Has anyone had to go on disability from AI

[evie0717]

Just wondering if I was the only one on here who as had to quit a good job to go on disability.  I fought quitting  for
a long time.  Because I felt like I was giving in to it.

I have had days at a time when   I can't even get out of bed.

What's the  best medicine for AI?  I,m presitly taking prednisone, but not enough.

Tell me about some of your bad days, I feel alone.

evoe

[evie0717]

tHAT'S A GREAT IDEA

eVIE

[enzymelover]

    It would be good if you can keep a daily record for a while of your symptoms and what time of day or night you experience them, and also any self-treatment that helps relieve them. Then, shove this under your endo's nose, and ask him to please read it. Endo's seem to be better at reading than they are with listening! ( The journal helped with my son's diagnosis.)
With a careful explanation of your symptoms, hopefully the endo will order the correct tests the first time. Wouldn't that be something!

Enzy

[evie0717]

Thanks for your comment.  Best wishes for your son. I imagine that at his age it was hard to diagnose.

I'm not sure I'll like the new Endo  I see in Feb.  I saw him  before and he hardly walked in the room.

My Internal medicine doc told me he would manage it his self.  Wll, now I'm going to a teaching University and they were blown away at how undertreated I'd been.

I'mstarting to get hopful again.  That's pretty good for me.

Thanks for the comment

evie

[enzymelover]

   My son had to "give up school" because of secondary adrenal insufficiency. Couldn't get out of bed, extremely nauseous, blood pressure changes, fatigue, etc. I homeschool him now. He's thirteen.
You might do better on hydrocortisone, and possibly fludrocortisone also, if you crave, or need sodium. These are more specific to the adrenal hormone losses.

My son still frequently feels fatigue, and has low stamina and digestive problems, but we shouldn't compare him to the way you feel, because he has a pituitary cyst, and resultant loss of growth hormone, thyroid hormone, and luteinizing hormone, as well as adrenal.

If you feel nauseous, a little salt may help.

Stick around. I don't think you'll feel quite so alone after you've been here a while.
It will get better.

Enzy