"I suffer from KD I have severe right and left flank pains. They have prescribed dilaudid to help with the pain. But I notice that when I dont want to take it I begin to have running nose and the sweats. Is there something else that I can..."
charbie's Profile
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About Me: Female, 49, baltimore, MD, member since Nov 2008
I was born with a congenital defect in both my kidneys. Because my kidneys function at 50% doctors have put me through hell. For about ten years now I have had the same urologist. A nephrologist can not help me until my kidney function changes. So hence I see a urologis
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t because the kidneys back up and the urine goes up instead of down. So I have had MRSA-Kidney Infections, Bladder infections numerous times. I went to JHU they decided a Nephrostomy would be better. Now after I had it placed a week later they pulled out the stent and I had a massive infection. Back to the hospital because a major infection came out. This left me with Cipro by IV and pain meds. But then I began to feel better! Everything was great until they thought they could take it out and I would be fine! Notttt. So once again I had to fire the urologist and go back to my PCP for a renal ultrasound which proved my kidneys were not fine. So now the nephrostomy stays for the rest of my life and I have made peace with it. I get a change of the catheter now once a month and my left kidney gets cleaned out to help the urine try to flow correctly. I am hopeful that I will only have one urine bag in the right and the left will hold. But have faith never give up and fire whoever is stuck on stupid it is your life and your body!! They maybe the Dr but you are the master of your body and you know when you are well and when you are not. Always remember that and fire anyone that does not get it! Peace Charbie
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Interests:
kidneys, pains, years, stenosis, surgery, urologist, help, Bladder, meds, Allergies, Pain, Chronic Pain, Kidney Disorders, Family Health, Parenting, emotional health
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, ADD/ADHD, Smoking
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Jan 28, 2009
"I agree with Jolly a good PM is worth there weight in gold. But try to take it easy believe you me I know how hard that can be. I busted the stitch in my nephrostomy it was hell to just get a single stitch put back in! But getting over t..."
Nov 26, 2008
"Hey Laurie!!!
How are you I just got home from the hospital a four day stay this week three days last week! I got a nephrostomy I thought this would be bad! Catheter in my back and a urine bag but you know what it isnt at all. I am no..."
I have a FB page and a after I was accused of prescription drug abuse I got to thinking about my medhelp family and thought about all the horror stories I have heard from ...
I have had Pneumonia for five weeks and a serious kidney infection in my nephrostomy! Well I have back and forth to a PCP and Mercy Hospital. The PCP has been prescribing ...
I have not left Med Help sometimes I take breaks. It is hard for me to share my thoughts at times. So I go off on my own and come back to my family which is all of you guy...
08/10
Hi Sweetie I am sure you won't remember me. I lost my password when my computer crashed and have been very
ill but wanted to say Hi and see how you are. I have a heart blockage now and am so scared!
Hope all is well my friend
06/10
hiya hun , its been awhile again .. just checking up on ya hope you are doing better !
02/10
Hello charbie just thought i would drop by to see how you have been . hope you get well soon !
12/09
Happy Holidays! Wishing you and yours, Peace, much Love and Joy during this very Special Season.
Holiday (((HUGS)))
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