I was recently diagnosed with Sjogren's and small fiber neuropathy after years of being tagged with neurocardiogenic syncope, POTS, venous insufficiency, which just kept getting worse. Prior to my health declining I was a chemist, classical musician, fencer, tennis pla
[More]yer, hiker, swimmer, sailor, etc. Now I pass out too frequently for most "normal" activities. I have an Airedale Terrier and a Scottish Terrier (both rescues) who are my nearly constant companions. They are not assistance dogs, but they do "alert" long before I know I'm going to pass out, which allows me to go out walking every day.
"Re:QSART test. I too had low sweat levels in my foot which were ignored at time of testing. You should have additional testing though, especially with a positive tilt test. The autonomic nerves are responsible for sweat production as ..."
"Just wanted to stick my head in and say "Hi!" I have been super sick, so not on MedHelp in a while. My immune system is still on a rampage, which means the fainting keeps getting worse. I'm trying my second round of IV steroids tomorr..."
Airscottie, Thanks for the suggestion about the skin biopsy for small fiber neuropathy. I have been looking for answers and sometimes neurologists don't listen . I had the small fiber EMG but it showed borderline Myasthenia Graviv and now I do have MG symptoms, but I also have the separate issue with neuropathy. I have been saying infection - test for various microbes! I am contacting my neurologist today. We have similar histories. I am a retired Chemistry professor, guitarist and singersongwriter. Would you like to see my BIO/website and real name? Fandangoman
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