I stared out with some serious stomach problems that lasted a few months. They stared in December, and I was turned away by doctor after doctor, told I had "IBS." So i pushed through the pain,swelling, vomiting, and nausea and continued working- teaching intense aerobic classes 2 times a day and personal training. In March I went to a new doctor and they considered a theory of maybe I had a yeast overgrowth and they treated me with 6 weeks of diflucan while I followed a low carb, no sugar diet.(more stress) By June nothing had gotten better and I had such serious pain that I blacked out. I thought enough is enough and checked into the ER where they admitted me after finding 3 things, 1) i had a completely non functioning galbladder, 2) I had VERY high eosinophils 28 % (a specific type of white blood cell) and 3) low cortisol levels.
They took out my gallbladder and I waited patiently to get better.
However that has been almost 2 months ago, and I am sicker than ever. I am so fatigued I can not work or even leave my house. I go to sleep exhausted and I wake up that way. My legs cramp and hurt all the time. My stomach is bloated and hurts, I cant eat anything without feeling nauseated, I always feel parched, yet all i drink is water, I have lost 15 pounds leaving me with nothing but skin and bone, I feel light headed and dizzy all the time, I get weird nerve sensations at least once a day putting my limbs to sleep or feeling like my there are needles poking me, I haven't had a menstrual cycle in 6 months, and I wake up with terrible stomach pain and heart palpitations where I get a feeling of waves of weakness falling over my entire body. I have been to the hospital and mayo clinic after these "waves" each time they find high eosinophils, and low cortisol (last visit, 24%eosinophils, cortisol 7.0 at 8AM
My cortisol fluctuates a lot, the lowest showing 4.2 at 9AM.
They gave me two stimulation tests for my adrenals.
AM base cort-14.0 30min-21.2- 1 hour-23.8.
This was the most recent. Each time I am released from the hospital and told they will do more tests for things like Lupus and other strange things that don't seam to fit my symptoms at all. I have spent over 100 thousand dollars in doctor bills and tests (thank God for insurance).
I know I pass the criteria for a clinical diagnosis, but I cant help but feel adrenal insufficiency is still the problem, esp after all the stress I endured for MONTHS with my gallbladder.
So here are my questions,
Could I still have an insufficiency even though I am passing the stimulation tests?
If I don't have an actual insufficiency, is adrenal fatigue real? IF I only have fatigue, would I still have high eosinophils?
Does anyone with insufficiency have chronic leg muscle pain?
If I cant get a medical doctor to pay any attention to my adrenals since I barely pass their tests, who can i go to to get help with this? Specific names of any Doctors would be appreciated. I will travel, My husband and I are at our witts end with this. I feel like I am dying and I can't afford to lose another pound.