"My son, daughter, and husband all had decomp surgery, each a year apart. My husband had no complications and an amazing recovery. My son had such an immediate relief of pain that he woke up in the PICU in tears of relief. He did acquire ..."
beentheredonethat2x's Profile
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About Me: Female, SD, member since Aug 2009
I have a sister and two children who have had a Chiari I malformation. My sister and son have already had surgery and my daughter is scheduled for surgery on August 14, 2009.
Interests:
chiari I malformation, CSF leak, Headaches, Neck pain, dura patch, Ehlers Danlos Syndrome
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Jan 27, 2014
"They told,y husband the same thing. He just knew his body and had never, ever been a complainer. He saw another doctor, a neurosurgeon, and they did his decomp surgery two weeks later...that was three years ago. He is very stubborn. He ..."
Nov 28, 2009
"I know that what you are watching your child experience is horrible for you. My daughter had a decomp surgery on Aug. 14th and has had terrible problems ever since. She, too, has the bulge on the back of her head and fevers. Her blood wo..."
My daughter continues to feel terrible. Her head, neck, back, and legs hurt so much that she cries several times a day. We took her back to the NL yesterday and she found ...
Wow! We finally heard back from the NS office. The nurse called today, 6 days after the lumbar puncture. She said the NS doesn't think my daughter needs anything more ...
We just got back from another stay in the hospital. A large bulge filled with spinal fluid brought us to the neurosurgeon. He ordered a lumbar puncture and an MRI. The lum...
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10/09
Just a quick note to say hi!..well I like the way u think and this is something I would like to know a bit more about as well.....thanks for the thoughts.
"selma"
08/09
Just a quick note to say hi! I feel for you having so many members of your family being effected with Chiari God Bless you and your family
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