"yes, you can have pain from scleroderma especially if you develop digital ulcers. Of course it may also be from the fibromyalgia... It seems like everyone that has sclero experiences a slightly different set of symptoms.
What types o..."
JenB12's Profile
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About Me: Female, 39, Guaynabo, Puerto Rico, member since Jan 2009
In October 2008 i was diagnosed with Hashimoto Thyroiditis....Hypothyroidism. I had recently moved to Puerto Rico after moving here from Chicago with my husband who is originally from the island. After about a month of living here i just started feeling tired all the t
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ime, and then started getting dull chronic headaches that would last all day. After a while I started feel so bad that I could not function. I was sleeping excessively, and when I was awake, my head, neck and body felt heavy, and tired. Since thyroid problems are common in my family i figured that was what was going on, and after seeing a doctor and getting my blood work back, i got my hashimoto dx.
I'm now on .075 mg of synthroid after an increase in June 2009,and then a decrease in September... and i'm occasionally still experiencing problems. I joined this website to track my symptoms along with my TSH, T4, T3, levels and to find more answers.
I'm 5'4" and 102 lbs. and in general (until the thyroid problem hit me) in very good health and physical condition.
ON a side note, I had a spinal fusion in 1997 for scolosis, had the rods removed in 2002, and then in 2006 I had a thoracoplasty, and rib rescection which corrected almost completely the rib deformations. I am open to talking to anyone about these surgeries, how they impact your life, and how effective they are, including long term effects. [Less]
I'm now on .075 mg of synthroid after an increase in June 2009,and then a decrease in September... and i'm occasionally still experiencing problems. I joined this website to track my symptoms along with my TSH, T4, T3, levels and to find more answers.
I'm 5'4" and 102 lbs. and in general (until the thyroid problem hit me) in very good health and physical condition.
ON a side note, I had a spinal fusion in 1997 for scolosis, had the rods removed in 2002, and then in 2006 I had a thoracoplasty, and rib rescection which corrected almost completely the rib deformations. I am open to talking to anyone about these surgeries, how they impact your life, and how effective they are, including long term effects. [Less]
Interests:
Thyroid, side effects of synthroid, Scoliosis surgery, thoracoplasty, autoimmune disease, pituitary, Thyroid Disorders
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Jan 20, 2011
"I find the Scleroderma forums on inspire.com to be very helpful for support and advice on sclero and all of the secondary diseases that come along with it.
It's here: http://www.inspire.com/groups/scleroderma-foundation/
medhelp d..."
Jan 15, 2011
"not a problem. It took years for Dr's to figure out what what going on with me because I don't have any skin symptoms that would point them towards scleroderma. I have positive SCL-70 antibodies which typically indicates the diffuse type..."
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03/11
Hello, I have scoliosis and Harrington rods and would love to chat with you. Cheryl
01/10
got my labs back. tsh was great at .72 and my thyroid peroxidase antibodies were under 10. i had high cpk levels at 277. my cortisol was low-ish, at 5. this was in the afternoon, around 3pm tho. I hadn't eaten yet that day tho b/c I wanted to make sure I would be able to have a test if needed after my doc appointment. Anyway, doc had me do an acth stim test a few days later. nurse called w/ those results today. strange ones. my cortisol STARTED at 32.5. After the first injection it went DOWN to 27.68, then after the third injection it went DOWN again to 11.11. really confused by this. The starting number seems so high. Normal values are from 4 - 22 from this lab. And then isn't the cortisol suppoesd to go UP after acth injections? waiting to hear back from doc.
01/10
Thanks! I actually just started seeing a new doc, and he did a full blood work up. pituitary, adrenals, cortisol, all kinds of good stuff. it's end i have low cortisol, high spk levels so we're looking at addison's and/ or lupus or any kind of autoimmune disease. but waiting on another test to come back to see if the low cortisol is coming from my adrenals or pituitary. then we will do imaging tests for a tumor in either. thanks so much for your concern and advice. i would be glad to hear anything else! :)
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