Weird re iodine scan!
Low testosterone and low TSH .... that can be suppressed by elevated cortisol. Is the doc going to do more testing - or what?
T3 is normal. Dx is subclinical hyperthyroidism (LOW TSH, all else normal, including antibody tests. Only strange fact: Iodine Uptake Scan displayed low uptake at 5.3% which was stated by radiologist as "HYPO" of all things!
Now the abnormality to add to the equation is low Testosterone (FREE AND TOTAL) and profoundly suppressed DHEA-S
But no Free T3...
Stable weight but no loss I would be more inclined actually to lean toward hypercortisolism than hypocortisolism - given that most with Addison's lose and those with Cushing's are all over the place (cortisol is wild!) but there are no absolutes on either side.
I had low BP with both high and low cortisol. Normally that is a sign only of low. It takes a lot of testing and an expert doctor.
A CT should rule things out - but alas - they can be read wrong. Was the MRI done where you had contrast given while you were in the machine - or were you pulled out? If pulled out, it was not a proper pituitary MRI.
ps.. sorry...forgot to answer one of your questions, free thyroid: normal
Thanks for responding. I am still waiting for the tests that I mentioned.
In terms of weight changes: I would say my weight has been very stable.
In terms of the MRI of the Brain with focus on the pituitary, I am not sure concerning your questions. It was read by a radiologist whose specialty is neuro-radiology.
On a different note, I would assume that the CT W/ Contrast
of my abdomen and pelvis would rule out -----major---- problems?
(which both were normal)
What about your free thyroids - is that what you mean by active thyroid?
Has your weight gone up or down? How is your blood pressure? Your doc has pretty much tested everything I suggest except renin - but got aldosterone which is half of the loop.
Imaging as I said before can be iffy- was your pituitary MRI dynamic? Did a pituitary surgeon review the film? Radiologists can miss them as well as a smaller tumor can fall between the 3mm slices.
My adrenals were enlarged when removed - but showed up as normal both before and after removal on several reports. Yes - even after. I am not the only one either.
I prefer to respond on the forum - otherwise I get way too many PMs - and no information is out there to help anyone else. Being a patient myself I only visit once maybe twice a day since I am busy. Please be patient!
Thanks for your comment. I too was leaning toward some type of adrenal issue. My active thyroid t4 and t3 are normal, never been suppressed.
Low DHEA-s can indicate an issue with the pituitary or adrenal insufficiency.
Low potassium is also another indication that something is going on, but usually it would spike, not drop, but I also drop - but usually sodium and potassium drop at the same time.
Cushing's often suppresses the thyroid and testosterone.
So based on this - I cannot tell if you have low or high cortisol - given the symptoms overlap a lot.
Imaging can be misleading - the lesions and the glands are tiny!