"Most hepatologists tell their cirrhotic patients to beware of any vitamin or herb or supplement. Just like any med can't be changed without a doctor's approval all must be known to manage liver disease effectively..
Certain vitamins o..."
HectorSF's Profile
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About Me: Male, 70, San Francisco, CA, member since Mar 2008
I was diagnosed with cirrhosis in 2007 caused my hepatitis C. I treated with interferon +ribavirin but did not respond to treatment. In 2009 my cirrhosis decompensated, and I developed ascites and HE. I was then put on liver transplant waiting list. In June of 2011 I wa
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s diagnosed with liver cancer. 2012 one of the first 61 cirrhotics with HCC in ever to treat with Sovaldi in clinical trial. Unfortunately I relapsed after being undetectable for 47 weeks. The results of our study is the reason that Sovaldi is now approved for hepatitis C infected patients with liver cancer (HCC) awaiting liver transplantation.
In 2013 my cancer progressed so that I was removed from transplant waiting list because my cancer was outside of transplantation criteria. I tried 5 successive treatments but they all failed to get me back on the waiting list. I was told that without a transplant very soon I probably only had a few months to live. So I volunteered to try an experimental radiation treatment at our cancer center. The five radiation treatments successfully in downsized my cancer and AFP enough so I was able to get back on the waiting list and got a liver transplant Nov. 16, 2013. After my transplant I treated my hepatitis C for the third time and was cured at the beginning of 2014. I also treated my TB and was cured as well.
I am the co-founder of my transplant center's hep C support group and support others going through the transplant process as well. I am also a peer to peer liver cancer (HCC) counselor with our cancer center for people who want to talk to others who have been diagnosed with liver cancer.
I am very grateful to all of the doctors who didn't give up on me and literally saved my life. I am also very grateful to my donor family who gave me the gift of life. I now have a healthy 38 year old female liver that allows me to wake up and open my eyes each day. :-)
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In 2013 my cancer progressed so that I was removed from transplant waiting list because my cancer was outside of transplantation criteria. I tried 5 successive treatments but they all failed to get me back on the waiting list. I was told that without a transplant very soon I probably only had a few months to live. So I volunteered to try an experimental radiation treatment at our cancer center. The five radiation treatments successfully in downsized my cancer and AFP enough so I was able to get back on the waiting list and got a liver transplant Nov. 16, 2013. After my transplant I treated my hepatitis C for the third time and was cured at the beginning of 2014. I also treated my TB and was cured as well.
I am the co-founder of my transplant center's hep C support group and support others going through the transplant process as well. I am also a peer to peer liver cancer (HCC) counselor with our cancer center for people who want to talk to others who have been diagnosed with liver cancer.
I am very grateful to all of the doctors who didn't give up on me and literally saved my life. I am also very grateful to my donor family who gave me the gift of life. I now have a healthy 38 year old female liver that allows me to wake up and open my eyes each day. :-)
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Interests:
cirrhosis, Liver Cancer (HCC), HCV, Liver Transplant
Best Answers: 189Top Answerer:
Digestive
Hepatitis
Jun 15, 2016
"What exactly what is your mothers pain caused by…fluid, jaundice…what .?
There are many possible sources of pain if a person has advanced cirrhosis.
The fluid problems are also caused by liver failure. It is called ascites (in Th abd..."
Jun 14, 2016
"From what I can understand…”Destruction indicate the presence of Fe (iron) and / or Cu (copper) issues.”
From what I can tell it appears that your wife has a hereditary liver disease. Most likely hemochromatosis (abnormal iron accumula..."
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03/19
Just got back to this site and realized Hector is not with us anymore. I'm really sad about it. He was always so supportive and gave great insights. Thank you and you will be greatly missed in this community.
03/17
Just now hearing about this Howie. Well, I guess like you told me, none of are getting out of here alive!
Thanks for all your support you gave to all who asked. You are greatly missed :o(
See you on the other side brother!!!
http://www.legacy.com/obituaries/sfgate/obituary.aspx?pid=181060225
08/16
Hector...I am so very sorry to hear this terribly sad news. I feel empty that you are not with us. I had wish so much more life for you and happiness. Thank you for all your unselfishness, your tiring work to help others, your were AWESOME!!! You will never be forgotten. Its like part of me died with you. You were a blessing to all of us. If Hector was here, we were all good. or as good as could be. xoxoxoxo RIP Hector.
07/16
I will always remember you my friend, my hero, my rock. You are a miracle that came to all of us at a time when we needed you. You will always be in our hearts and minds.
Bless you Howie!!
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