rapidly to liver, spleen, pancreas, lower an upper bowel. Cancer everywhere! Doctor would not operate. Went clear across the US and had a secondary cytoreductive surgery with complete debulking. Dr. Spirtos in Las Vegas did the surgery. Had many complications. Went septic twice. Was in ICU for about 9 weeks. Lost the ability to walk and use of my hands. Went to rehab in Las Vegas. Home to VA and started Chemo Nov. 06 Gemzar/Carbo. Just started my 6th treatment and my CA125 is 9.4. My treatment should end this thursday 3/20/08. My CA125 is starting to rise again after my 6th treatment, 14.0. On 5/27/08 it is 24.5. TREND!!! Had a CT scan 5/30/08. Waiting for results. Bad news CA125 jumped to 130 in three weeks. Its in not on my liver now and spread to my lung. It is also in 6 other places throughout my abdomin. I start cisplatin/taxol today 7/8/08. I've done 3 platinum drugs in the last 18 months. I hope I can tolerate this one. Doctor is going to check every two treatments with a scan and that will determine whether I continue. All my hard work with the surgeries. They almost killed me. I don't get it. I'm very down. Well, more bad news. After my fourth treatment of cisplatin/taxol which have been hell on earth my CA125 went up 5 points to 76. That doesn't sound like a big number for some but during treatment. My CA125 either doubles up or doubles down. Doctor said it might be a plateu. Well see. Still frightened and scared. Nothing seems to be stopping my cancer. Well the Cisplatin/taxol has stopped working. Had a CT scan that showed 2cm and 3cm tumor IN my liver with 30 other stops. It was covering my liver. I asked about the cyberknife...my gynonc called and the head radiologist and we had a consult two hours later. I do not qualify for the cyberknife at this time. The radiologist called UVA for a procedure called SIRTS. He knows the team of doctors that do this procedure. It is done through the main vein to the liver with radiation in the form of sandy little balls. Cutting edge. That explanation is a breif description of the procedure. There is a lot more involved. My insurance will probably deny. It is FDA approved for colorectal mets to the liver. I had a pet ct on friday and won't get the results until monday. CT scans usually don't show all my cancer due to so much scar tissue etc. Hopefully all the cancer is only in my liver. I also have an appointment with the head of radiology at UVA that would be doing the SIRT procedure. I have a lot of road blocks. I must qualify for the procedure! No other cancer anywhere else. I'm bringing my CT disc and PETCT disc (not read yet) with me. The insurance is going to be the biggest problem. I don't have the time. I am not on any chemo now and with aggressive cancer I'm scared. All that growth while on cisplatin/taxol! It was pure hell during treatment. So, I won't have any answers until after tomorrow. I think the date tomorrow is Oct. 25. Well, I received the PetCT and there are two more spots t9spine and pelvis. Update..Today is Thanksgiving and tomorrow I will be getting my 2nd Doxil treatment. I quailified for the Sirt 6 weeks ago. Who knows what has grown inside me since that time. We are in the appeal process now. I no longer qualify for most trials. Let's hope the doxil shrinks the liver tumors enough for RFA. That will help to keep things under control until the Sirt. Hopefully there is no more disease gowing in other places. I do not feel well. I'm very tired and have pain. I'm very scared! This time last year I was fighting for my life in ICU. Nothing is working. Update:I just started low dose cytoxan and low dose avastin. It is January 20, 2009. The cancer has spread to a bone in my pelvis and my liver has too many tumors to count. I have an implant in my stomach and cancer on the right and left pelvis. I have a spot on my t9spine and spots on my lungs. I have another one on my bowel. This was three weeks ago. This progression happened while on cisplatin/taxol followed by doxil. The cancer in my liver is on the main vein that feeds the liver blood. I was yellow a few weeks ago and now my skin looks slightly tan. The whites of my eyes are still white by my liver enzymes are way off the chard. I'm scared! Ladies if you have read this please pray for me. Thank you [Less]

Interests: Mom and Dad, Sister & Family, Home, The Shore, Wine Festivals, Motorcycling, Boating, God, Husband kids God Family first, faith in God, husband, children, grandchildren ... [More]



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